Hi all. I have been thinking about you all and have wanted to write but I have been going through more hell. One of our Dr.s decided to change my painkillers from Buprenorphine to Tapentadol which hurt my tummy. I have a 10 cm Sliding hiatal hernia so some medication is a problem. She then changed the Tapentadol to Oramorph and morphine pills , MST which were horrendous! They hit my gut and I was sick 3 times that night, being asleep and sitting bolt upright and being sick is horrible but I also had a bright red rash from my chin down to my waist. After being sick for the 3rd time I was exhausted and felt so ill for 3 days! I rang our Surgery and asked them to let the Dr. know but heard nothing back! Luckily, I had some Buprenorphine so I started to take them again . I had to phone the Surgery again to make an appointment to have a phone conversation with my Dr. That was a week after the allergic reaction ! By the way, I didn't take the Ropinirole! Shhh! I told the Dr. that they hurt my tummy! I have been through Endometriosis, 3 major ops for that and a couple of minor, no children, bowel problems and investigations. 1 Gastroenterologist telling me that I have a thickening in the Colon which might be a tumour and a Polyp but nothing was done ! I have , also, had lung cancer with a tumour which was ignored by the Pain Clinic for 15 months until I got pneumonia and it was noticed!! Everything then moved quite quickly and I had an upper right Lobectomy. Now in remission! There is more but I just wanted to tell you all SO that you know that I am a fighter.....but I am getting tired of fighting the medic's now!!I have been begging the Dr.s for 3 years to see a Neurologist in our hospital. They said that there was no point! I had seen him about 10 years ago because I have a bad hand tremor and he was so thorough and kind and he diagnosed an Essential Tremor. Unfortunately he doesn't do Private Consultations. My Dr. has now agreed to contact the Neurologist but the waiting list is up to 2 years! I told the Dr. that I am , also, going to write to the Consultant and the Dr. thought that that was worth a try! So, my question is, how could my Dr.s leave me for so long in agony and struggling and not give me the help that I have been begging for ? I have given them the information from the RLS Society ( I don't believe that they read any of it and didn't put the posters up !) and had to fight for Buprenorphine and have had to ask for blood tests. The recent tests have shown that my thyroid is struggling, my Folate level is low and my Ferritin level is always 36 and below so I am now on more medication for all of that but surely the Dr.s should have been keeping a check on all of that ? Why is it up to us these days to fight for treatment and constantly fight to even check up on our bloods ? Nurses have taken over a lot of jobs which Dr.s used to do and quite frankly, I'm feeling too sore, exhausted and ill to keep fighting....but I will I suppose! I'm going to be 72 in a couple of weeks and I won't forgive the Orthopaedic Consultant I saw a few weeks ago who told me that I had had too many birthdays which is why I have Osteoporosis!
I thank goodness for all the help and support I have had from all of you here, in particular Jools and Sue who have been amazing. Huge hugs to you both. Big hugs to all of you who have been there for me . Please take care all of you . RLS and all that goes with it is just horrible. Thinking of you all. Love, Danni xxx
Under-informed medical profession..again 
3 years Buprenorphine Success.
buprenorphine, pregablin, opiates 
