Posts - Pelvic Radiation Disease Association | HealthUnlocked

Pelvic Radiation Disease Association

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Issues after prostate cancer treatment...please help.

I had treatment for prostate cancer starting in 2019. 37 days of radiotherapy and 3 years Prostap 3 hormone injections (3 monthly). 2022 had terrible...

I had treatment for prostate cancer starting in 2019. 37 days of radiotherapy ...

•7 days ago

The PRDA has called on the Government to integrate comprehensive, networked radiotherapy late effects services across all NHS regions.

A recent NHS England Public Consultation asked for views from both organisations and individuals on what should be included in a new 10 Year health Plan for...

A recent NHS England Public Consultation asked for views from both organisations...

Partner•15 days ago

There’s hope out there

I just wanted to share some information incase it is if any use to anyone at all. I thought I was abit of a lost cause having suffered for over a decade &...

I just wanted to share some information incase it is if any use to anyone at all...

•24 days ago

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alternative therapies

just interested if anyone has tried any alternative therapies and the outcome and benefits if any they have found .

just interested if anyone has tried any alternative therapies and the outcome an...

•29 days ago

Anxiety attacks

Hello everyone just wanted to know if anyone post treatment has suffered anxiety attacks ? And if so how do you cope with this ? During my treatment I had a...

Hello everyone just wanted to know if anyone post treatment has suffered anxiety...

•30 days ago

Crampy tummy and mucus/blood in stool 5 months after chemoradiation and branchytherapy for cervical cancer

I concluded chemotherapy and radiation therapy for cervical cancer in Mid May. But I first had a radical hysterectomy 6 weeks before the adjuvant treatment....

I concluded chemotherapy and radiation therapy for cervical cancer in Mid May. B...

•1 month ago

Late effects Rash

Hi , Just wondering if anyone had late effects rash . This had appeared where I had radiotherapy everyday for 39 sessions. For Anal Cancer two half years......

Hi , Just wondering if anyone had late effects rash . This had appeared where I ...

•1 month ago

dilation procedure for radiation induced bowel narrowing/ obstruction ?

any experience to share? Thank you in advance

any experience to share? Thank you in advance

•1 month ago

Severe radiation proctitis

Hi, I am new here. my 84 year old dad was diagnosed with prostate cancer (limited spread to hip bone and pelvic lymph nodes) in Nov 2023 and had radiation to...

Hi, I am new here. my 84 year old dad was diagnosed with prostate cancer (limit...

•1 month ago

hello I am new to this group

I am so glad I found this group it had been a real eye opener on how radiation therapy had caused so many complications that doctors do not tell you about and...

I am so glad I found this group it had been a real eye opener on how radiation t...

•1 month ago

Hello I am new to this group

since joining this group it has been an absolute eye opener . I have long term complications from pelvic radiation and reading on here others experienced it’s...

since joining this group it has been an absolute eye opener . I have long term c...

•1 month ago

romain

I have been asking several times when is next week‘a chat. No answer. Please let me know. Thanks, Romain, France

I have been asking several times when is next week‘a chat. No answer. Please let...

•1 month ago

Chat next week.

Please let everyone know about the chat next week. I can never find when it is. Time and date? Thanks. Romain

Please let everyone know about the chat next week. I can never find when it is. ...

•2 months ago

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Bone Scan

Hi Folks, I had pelvic radiotherapy in 2019 in Scotland. Piece by piece working through things now. Will join chat together next week.I'm 45 now had 5 weeks...

Hi Folks, I had pelvic radiotherapy in 2019 in Scotland. Piece by piece working...

•2 months ago

Nothing works..

Just a bit fed up.as my whole bowel doesn't work from lips to anus. I have oral thrush at the moment and I have waves of mouth ulcers. They run across my...

Just a bit fed up.as my whole bowel doesn't work from lips to anus. I have oral ...

