Posts - Pelvic Radiation Disease Association | HealthUnlocked

Pelvic Radiation Disease Association

693 members•362 posts

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diarrhoea characteristics

hi. I’m wondering if anyone else has this type of diarrhoea. I might start off with a semi formed BM because I’ve taken something to slow transit time and add...

hi. I’m wondering if anyone else has this type of diarrhoea. I might start off ...

TheBencher

•16 days ago

24 Replies

Radiation Induced Lumbar Plexopathy

I have had Radiation induced lumbar plexopathy (RILP) for 50 years ever since I received pelvic radiation after a pollop removal. At the time it was suggested...

I have had Radiation induced lumbar plexopathy (RILP) for 50 years ever since I ...

twentyMorville

•19 days ago

2 Replies

Miasnan

radiation and chemo thirteen years ago for anal cancer, never completely recovered . Vagina and rectum permanently damaged

radiation and chemo thirteen years ago for anal cancer, never completely recove...

Miasnan

•1 month ago

3 Replies

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Isaacs Syndrome

Has anyone heard of this? It can be triggered by radiotherapy.

Ohthistoo

•1 month ago

1 Reply

Carnivore?

Sometime ago there was a post from someone who spoke about having become a carnivore. At the time I had no personal interest as my diet seemed to be working...

Sometime ago there was a post from someone who spoke about having become a carni...

RESPIRATION

•1 month ago

7 Replies

grecogirl

Hi everyone. I’m so glad that I learned of PRDA as I have just been getting along with things by myself. I had colorectal cancer 12 years ago with weeks of...

Hi everyone. I’m so glad that I learned of PRDA as I have just been getting alon...

grecogirl

•2 months ago

6 Replies

Radiation induced atherosclerosis?

Just found out radiation can introduce atherosclerosis so now I have another problem to confront. I have historically low total cholesterol and LDL levels so...

Just found out radiation can introduce atherosclerosis so now I have another pro...

Gtuva

•2 months ago

5 Replies

Anal/Rectal probs

Had endometrial cancer 13yrs ago..had 28 radiotherapy & 2 brachytherapy treatments. Have since been diagnosed with prd & bam. Last couple of years had thrombin...

Had endometrial cancer 13yrs ago..had 28 radiotherapy & 2 brachytherapy treatmen...

paupet

•2 months ago

2 Replies

Mental Health & PRD

Hi All I’m early days into all this finished treatment in Sept 2023 for stage 2 cervical cancer. I had 28 external radiation, 3 rounds of Chemo (too sick for...

Hi All I’m early days into all this finished treatment in Sept 2023 for stage 2...

Sunflower1976

•2 months ago

12 Replies

pelvic and lower back pain

hi, I am new here. I had stage 3 cervical cancer and finished treatment in February 2023. I had radiotherapy, chemotherapy and brachytherapy. afew days ago...

hi, I am new here. I had stage 3 cervical cancer and finished treatment in Feb...

Bridget8

•2 months ago

4 Replies

Sibo/abdominal pain

Hi everyone. I'm almost 5 years out from chemorad/brachytherapy for early stage cervical cancer and have been experiencing frequent bouts of bowel/lower abdo...

Hi everyone. I'm almost 5 years out from chemorad/brachytherapy for early stag...

Ladyparts

•2 months ago

4 Replies

peristeen Anal Plugs

I have Ben using these with great success but only have a few left and understand that these aren’t being made anymore I contacted Peristeen in April and...

I have Ben using these with great success but only have a few left and understan...

janfarrugia

•3 months ago

4 Replies

Employment

good afternoon. I had brachytherpay and pelvic radiotherapy 7 years ago and I now have erratic and complicated bowel problems as well as pain in the pelvis. I...

good afternoon. I had brachytherpay and pelvic radiotherapy 7 years ago and I n...

Msdoubtfire

•3 months ago

12 Replies

recurring UTI

I am 6 years remission from stage 2 cervical cancer. Had chemo brachy and radio. I have PRD - bile acid malabsorption however recently I have had recurring...

I am 6 years remission from stage 2 cervical cancer. Had chemo brachy and radio....

NJ85

•4 months ago

11 Replies

Awaiting Diagnosis for PID and tips or help gravely appreciated

Hi Everyone I was treated in July of last year for cervical cancer stage 2. I received 28 x external radiation, 3 x Chemo (should have been 6 but made me too...

Hi Everyone I was treated in July of last year for cervical cancer stage 2. I re...

Sunflower1976

•4 months ago

5 Replies

Recent changes

I had radiotherapy and brachytherapy 15 years ago for an endometrial cancer that had metastasized to the pelvic space. I had bowel symptoms almost from the...

I had radiotherapy and brachytherapy 15 years ago for an endometrial cancer that...

RESPIRATION

•4 months ago

18 Replies

UK Late Effects Services

Hello everyone, I thought it may be helpful to pop this post up for quick reference to UK Late Effects Services....

Hello everyone, I thought it may be helpful to pop this post up for quick refe...

