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Anyone have experience of taking Imiquimod when taking hydroxycarbamide?
I don't post on here often but have now been diagnosed with VAIN2. I am currently being treated with hydroxycarbamide & low dose aspirin for JAK2 positive MPN (high platelets but treatment is currently keeping these within normal range). My gynaecologist wants me to start on imiquimod rather than any
I don't post on here often but have now been diagnosed with VAIN2. I am currently being treated with hydroxycarbamide & low dose aspirin for JAK2 positive MPN (high platelets but treatment is currently keeping these within normal range). My gynaecologist wants me to start on imiquimod rather than any
Devilgirl
in
MPN Voice
1 year ago
Being diagnosed with IBS š
Hi all Iām Danny 41 Iāve been suffering for about 4 months with dull gut ache which can get painful aswell and had doctors and was given bloods and stool sample tests and came back normal and have now been told I have what they say is IBS . I was taking Buscopan but after 3-4 weeks they stopped working
Hi all Iām Danny 41 Iāve been suffering for about 4 months with dull gut ache which can get painful aswell and had doctors and was given bloods and stool sample tests and came back normal and have now been told I have what they say is IBS . I was taking Buscopan but after 3-4 weeks they stopped working
Patchesnendusty1984
in
IBS Network
1 year ago
helped needed on how to treat internal tremors in arms and legs
I was diagnosed with PD over 3 years ago and prescribed Rasagiline and Madopar. Sorted RLS with TruNiagen. Nicotinamide Riboside Sorted most PD symptoms with B1 sublingual. Eg balance, arm swing, smile, energy etc. My problem now is internal tingling down arms and legs without visible movement.
I was diagnosed with PD over 3 years ago and prescribed Rasagiline and Madopar. Sorted RLS with TruNiagen. Nicotinamide Riboside Sorted most PD symptoms with B1 sublingual. Eg balance, arm swing, smile, energy etc. My problem now is internal tingling down arms and legs without visible movement.
Windermere1
in
Cure Parkinson's
1 year ago
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BONE MARROW TRANSPLANT
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
kevinbros
in
MPN Voice
1 year ago
Understanding BMB
Hi, Reading other members' interpretations of their BMB reports has led me to look at mine more closely, and would value your input. I had my second one over a year ago and was told like my first one everything was fine - no fibrosis. I have PV and take Rux. I didn't question it. However, In the Trephine
Hi, Reading other members' interpretations of their BMB reports has led me to look at mine more closely, and would value your input. I had my second one over a year ago and was told like my first one everything was fine - no fibrosis. I have PV and take Rux. I didn't question it. However, In the Trephine
JP1952
in
MPN Voice
1 year ago
Adalimumab
I have RA and Parkinsonās and noticed after starting Adalimumab that my tremors, cramps and stiffness has increased. Any thoughts anyone?
I have RA and Parkinsonās and noticed after starting Adalimumab that my tremors, cramps and stiffness has increased. Any thoughts anyone?
Tickles1960
in
NRAS
1 year ago
ANNOVIS BIO ANNOUNCES PATIENT ENROLLMENT UPDATE FOR PHASE 3 STUDY OF BUNTANETAP FOR THE TREATMENT OF PARKINSON'S DISEASE
Based on the current enrollment, the Company anticipates having a sufficient number of patients who have received two months of therapy to conduct an interim analysis in the second quarter of 2023. The purpose of the interim analysis is to determine if the Company's original estimates for patient enrollment
Based on the current enrollment, the Company anticipates having a sufficient number of patients who have received two months of therapy to conduct an interim analysis in the second quarter of 2023. The purpose of the interim analysis is to determine if the Company's original estimates for patient enrollment
Farooqji
in
Cure Parkinson's
1 year ago
Hypoxic brain injury update
Hi all My brother was admitted to hospital having been found unconscious (potentially for several hours) with 54% bloody oxygen which I understand is extremely low. He has now been in hospital 12 days. He has been in a coma, and they have started reducing the medication to try and bring him round,
Hi all My brother was admitted to hospital having been found unconscious (potentially for several hours) with 54% bloody oxygen which I understand is extremely low. He has now been in hospital 12 days. He has been in a coma, and they have started reducing the medication to try and bring him round,
Chrisd88
in
Headway
1 year ago
Looking for cycle buddies šš» day 7 downregging, cycle 6
Hello, well here we go againā¦ cycle 6 (our second attempt at a sibling for my 2 year old conceived through our 4th attempt). Iāve just finished first week of buserelin injections. As always itās giving me massive waves of anxiety. This time the anxiety and low mood hit quite a few days later than the
Hello, well here we go againā¦ cycle 6 (our second attempt at a sibling for my 2 year old conceived through our 4th attempt). Iāve just finished first week of buserelin injections. As always itās giving me massive waves of anxiety. This time the anxiety and low mood hit quite a few days later than the
lmno
in
Fertility Network UK
1 year ago
"A bomb" delivery success!
