Firstly sending you all lots of good wishes and hope each day everyone sees a little more hope than the day before….
Speaking of hope I had what will hopefully be my last MRI yesterday in Nov my Oncologist said that there would be no need for additional MRI’s once this scan stays clear.
So I’ve just discovered severe anxiety, nerves and excitement are not a great mix.
So not sure this post is even suitable for this forum but I’m guess I’m just asking you to keep me in your thoughts.
Thanks ☺️ as Always xxxx
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Sunflower1976
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Thanks Jilly all done now and the results were EXCELLENT. I’m completely overwhelmed at the GOOD news LOL 😝 Side effects still horrendous but sure we all know that. Hope you’re doing ok Jilly and Thanks for your love wishes xxx
that’s good news Sunflower your feelings are understandable I hate MRI’s the thought of having another one would put me into a panic but necessary to have the all clear . I saw my oncologist this week to have the results of my CT scan . My tumour was inoperable but been blasted with radiotherapy 6 months ago they considered removing my bladder but she says it is stable and dormant has not grown but I don’t know why but I just find it hard to believe her this is partly due to her acting very shifty as I had a friend with me and she seemed concerned on who she was and asked me questions about her when she wasn’t in the room it’s puzzled both of us since . Also I suppose I’m finding it hard to believe as I still have days when I feel so ill but put this down to the long term effects of radiotherapy plus anxiety . Good luck for your MRI and let us know how you are doing ❤️
Great to hear from you!!! I get it sometimes the Good News is hard to take in. My MRI is all done and my results are CLEAR!! No residual cancer. I haven’t stopped crying and I can’t quite get my head around it so I completely understand your situation.
Not sure why your oncologist would be acting this way if you just brought someone for support that would seem perfectly normal to me.
So here I was assigned an oncologist but there were 3 in the cancer centre I attended so on the day you would see either one (all amazing I have to say) if you feel unsure about your consultation could you call and ask for someone else to review your CT scan? Just to put your mind at ease.
Or do you think like me and just can’t get your head around positive good news because “Stable and Doormat” are really great words to hear 🙌🏼 I also think with the cancer road we (well me) remain in fight or flight mode and it’s hard to step outside of that feeling.
I’m delighted that your results are positive and things are moving in the right direction maybe just take that in.
Keep strong the battle with the mind is so tough sometimes.
Terrific news. I have had clean scans for 13 years, yet I still worry all the time. And I have not felt really good for 15 years! So many side effects of chemo and radiation, especially peripheral neuropathy which started exactly 5 hours after my first chemo treatment. But I am still here despite my "expiration date" having been reached in 2013!!
That’s very inspirational Thank you for sharing your story and congratulations on a whopping 13 years of clean scans!! That makes you a bit of a warrior in my eyes. Thankfully I have not succumb to peripheral neuropathy as all my side effects are bowel/bladder (and also my headspace) related from chemo but mostly the radiation as I had 28 external and then I had brachytherapy. On top of all that I’m now in full blown menopause…. So all in all good days bad days and some really not good days like most people on here. I take inspiration from stories like yours as it gives me such hope to those scans staying clear. I’ve had two appointments now form the aftercare team for a pelvic assessment which is great as I feel like this amazing Doctor is really going to help she has such empathy and understands the level of my anxiety so I am really grateful for her and keeping my fingers and toes crossed that we can make some progress.
Thank you for taking the time to respond so kindly to my post. I can’t imagine what peripheral neuropathy feels like but I’m pretty sure it’s not great. I do wish you continued good clean scans keep surpassing that “Expiration Date” like the warrior you are. 💪🏼
Neuropathy feels like....nothing! LOL I can feel almost nothing in my feet or hands. Bt sometimes my feet hurt. There are different types of nerves and that is why I can feel pain. I think that is the explanation. I was mending a 3 inch seam on a robe last night and it took me over an hour to do it (by hand). Before, it would have been a 5 minute job! Frustrating but not life-threatening.
My Aunt went through Breast cancer and has exactly the same thing although it makes her quite unsteady on her feet so she is meant to use her walker but she’s a very stubborn determined woman so does not always do what she’s supposed to do LOL!
It would take me an hour to mend any type of seam by hand but that’s nothing to do with Neuropathy. Thats just because I was never great at sewing Thank Goodness my Mum is.
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6 Months on and we’re making some progress 🌞🌞
Sex with stenosis 
Chemorads/Brachytherapy late side effects 
Cramps! :(