•2 months ago

Glasgow PRDA advocacy

Hi There, are there any Glasgow based advocacy contacts for medical/emotional/family support? I'm currently tied in with Maggies who have been amazing trying...

Hi There, are there any Glasgow based advocacy contacts for medical/emotional/f...

•2 months ago

Severe B12 deficiency

Went for regular blood test few weeks ago and found out this week I have a severe B12 deficiency Now have to have 6 injections every other day for 2 weeks to...

Went for regular blood test few weeks ago and found out this week I have a sever...

•2 months ago

Another Question 🙋🏼‍♀️

Hi All What is everyone eating?? I can’t eat food with any type of sauce since treatment finished over a year ago. My appetite is so low it’s scary some days!...

Hi All What is everyone eating?? I can’t eat food with any type of sauce since ...

•2 months ago

Pelvic Assessment

Hi Everyone Just wondering if anyone knows what’s involved in a pelvic assessment?? Thanks ☺️

Hi Everyone Just wondering if anyone knows what’s involved in a pelvic assessm...

•2 months ago

diarrhoea characteristics

hi. I’m wondering if anyone else has this type of diarrhoea. I might start off with a semi formed BM because I’ve taken something to slow transit time and add...

hi. I’m wondering if anyone else has this type of diarrhoea. I might start off ...

•3 months ago

Radiation Induced Lumbar Plexopathy

I have had Radiation induced lumbar plexopathy (RILP) for 50 years ever since I received pelvic radiation after a pollop removal. At the time it was suggested...

I have had Radiation induced lumbar plexopathy (RILP) for 50 years ever since I ...

•3 months ago

Miasnan

radiation and chemo thirteen years ago for anal cancer, never completely recovered . Vagina and rectum permanently damaged

radiation and chemo thirteen years ago for anal cancer, never completely recove...

•3 months ago

Isaacs Syndrome

Has anyone heard of this? It can be triggered by radiotherapy.

Has anyone heard of this? It can be triggered by radiotherapy.

•4 months ago

Carnivore?

Sometime ago there was a post from someone who spoke about having become a carnivore. At the time I had no personal interest as my diet seemed to be working...

Sometime ago there was a post from someone who spoke about having become a carni...

•4 months ago

grecogirl

Hi everyone. I’m so glad that I learned of PRDA as I have just been getting along with things by myself. I had colorectal cancer 12 years ago with weeks of...

Hi everyone. I’m so glad that I learned of PRDA as I have just been getting alon...

•4 months ago

Radiation induced atherosclerosis?

Just found out radiation can introduce atherosclerosis so now I have another problem to confront. I have historically low total cholesterol and LDL levels so...

Just found out radiation can introduce atherosclerosis so now I have another pro...

•4 months ago

Anal/Rectal probs

Had endometrial cancer 13yrs ago..had 28 radiotherapy & 2 brachytherapy treatments. Have since been diagnosed with prd & bam. Last couple of years had thrombin...

Had endometrial cancer 13yrs ago..had 28 radiotherapy & 2 brachytherapy treatmen...

•4 months ago

Mental Health & PRD

Hi All I’m early days into all this finished treatment in Sept 2023 for stage 2 cervical cancer. I had 28 external radiation, 3 rounds of Chemo (too sick for...

Hi All I’m early days into all this finished treatment in Sept 2023 for stage 2...

•4 months ago

pelvic and lower back pain

hi, I am new here. I had stage 3 cervical cancer and finished treatment in February 2023. I had radiotherapy, chemotherapy and brachytherapy. afew days ago...

hi, I am new here. I had stage 3 cervical cancer and finished treatment in Feb...

•4 months ago

Sibo/abdominal pain

Hi everyone. I'm almost 5 years out from chemorad/brachytherapy for early stage cervical cancer and have been experiencing frequent bouts of bowel/lower abdo...

Hi everyone. I'm almost 5 years out from chemorad/brachytherapy for early stag...

•4 months ago

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