Sarah_PRDA

Partner•4 months ago

4 Replies

Bad flareup :(

Hiya everyone; Yesterday I had the worst flareup I've ever had :(. I had friends round for the weekend and I took about 6 Loperamide so I could eat...

Hiya everyone; Yesterday I had the worst flareup I've ever had :(. I had friend...

RoseTyler

•4 months ago

5 Replies

late effects Bristol

does anybody know if Zoe is still part of the team only not getting any response to emails thanks ☺️

does anybody know if Zoe is still part of the team only not getting any response...

Silver1-lady

•4 months ago

7 Replies

Participants wanted in the North East & Cumbria (UK)

The Northern Radiotherapy Network is hosting a focus group on the late effects of pelvic radiotherapy....

The Northern Radiotherapy Network is hosting a focus group on the late effects o...

Sarah_PRDA

Partner•4 months ago

Be the first to reply

New Member

hi there. I have just joined this group in the hope of finding some support. I was treated for cervical adenocarcinoma seven years ago and this included...

hi there. I have just joined this group in the hope of finding some support. I...

Msdoubtfire

•4 months ago

12 Replies

PT and Biofeedback

hi everyone…….has anyone gotten substantial improvement from PT and biofeedback? I had CA 20 yrs ago and now having lots of GI problems. My GI specialist would...

hi everyone…….has anyone gotten substantial improvement from PT and biofeedback?...

JuneyandGracie

•5 months ago

8 Replies

Why ???

My oncologist here in the U.S. is the smartest person I have ever met. He is kind and caring and just generally perfect. I saw him last week for a...

My oncologist here in the U.S. is the smartest person I have ever met. He is kin...

JDKPA

•5 months ago

14 Replies

food constantly on my mind

Hi Everyone Just wondering if anyone, With PRD Are always thinking about food, from first thing in the morning, then until I’ve had my last meal before 6pm...

Hi Everyone Just wondering if anyone, With PRD Are always thinking about food...

Blue_Hawaii

•5 months ago

7 Replies

what kind of specialist do I need? Likely PRD after pelvic radiotherapy!

finished chemoradiotherapy 7 weeks ago (for vaginal cancer). Developed severe pain in the bowel/rectum, which feels a bit like labour pain/period pain in the...

finished chemoradiotherapy 7 weeks ago (for vaginal cancer). Developed severe pa...

AngieW1966

•5 months ago

9 Replies

Research opportunity: Health Data Management research

Hello everyone 😊 Do you have a spare 15-20 minutes to complete this survey? 🕒✨ Help researchers at the University of Oxford understand how patients and...

Hello everyone 😊 Do you have a spare 15-20 minutes to complete this survey? 🕒...

Sarah_PRDA

Partner•5 months ago

2 Replies

Putting it out their

Hi everyone, Feeling a little fed up I had vulva cancer in 2010, had surgery to remove the tumour and a high dose of radiation treatment on the front but it...

Hi everyone, Feeling a little fed up I had vulva cancer in 2010, had surgery to ...

Lovemycats79

•5 months ago

1 Reply

Could sciatica be another symptom of PRD?

I have had various bowel and bladder problems following radiation treatment and for the last year or so have also suffered with sciatica. Has this happened to...

I have had various bowel and bladder problems following radiation treatment and ...

Maz131

•5 months ago

2 Replies

new member

Hi Everyone……I just joined and would like to introduce myself. My name is Kate, 67 yr old female. In 2005 I was diagnosed with Stage III Uterine Cancer. I had...

Hi Everyone……I just joined and would like to introduce myself. My name is Kate, ...

JuneyandGracie

•5 months ago

25 Replies

Anaemia caused by PRD?

I had pelvic/abdominal radiotherapy treatment almost 50 years ago and started to suffer problems with digestion about 20 years ago, put down at the time, to...

I had pelvic/abdominal radiotherapy treatment almost 50 years ago and started to...

David39

•6 months ago

4 Replies

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Bowel/Stomach/Diet (14)

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Posts - Pelvic Radiation Disease Association | HealthUnlocked

Pelvic Radiation Disease Association

diarrhoea characteristics

Radiation Induced Lumbar Plexopathy

Miasnan

Isaacs Syndrome

Carnivore?

grecogirl

Radiation induced atherosclerosis?

Anal/Rectal probs

Mental Health & PRD

pelvic and lower back pain

Sibo/abdominal pain

peristeen Anal Plugs

Employment

recurring UTI

Awaiting Diagnosis for PID and tips or help gravely appreciated

Recent changes

UK Late Effects Services

Bad flareup :(

late effects Bristol

Participants wanted in the North East & Cumbria (UK)

New Member

PT and Biofeedback

Why ???

food constantly on my mind

what kind of specialist do I need? Likely PRD after pelvic radiotherapy!

Research opportunity: Health Data Management research

Putting it out their

Could sciatica be another symptom of PRD?

new member

Anaemia caused by PRD?

Search posts

Pinned Posts

Latest poll

Which aspects of pain management would you find most beneficial to find out about, at our upcoming annual conference?

Topics

Archive