Posts - Pelvic Radiation Disease Association | HealthUnlocked

Pelvic Radiation Disease Association

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new here

hi, I’m new to the group, I’ve recently been told I have proctitis due to the radiation from my cervical cancer, I’m feeling quite alone as I’ve just been...

hi, I’m new to the group, I’ve recently been told I have proctitis due to the ...

Lovebuglamb

•4 days ago

9 Replies

Benefits / PIP Resources

I am sure you have seen these subjects in the news so wont go there. I am currently on Group ESA (no sick notes required) to be reviewed in December 25 and...

I am sure you have seen these subjects in the news so wont go there. I am curr...

divvykev

•10 days ago

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bleeding

can anyone help with a little advice? I am 7 1/2 years post surgery, chemo and pelvic radiation. I have suddenly developed some bleeding which may be PV. I...

can anyone help with a little advice? I am 7 1/2 years post surgery, chemo and ...

Msdoubtfire

•10 days ago

4 Replies

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Hello from a PC patient

Good morning, I just thought I would introduce myself. I'm Phil, I'm 58 ad live in Gods country, otherwise known as Bonnie Scotland. I discovered I had...

Good morning, I just thought I would introduce myself. I'm Phil, I'm 58 ad live...

WeeFella

•11 days ago

3 Replies

Have Your Say - Survey

Hello We’re looking at ways to provide more information and support around continence—this could be through website resources or a guest speaker in our Chat...

Hello We’re looking at ways to provide more information and support around cont...

Maria_PRDA

Partner•12 days ago

5 Replies

New (UK) Guidance for gastrointestinal consequences of cancer treatment

Hello all, Just to share that new guidance has been published by the British Society of Gastroenterology to help healthcare teams improve care and symptom...

Hello all, Just to share that new guidance has been published by the British S...

Sarah_PRDA

Partner•19 days ago

12 Replies

Hyperbaric Oxygen Therapy for Radiation Enteritis

Has anyone been treated for radiation enteritis with hyperbaric oxygen therapy? If so, how successful was the treatment, how difficult was the treatment, and...

Has anyone been treated for radiation enteritis with hyperbaric oxygen therapy? ...

Penguin52

•20 days ago

17 Replies

Opportunity to Contribute to Research – The Dietrich Study

Hello everybody, Researchers from Manchester and Aberdeen are conducting The Dietrich Study and are looking for men with lived experience of prostate...

Hello everybody, Researchers from Manchester and Aberdeen are conducting The Di...

Maria_PRDA

Partner•20 days ago

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clinics

hi everyone……I know you’re based in the UK but does anyone know of any late term effects clinics in the USA. You all seem to be much more advanced in radiation...

hi everyone……I know you’re based in the UK but does anyone know of any late term...

JuneyandGracie

•22 days ago

3 Replies

Small bowel blockages

In the last year I have had multiple ambulance trips because of vomiting resulting from multiple partial bowel bowel blockages. The last time the emergency...

In the last year I have had multiple ambulance trips because of vomiting resulti...

RESPIRATION

•27 days ago

23 Replies

Grecogirl

Morning everyone. I found out about Late Effects clinics on this forum so I contacted the Beatsons clinic here in Glasgow. Unfortunately the clinic will no...

Morning everyone. I found out about Late Effects clinics on this forum so I cont...

grecogirl

•27 days ago

16 Replies

Lymphoedema Awareness Week - radiotherapy and lymphoedema risk.

Hello everyone, It's currently Lymphoedema Awareness Week in the UK, and tomorrow is World Lymphoedema Day. We've put together information about...

Hello everyone, It's currently Lymphoedema Awareness Week in the UK, and tomor...

Sarah_PRDA

Partner•1 month ago

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new here

hi everyone, I’m new here and only just found out about the forum after being to referred to late effects clinic. I had cervical cancer, chemo/radio/brachy....

hi everyone, I’m new here and only just found out about the forum after being to...

TeeCatz

•1 month ago

12 Replies

Fecal incontinence

hi Everyone…..I had pelvic radiation, brachytherapy and chemo in 2005 for uterine cancer. I lost my bladder due to the radiation. I have an Indiana Pouch that...

hi Everyone…..I had pelvic radiation, brachytherapy and chemo in 2005 for uterin...

JuneyandGracie

•1 month ago

13 Replies

Pelvic, hip and thigh pain

I am 10 months post treatment for cervical cancer. I started with a radical hysterectomy and then 5 chemotherapy, 25 sessions of radiation and 2...

I am 10 months post treatment for cervical cancer. I started with a radical hyst...

Quinedel

•2 months ago

5 Replies

I've only just found this helpful group .....

I had radiotherapy and chemotherapy following surgery to remove an anal polyp, which had grown in size due to a long wait to see a cardiologist, but that is...

I had radiotherapy and chemotherapy following surgery to remove an anal polyp, ...

Dunandjam

•2 months ago

8 Replies

Hearing Loss

I just found out that 50% of the people who have had the platinum chemo drugs are much more likely to develop hearing loss. WOW, I had no idea. NIH in the...

I just found out that 50% of the people who have had the platinum chemo drugs ar...

JDKPA

•2 months ago

2 Replies

Radiation Proctitis with no symptoms

Hello, I had rectal cancer in December 2018 and was treated with radiotherapy which got rid of the cancer. A five year follow up on watch and wait showed no...

