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Experiences with
Primary biliary cholangitis (PBC)
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A lot of stuff going on. Qs.
We found out partner had hemochromatosis and fibrosis from that. Fibroscan was 25 to 32 in some places. Bloods were Ferritin 2000plus 150, ALT 114 and others also out such as platelets low at 70ish. However after monthly Blood letting and not drinking and eating healthy eating for nearly a year his
We found out partner had hemochromatosis and fibrosis from that. Fibroscan was 25 to 32 in some places. Bloods were Ferritin 2000plus 150, ALT 114 and others also out such as platelets low at 70ish. However after monthly Blood letting and not drinking and eating healthy eating for nearly a year his
ARM8
in
British Liver Trust
4 days ago
Fibroscan 14.2. No cirrhosis
Hi I hope this finds you all well and thanks for clicking on my post For context: -I'm 49 -Female -Afro-Carribean descent - I've mostly watched the amount of saturated fat I consume but can't say the same for simple carbs -I drank mostly in my 20s at the weekend and rarely drink now -I'm 5.5" and about
Hi I hope this finds you all well and thanks for clicking on my post For context: -I'm 49 -Female -Afro-Carribean descent - I've mostly watched the amount of saturated fat I consume but can't say the same for simple carbs -I drank mostly in my 20s at the weekend and rarely drink now -I'm 5.5" and about
UB40fan-yay
in
British Liver Trust
4 days ago
Recently diagnosed with Liver disease.
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
KellyNASH
in
British Liver Trust
7 days ago
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Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
7 days ago
fibroscan
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
Darcyprincess
in
British Liver Trust
7 days ago
Help with diet
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
Breakfastbabe
in
British Liver Trust
13 days ago
stent
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Grannysmiff
in
British Liver Trust
16 days ago
Lumps, bumps & hernias
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
tonicwater
in
British Liver Trust
1 month ago
Fibroscan results - can someone help please?
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
SueDenim100
in
British Liver Trust
1 month ago
F3 Fibrosis Regression
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
Smif56
in
British Liver Trust
1 month ago
care options for H.E and decompensated cirrhosis
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Concerneddaughter33
in
British Liver Trust
2 months ago
A medical professionals responsibility
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
PeterSmith1998
in
British Liver Trust
2 months ago
Child Pugh A5 UKELD 46
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
Bucket13
in
British Liver Trust
2 months ago
NMN supplement help cirrhosis?
Hi, I have been diagnosed with decompensated cirrhosis in June 23, now in a compensated state with bloods improving every time. I have been abstinent since diagnosis. I do a lot of physical exercise and have been told it’s safe for me to take whey protein. I am very conscious of what I take and have
Hi, I have been diagnosed with decompensated cirrhosis in June 23, now in a compensated state with bloods improving every time. I have been abstinent since diagnosis. I do a lot of physical exercise and have been told it’s safe for me to take whey protein. I am very conscious of what I take and have
DaveQ67
in
British Liver Trust
2 months ago
Diagnosed with Non Alcohol Cirrhosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Dogmom1968
in
British Liver Trust
3 months ago
Diet suitable for NAFLD cirrhosis and type 2 diabetics.
Hi, I have been diagnosed with cirrhosis through NAFLD. I have no idea what diet or where to find a diet suitable to follow. Being type 2 doesn't help either. Need carbs for liver, carbs no good for diabetics. Fats such as butter bad for my liver, what should I spread on bread? etc. What should I eat
Hi, I have been diagnosed with cirrhosis through NAFLD. I have no idea what diet or where to find a diet suitable to follow. Being type 2 doesn't help either. Need carbs for liver, carbs no good for diabetics. Fats such as butter bad for my liver, what should I spread on bread? etc. What should I eat
Gyproc
in
British Liver Trust
3 months ago
insurance issues……
hello, I’ve been lurking on the site for around 7 months, since my OH was hospitalised in August and we found he had liver cirrhosis. It’s been a challenging few months and he’s been medically retired from work now. We are trying to live life as fully as we can, within his limitations, as many
hello, I’ve been lurking on the site for around 7 months, since my OH was hospitalised in August and we found he had liver cirrhosis. It’s been a challenging few months and he’s been medically retired from work now. We are trying to live life as fully as we can, within his limitations, as many
Poppy1908
in
British Liver Trust
3 months ago
G P telephone consultation
My GP rang to review my blood tests. All were normal apart from an elevated GGT. It has been elevated for a long time which is why I was referred for a Fibroscan and this scan showed Cirrhosis (17kpa). As I have mentioned previously this was alarming news as I had never drank and had a lower BMi.
My GP rang to review my blood tests. All were normal apart from an elevated GGT. It has been elevated for a long time which is why I was referred for a Fibroscan and this scan showed Cirrhosis (17kpa). As I have mentioned previously this was alarming news as I had never drank and had a lower BMi.
0range5520
in
British Liver Trust
3 months ago
Cirrhosis Reversal Question
I had HCV and was successfully treated and have been HCV free for around 8 years. At that time I was diagnosed with Cirrhosis , platelets around 64 000 , enlarged spleen , fibroscan at 22.1. I have been checked routinely by very good hospitals. My last 3 fibroscans have improved each time .first
I had HCV and was successfully treated and have been HCV free for around 8 years. At that time I was diagnosed with Cirrhosis , platelets around 64 000 , enlarged spleen , fibroscan at 22.1. I have been checked routinely by very good hospitals. My last 3 fibroscans have improved each time .first
searelax
in
British Liver Trust
3 months ago
Is it fair to keep cirrhosis a secret from family?
Hi, I just learned a parent has stage 4 liver cirrhosis. Some family has known for a year that tests were borderline and this was a possibility. This parent has been sober for over one year and is walking 1-2 miles a day. We’re told it’s compensated stage 4 and he could have anywhere from one year to
Hi, I just learned a parent has stage 4 liver cirrhosis. Some family has known for a year that tests were borderline and this was a possibility. This parent has been sober for over one year and is walking 1-2 miles a day. We’re told it’s compensated stage 4 and he could have anywhere from one year to
Dreamleaver
in
British Liver Trust
3 months ago
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