When it comes to incontinence, what i... - Pelvic Radiation ...
When it comes to incontinence, what information would be most helpful to you?
We’re creating resources for people living with incontinence and would love to hear about your experiences.
Please select all that apply:
I’ve just been refused attendance allowance because incontinence is not a 24 hour problem, if I knew when my “urgency” was going to strike I’d be out and about!
I know there is no help. Cost of pads, extra loo roll and keeping to a diet that doesn’t make it worse adds up. I worry about not being able to afford my car in retirement as using the bus is challenging. Even now things have got better after a bile acid malabsorption diagnosis its still a lot of planning to go anywhere.
Yes I’ve recently applied for Personal independence in the hope I can help with these additional purchases and homeopathic treatments which cost a bomb but also told I’m not unwell “most of the time” & it was rejected. i’m not sure what incontinence products are available on an nhs prescription as I do have a medical exemption.
Sometimes I don't know when I'm going be incontinent. It just comes and I'm not aware of it.
Same here
Yes that’s definitely the hardest aspect- you don’t want to wear something every day if you don't need too.
I struggle to find suitable incontinence products as I’m a size 6, most stores only stock size 10 as their smallest size so end up having to use sanitary products as a substitute! The irony is I’m infertile from the radio so its a sad reminder buying sanitary products 😔
