I did six months of ADT, three months of Lupron and three of Orgovyx. Three months after stopping Orgovyx, my testosterone rose to 368, well below my pre-ADT level of 700 but enough to start to feel better, get nighttime erections and FINALLY have orgasms again.
My second testosterone test three months later, though, showed a drop to 320 so I was kind of crushed but my doctor said not to give up hope yet.
My third test that I just got back today shows another drop to 260.
ALL of the tests were taken between 8-8:30 AM at the same lab.
I *really* did not want to take ADT because I was afraid of this exact thing, but was told that, being younger and in good shape, the odds of me not recovering my testosterone were "very low."
He did a bunch of tests of my other hormones and my estrogen was also low, my sex binding hormone was high-normal, but my FSH hormone was so high it's past the maximum on the graph on the portal. The doctor says this is a "good sign" that my pituitary gland is signaling me to make testosterone but I'm starting to think he's a liar--why would my T be dropping nine months after stopping ADT instead of rising or at least staying the same?
More importantly, how long should I wait before I take supplemental testosterone? My primary treatment was radiation and my PSA has been undetectable for six months.
Curious about Radiation Therapy Types
Prostate Cancer Status
A Mixed Result
