The PRDA has called on the Government to integrate comprehensive, networked radiotherapy late effects services across all NHS regions.

[Sarah_PRDA]

A recent NHS England Public Consultation asked for views from both organisations and individuals on what should be included in a new 10 Year health Plan for England.

We have shared our response on our website if you would like to read them in full:

prda.org.uk/prda-response-n...

Best wishes

Sarah

[D_Cymro]

Excellent news! After much hard work, a long-awaited Late Effects Service is going live in my own area (Oxfordshire) next week. This will also serve patients who live in neighbouring Wiltshire and Buckinghamshire.

[DarceyD]

great news! I have only been able to access a late effects clinic because I moved area. Late effects are part of the good news story that we are now surviving longer. Quality of life is important not just for physical health but for the effect on mental health too.

[AlfredSaxon]

That's great news: however there is a need to ensure that clinicians provide a comprehensive explanation of the effects, including late effects, of radiotherapy before it is started

[Blue_Hawaii]

thank you for sharing

[maddie_1234]

That's great. There are so many of us suffering & unable to access the appropriate help. The lack of knowledge of PRD in both Primary & Secondary care takes it's toll on both my Mental & Physical health. It's exhausting feeling like you are the Doctor & having to explain everything over & over again, just to be told that they don't know what to do!

Fingers crossed things will change in the future & thank you for the work that you do everyday to help us.

[TexasPRD]

Good news but not for the U.S. which is behind Europe in acknowledging real aftereffects of Radiation therapy. In my case, during 44 days of externa radiation beam therapy for prostate cancer, my colon was destroyed. 60 days of immense acute pain and infection led to 11 days in surgery and ICU and removal of my perforated and infected colon. After the ileostomy, I am left wearing an external pouch attached to the end of my small intestine for the rest of my life.

BEWARE THE SHORT AND LONG TERM EFFECTS OF RADIOLOGY!