Posts - Pelvic Radiation Disease Association | HealthUnlocked

Pelvic Radiation Disease Association

675 members • 356 posts

All posts for September 2023

A ray of sunshine 🌞

Following a NHS health check with a nurse at my local surgery I have a face to face appointment with a locum next Tuesday to discuss a referral with the PRD...

Following a NHS health check with a nurse at my local surgery I have a face to f...

•1 year ago

Feel like just giving up on any help from GP'S

After 25yrs of having to fight for any help & to be made feel grateful for the smallest thing, I just can't fight anymore. The last time I saw a GP was in...

After 25yrs of having to fight for any help & to be made feel grateful for the s...

•1 year ago

A bit frightened

I went to AnE Friday through the night because I had blood after bowel movement and the pain in my poor bottom was really bad. The doctor was so lovely and I...

I went to AnE Friday through the night because I had blood after bowel movement ...

•1 year ago

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Is it possible to gain control over bowels

Since liquid Loperamide has been stopped I am struggling to get some control of this diarrhoea. The instants work fast to stop bowel movements so been good for...

Since liquid Loperamide has been stopped I am struggling to get some control of ...

•1 year ago

Bit of a Laugh for Today

Firstly let me tell those who don't already know, that Radiographers are NOT permitted to talk to you about anything they may or may not see on a Scan. They...

Firstly let me tell those who don't already know, that Radiographers are NOT per...

•1 year ago

New to this group

I had anal cancer and was treated with the Nigro protocol. I am 22 months out of chemo-radiation treatment but have chronic symptoms from the treatment. I am...

I had anal cancer and was treated with the Nigro protocol. I am 22 months out of...

•1 year ago

Has anyone developed Lichen Sclerosus after pelvic radiotherapy?

I was recently diagnosed with Lichen Sclerosus in the genital area. I had chemoradiotherapy 14 years ago for SCC rectum. The cause of LS is not known though...

I was recently diagnosed with Lichen Sclerosus in the genital area. I had chemor...

•1 year ago

is this likely to be late radiation damage? Blood in urine.

I’ve been scouring the internet for advice in my specific circs and finally found this page 🤞 I was treated with chemoradiation and brachytherapy 9 years ago...

I’ve been scouring the internet for advice in my specific circs and finally foun...

•1 year ago

To my new Friends in PRDA.......

To those who are suffering, in pain & at their wits end with having to fight for even the smallest things. Just remember........

To those who are suffering, in pain & at their wits end with having to fight for...

•1 year ago

Hi Everyone, I'm new to this but so glad I found it. Thought I'd introduce myself....no point in holding back!

Hi, This October 2023, will mark the 25th 'Anniversary' of when, at the age of 26, I was wheeled into Theatre for an Operation that lasted 7hrs. I had 8...

Hi, This October 2023, will mark the 25th 'Anniversary' of when, at the age of ...

•1 year ago

missed online chats

been so busy the last couple of months trying to sort care for my 93 year old mum and two sons with mental health I have neglected me and have really missed...

been so busy the last couple of months trying to sort care for my 93 year old mu...

•1 year ago

Why are late effects services so thin on the ground and little known?

I help to run an online support group for people living with anal cancer. As we all have had pelvic radiotherapy, late effects of treatment are a frequent...

I help to run an online support group for people living with anal cancer. As we...

•1 year ago

How can I get a PRD diagnosis when my GP is useless

Had stage 2 anal cancer in 2015. Treatment was 6 wkeeks chemoradiotherapy. NED since. However I have all the symptoms and more mentioned on this site. I am...

Had stage 2 anal cancer in 2015. Treatment was 6 wkeeks chemoradiotherapy. NED s...

•1 year ago

Hawaii

Hello everyone Haven’t posted for a long time I’ve had 2 x GP appointment cancelled in the last two weeks, unfortunately both GP are off sick I don’t know...

Hello everyone Haven’t posted for a long time I’ve had 2 x GP appointment ca...

•1 year ago

Looking for answers

Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 weeks in October 21 and APR with permanent colostomy on December 21. Thankfully am...

Diagnosed with stage 3b Rectal Cancer in July 21. Chemo / Radiotherapy for 5 wee...

•1 year ago

impossible decision to make

I’m a 41 yr. Survivor of cervical cancer suffering from Radiation proctitis and a colon stricture. I have been told that a “tricky and risky” colostomy and...

I’m a 41 yr. Survivor of cervical cancer suffering from Radiation proctitis and ...

•1 year ago

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