Hello, I had rectal cancer in December 2018 and was treated with radiotherapy w...

Jogey

•2 months ago

2 Replies

(OAB) Overactive Bladder CIPN Incontinence - Posterior Tibial Nerve Stimulaation (PTNS) or Sacral Neuromodulation

Chemo & RT in 2014 at MDAnderson, Texas. Past 5 years severe peripheral neuropathy from chemo, nerve damage, damage to pudental nerve and resulting Overactive...

Chemo & RT in 2014 at MDAnderson, Texas. Past 5 years severe peripheral neuropat...

USAPRDA

•2 months ago

2 Replies

New UK Late Effects Service

Hello everyone, I wanted to share the details of the new Macmillan Radiotherapy Late Effects Service, run by Oxford University Hospitals. The services is...

Hello everyone, I wanted to share the details of the new Macmillan Radiotherap...

Sarah_PRDA

Partner•2 months ago

10 Replies

MRI Scan yesterday

Hi All Firstly sending you all lots of good wishes and hope each day everyone sees a little more hope than the day before…. Speaking of hope I had what will...

Hi All Firstly sending you all lots of good wishes and hope each day everyone s...

Sunflower1976

•2 months ago

10 Replies

Issues after prostate cancer treatment...please help.

I had treatment for prostate cancer starting in 2019. 37 days of radiotherapy and 3 years Prostap 3 hormone injections (3 monthly). 2022 had terrible...

I had treatment for prostate cancer starting in 2019. 37 days of radiotherapy ...

RockStarXX

•2 months ago

5 Replies

The PRDA has called on the Government to integrate comprehensive, networked radiotherapy late effects services across all NHS regions.

A recent NHS England Public Consultation asked for views from both organisations and individuals on what should be included in a new 10 Year health Plan for...

A recent NHS England Public Consultation asked for views from both organisations...

Sarah_PRDA

Partner•3 months ago

13 Replies

There’s hope out there

I just wanted to share some information incase it is if any use to anyone at all. I thought I was abit of a lost cause having suffered for over a decade &...

I just wanted to share some information incase it is if any use to anyone at all...

Bluebell86

•3 months ago

20 Replies

alternative therapies

just interested if anyone has tried any alternative therapies and the outcome and benefits if any they have found .

just interested if anyone has tried any alternative therapies and the outcome an...

Lamados1954

•3 months ago

6 Replies

Anxiety attacks

Hello everyone just wanted to know if anyone post treatment has suffered anxiety attacks ? And if so how do you cope with this ? During my treatment I had a...

Hello everyone just wanted to know if anyone post treatment has suffered anxiety...

Lamados1954

•3 months ago

19 Replies

Crampy tummy and mucus/blood in stool 5 months after chemoradiation and branchytherapy for cervical cancer

I concluded chemotherapy and radiation therapy for cervical cancer in Mid May. But I first had a radical hysterectomy 6 weeks before the adjuvant treatment....

I concluded chemotherapy and radiation therapy for cervical cancer in Mid May. B...

Quinedel

•3 months ago

5 Replies

Late effects Rash

Hi , Just wondering if anyone had late effects rash . This had appeared where I had radiotherapy everyday for 39 sessions. For Anal Cancer two half years......

Hi , Just wondering if anyone had late effects rash . This had appeared where I ...

Newseason

•3 months ago

4 Replies

dilation procedure for radiation induced bowel narrowing/ obstruction ?

any experience to share? Thank you in advance

alysona828

•3 months ago

4 Replies

Severe radiation proctitis

Hi, I am new here. my 84 year old dad was diagnosed with prostate cancer (limited spread to hip bone and pelvic lymph nodes) in Nov 2023 and had radiation to...

Hi, I am new here. my 84 year old dad was diagnosed with prostate cancer (limit...

alysona828

•3 months ago

3 Replies

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Posts - Pelvic Radiation Disease Association | HealthUnlocked

Pelvic Radiation Disease Association

new here

Benefits / PIP Resources

bleeding

Hello from a PC patient

Have Your Say - Survey

New (UK) Guidance for gastrointestinal consequences of cancer treatment

Hyperbaric Oxygen Therapy for Radiation Enteritis

Opportunity to Contribute to Research – The Dietrich Study

clinics

Small bowel blockages

Grecogirl

Lymphoedema Awareness Week - radiotherapy and lymphoedema risk.

new here

Fecal incontinence

Pelvic, hip and thigh pain

I've only just found this helpful group .....

Hearing Loss

Radiation Proctitis with no symptoms

(OAB) Overactive Bladder CIPN Incontinence - Posterior Tibial Nerve Stimulaation (PTNS) or Sacral Neuromodulation

New UK Late Effects Service

MRI Scan yesterday

Issues after prostate cancer treatment...please help.

The PRDA has called on the Government to integrate comprehensive, networked radiotherapy late effects services across all NHS regions.

There’s hope out there

alternative therapies

Anxiety attacks

Crampy tummy and mucus/blood in stool 5 months after chemoradiation and branchytherapy for cervical cancer

Late effects Rash

dilation procedure for radiation induced bowel narrowing/ obstruction ?

Severe radiation proctitis

Search posts

Pinned Posts

Latest poll

When it comes to incontinence, what information would be most helpful to you?

Topics

Archive