Hi all . I wrote a fairly long post which appears to have vanished! As it's 3 a.m. I will write properly later as I'm exhausted! My Dr. has been advised by a Neurologist in our hospital to try me on Rotigotine Transdermal patches but I am aware that this is not a good option for RLS ! How bad are they please? I have already refused Ropinirole and I have told them that D A 's are not recommended but my Dr. is now not bothering with me despite the fact that my vertebral fracture pain is getting worse. The Buprenorphine tablet's are helping my RLS but he has prescribed 0.4mcg 3 times a day and I need to take 4. I have given our Surgery information and posters from the RLS Society but they didn't put the posters up and I don't think that they have bothered to read any of the information. Thank you so much Jools for working so hard on our behalf. I will write more tomorrow as my back is in agony! Thank you to Jools and Sue for all of your advice and support. Take care all. xx
Well! That was annoying! : Hi all . I... - Restless Legs Syn...
Well! That was annoying!
The Rotigotine Transdermal patches is another DA and even harder to come off of.
1. Your earlier post is visible here under the title 'Back Again'.
2. If Jools had already been on here I'm sure that she would have posted Dr Berkowski's video on rotigotine:
youtube.com/watch?v=Tz7g9sx...
Hi Chris. Thank you for letting me know. I don't know what happened but I kept getting a notice saying that my post wasn't working and I had to try again which, as you can see , I did but then the original post appeared again. All very strange. I cannot get through to the medic's where I am and I'm exhausted trying! I'm not rude to them and I'm not aggressive, I just pass on information which has been passed to me by the RLS Society but they don't like us being informed about what is going on with our bodies. They have made so many mistakes with me that I don't trust them but unfortunately we need them especially when we are desperate! Ooops ! Soapbox again! I hope that you are alright. Take care. Best wishes, Danni.
Danni,Can you afford private medical cannabis?
Most pain killers don't touch severe back pain.
I've replied to your other post.
Do NOT touch the Patch. It's worse than Ropinirole.
Here are links to private cannabis clinics.
Opioids don't help pain long term. You end up taking higher doses.
Vaping cannabis would help your back pain.
>vertebral fracture pain is getting worse<
Oh no! This is terrible. I'm so sorry you're going through this. I know someone who's recently had theirs shatter, their neurologist suggested phyiso therapy but with no twisting, no exercise bands in order to strengthen the muscles and their core, including glutes.
They also said that their neuro explained that making sure that you consume adequate levels of: creatine, calcium, vitamin d3 and k2, magnesium are very important to healing the break.
Neuro highlighted that walking, heated water exercises are excellent for rehab while with a fracture. And, that if in pain to move/walk for a couple of mins before resting because he said the muscles cease up and cause a lot of pain.
Just want to say, the person I know has almost entirely lost 2 of their vertebrae due to an accident. And, they're going from being in a wheelchair AND with RLS. The neuro has made sure their iron levels are optimal while also in treatment for their back.
Medical cannabis could also help with the pain like Jools mentioned.
Wish you a very speedy and hiccup-free recovery!
Have you printed off a poster from the rls-uk.org website and put one up in your local GP's surgery / library / community centre?
What’s going on ?!!!!!!!!
