Posts - SHARE Ovarian Cancer Support | HealthUnlocked

SHARE Ovarian Cancer Support

2,761 members • 981 posts

All posts for January 2018

Body pain after chemo?

It’s been 7 weeks since my chemo (abraxane/carbo 18 wks). I still have body pain- joints, muscles,bones all feel the same kind of achy from chemo. Is this...

It’s been 7 weeks since my chemo (abraxane/carbo 18 wks). I still have body pain...

•6 years ago

Hernia surgery

After ovarian surgery, has anyone suffered from hernias and had to have surgery for one or more. I've have 4, one repaired during cancer surgery and 3 other...

After ovarian surgery, has anyone suffered from hernias and had to have surgery ...

•6 years ago

CA125 ftom 532 to 425 after one chemo!

Hello everyone, Can I know if this little decrease after one chemo is normal ? I know people respond differently to chemo but what is your max decrease?...

Hello everyone, Can I know if this little decrease after one chemo is normal ? I...

•6 years ago

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Lehigh Valley Ovarian Cancer Peer Support Group

I am a new member and happy to have found this group. I am 51 years old and 15 mos NED. I am starting an Ovarian Cancer Peer Support Group for the Lehigh...

I am a new member and happy to have found this group. I am 51 years old and 15 m...

•6 years ago

Primary Peritoneal Cancer

Hi, I’m new here. Diagnosed November 18, 2016 with Primary Peritoneal Cancer, staged at 3C. This was found during exploratory surgery. I’d had a completely...

Hi, I’m new here. Diagnosed November 18, 2016 with Primary Peritoneal Cancer, st...

•6 years ago

Rubraca side effects

I’ve been on Rubraca for almost 6 months now. I’m tired, have some joint aches and have a change in my vision. Is anyone else on a Rubraca treatment plan and...

I’ve been on Rubraca for almost 6 months now. I’m tired, have some joint aches a...

•6 years ago

What questions do you have for Dr. Gershenson's "Ask Me Anything"?

On Jan 31st at 8:00 pm ET, Dr. Gershenson will be answering your questions. He is a current professor and the past chair of the Department of Gynecologic...

On Jan 31st at 8:00 pm ET, Dr. Gershenson will be answering your questions. He i...

Partner•6 years ago

Stomach pain after chemo in stage 3 OC

Hey everybody! Hope all are doing great. Again, I have a question for my mom. She has still some pain in her stomach afrer her first chemo which was about 10...

Hey everybody! Hope all are doing great. Again, I have a question for my mom. Sh...

•6 years ago

Sleep help

Hi all, I just wanted to pass on something that helped me sleep last night. Its on you tube. Micheal Sealy It’s guided Meditation on anxiety, Worries and...

Hi all, I just wanted to pass on something that helped me sleep last night. Its...

•6 years ago

Serendipity situations? What have you had happen?

For me these were the two most significant lucky situations. * Caught a pumulary embolism low in my lung when the did my cancer CT test. Turns out I had a pe...

For me these were the two most significant lucky situations. * Caught a pumular...

•6 years ago

Help! So many codes. I don't always know what they mean? I'm from the USA and some terms with the UK or Australia are... "say what"? for me

A few I've I learned : * lo - little one. * NHS - National Health Services *gyn/con - gynecologist/encologist What others are out there that I might need...

A few I've I learned : * lo - little one. * NHS - National Health Services *...

•6 years ago

Do any of you have chronic illnesses in addition to cancer? Have they caused problems with diagnosis, treatment, or recurrence?

I have Chronic Fatigue Syndrome and Fibromyalgia, as well as severe allergies. Now I have stage 3c Ovarian Cancer. Questions : *Have any of you found...

I have Chronic Fatigue Syndrome and Fibromyalgia, as well as severe allergies. N...

•6 years ago

My daughter gets frustrated with me. Am I wrong?

I watch my 3 granddaughters when she works. She is a stylist. She had a chance to do a wedding but it would be 2 days after my 6th chemo session. I told her...

I watch my 3 granddaughters when she works. She is a stylist. She had a chance ...

•6 years ago

How many chemo before surgry for Ovarian cancer stage 3c

My mom has ovarian cancer. She just started her chemo, and only did one so far. The doctor suggests before each chemo they will check and test her situation...

My mom has ovarian cancer. She just started her chemo, and only did one so far. ...

•6 years ago

Stage 3 OC

Hi friend I am currently going through stage 3 OC and was told I have a year left I have two beautiful daughters that's 5yrs old and the older is 11yrs old...

Hi friend I am currently going through stage 3 OC and was told I have a year lef...

•6 years ago

High grade PPT cancer

Hi everyone, I am new and have concern for my mom case. I have couple of questions: How many days gap is given between neoadjuvant and adjuvant chemotherapy...

Hi everyone, I am new and have concern for my mom case. I have couple of questio...

•6 years ago

Carboplatin reactions on 6th session

My concern is that there seems to be evidence of patients that get to session 6 and then have a reaction to the carboplatin. My daughter knows one...

My concern is that there seems to be evidence of patients that get to se...

•6 years ago

High grade ovarian Cancer 3c

Hi everyone, I’m new to the forum. I’m so glad I finally searched an found this forum. as I have been struggling emotionally with this thing consuming my...

Hi everyone, I’m new to the forum. I’m so glad I finally searched an found this...

•6 years ago

Upcoming "Ask Me Anything" on Rare Tumors with a Gynecologic Oncologist-- and get a free book!

Hi everyone :) I'm excited to say we'll have another AMA, or Ask Me Anything, on the ovarian community on January 31, from 8-9pm ET. This is an entire hour...

Hi everyone :) I'm excited to say we'll have another AMA, or Ask Me Anything, on...

•6 years ago

Mirvetuximab Soravtansine and gemcitabine Hydrochloride

Is anyone in a clinical trial with Mirvetuximab? There is currently a trial recruiting at City of Hope I'm looking into.

Is anyone in a clinical trial with Mirvetuximab? There is currently a trial rec...

•6 years ago

Has anyone experienced falls after finishing treatments

I am in remission since the end of summer.has anyone out there experienced any effects of having chemo? My body still hurts! I had bad back problems prior to...

I am in remission since the end of summer.has anyone out there experienced any e...

•6 years ago

Avastin Question - for short or long term use?

Hello all, I'm a newbie on here, on behalf of my mother. I'm seeking your thoughts and prior experience about Avastin. My mom has stage 3 high grade serous...

Hello all, I'm a newbie on here, on behalf of my mother. I'm seeking your thoug...

•6 years ago

Ovarian Cancer Discussion Group

Hello everyone and Happy New Year! I wanted to let you know that SHARE has created a new telephone/video discussion group for women with ovarian cancer. Each...

Hello everyone and Happy New Year! I wanted to let you know that SHARE has creat...

•6 years ago