hey guys..im pleased to report an(almost)flawless delivery at y/days c.h.c meeting.the almost is because unit manager wasnt present,she had gone home with a "tummy bug"?mmmm...I had with me client welfare/support from legal team she came to my house first we had coffee and i showed her msgs from incident
hey guys..im pleased to report an(almost)flawless delivery at y/days c.h.c meeting.the almost is because unit manager wasnt present,she had gone home with a "tummy bug"?mmmm...I had with me client welfare/support from legal team she came to my house first we had coffee and i showed her msgs from incident
Dogsabighelp
in
Headway
1 year ago
CALR+ eosinophilia
Greetings from Brooklyn, New York! For the past 3+ years my CBCs have consistently shown significantly high eosinophils. In the first year, I received an "eosinophilia of undetermined significance diagnosis" after a slew of tests including BMB which was apparently normal at the time. I now have a new
Greetings from Brooklyn, New York! For the past 3+ years my CBCs have consistently shown significantly high eosinophils. In the first year, I received an "eosinophilia of undetermined significance diagnosis" after a slew of tests including BMB which was apparently normal at the time. I now have a new
yung_kokonut
in
MPN Voice
1 year ago
temgesic Vs subutex
Hello! My husband was prescribed temgesic for 5 days as a trial medication. He has suffered with terrible nausea despite having ondansetron on board. He complains of the frothiness from the medication and how it makes his teeth feel. Has anyone else has an issues with the frothiness making them sick
Hello! My husband was prescribed temgesic for 5 days as a trial medication. He has suffered with terrible nausea despite having ondansetron on board. He complains of the frothiness from the medication and how it makes his teeth feel. Has anyone else has an issues with the frothiness making them sick
Skye96skye
in
Restless Legs Syndrome
1 year ago
Latest update on son
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Nanapal
in
Headway
1 year ago
Disheartened on Temgesic - Subutex might be the answer If you can acquire it.
Young male under 30 24 hr symptoms and 10/10 pain . Unable to work Unable to drive Suffered since childhood . Was still on 1200 gabapentin Prior to Temgesic he tried everything as we do. I did not think Temgesic would work due to severity of his condition. He was given a 5 day trial on Temgesic
Young male under 30 24 hr symptoms and 10/10 pain . Unable to work Unable to drive Suffered since childhood . Was still on 1200 gabapentin Prior to Temgesic he tried everything as we do. I did not think Temgesic would work due to severity of his condition. He was given a 5 day trial on Temgesic
Shumbah
in
Restless Legs Syndrome
1 year ago
Link between ibs and bladder problems
Hi. Just wondering whether anyone else has noticed a link between their ibs and urinary urgency/incontinence. I struggle with a lot of bloating/wind and also have issues with needing to rush for a wee urgently sometimes, and sometimes not making it in time. Also my ibs, which I have had for years was
Hi. Just wondering whether anyone else has noticed a link between their ibs and urinary urgency/incontinence. I struggle with a lot of bloating/wind and also have issues with needing to rush for a wee urgently sometimes, and sometimes not making it in time. Also my ibs, which I have had for years was
Deniseki
in
IBS Network
1 year ago
Ashwagandha for cortisol levels
Hello everyone, My thyroid specialist recommended I take Ashwagandha to keep my cortisol level up after a treatment to improve my levels. I took this brand (not sure if I can state the brand) for a couple of months and was fine, then suddenly I started experiencing diarrhoea, then I became violently
Hello everyone, My thyroid specialist recommended I take Ashwagandha to keep my cortisol level up after a treatment to improve my levels. I took this brand (not sure if I can state the brand) for a couple of months and was fine, then suddenly I started experiencing diarrhoea, then I became violently
jand123
in
Thyroid UK
1 year ago
discomfort but only at night
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
brown1688
in
IBS Network
1 year ago
Busereline shortage
Hello, Does anyone know where I can get Busereline? None of the pharmacies have it in stock and their suppliers donāt have it either. I will be starting stims in 11 days and we were hoping to use it alongside the trigger injection. Thanks Sam
Hello, Does anyone know where I can get Busereline? None of the pharmacies have it in stock and their suppliers donāt have it either. I will be starting stims in 11 days and we were hoping to use it alongside the trigger injection. Thanks Sam
Chegotsi
in
Fertility Network UK
1 year ago
DHIVY
Hello all, wondering if anyone has any kind of feedback on DHIVY? Iām taking two carbidopa levodopa at 25/100 and the tremors are much much worse and stiffness is worse as well. I canāt take any more than two a day because my gut will not take it and the pain in my stomach becomes much much worse as
Hello all, wondering if anyone has any kind of feedback on DHIVY? Iām taking two carbidopa levodopa at 25/100 and the tremors are much much worse and stiffness is worse as well. I canāt take any more than two a day because my gut will not take it and the pain in my stomach becomes much much worse as
MissRita
in
Cure Parkinson's
1 year ago
Trichotillomania
Does anyone else suffer with hair pulling? I have been doing this to my eyelashes for over 40 years. I am on citalopram for anxiety 40mg for 15 years. I try so hard to stop. Even took up knitting to keep hands busy. Any ideas? Will they grow back? I try not to have eye contact with people incase they
Does anyone else suffer with hair pulling? I have been doing this to my eyelashes for over 40 years. I am on citalopram for anxiety 40mg for 15 years. I try so hard to stop. Even took up knitting to keep hands busy. Any ideas? Will they grow back? I try not to have eye contact with people incase they
Skyp
in
Anxiety Support
1 year ago
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