Search
Search
About
Log in
Join
Experiences with
Plaquenil
Posts
Communities
1,054 public posts
Filter results
Plaquenil for PMR
Hello has anyone taken
Plaquenil
to help reduce steroids for PMR? did it work? any side effects? My Rheumy says it's better to be on
Plaquenil
than steroids long term so it's worth trying because I'm having trouble getting off steroids.
Hello has anyone taken
Plaquenil
to help reduce steroids for PMR? did it work? any side effects? My Rheumy says it's better to be on
Plaquenil
than steroids long term so it's worth trying because I'm having trouble getting off steroids.
Italybound62
in
PMRGCAuk
2 months ago
Crp and ESR still elevated!
Hello, I have been diagnosed with UCTD and synovitis in both hands and I’m currently on prednisone 20mg
Plaquenil
200mg 2x, Savella 50mg, Gabapentin 400mg. With all that my Crp and esr are both at 41 and I’m still in pain and very fatigued. I’ve been on these meds since May 2024.
Hello, I have been diagnosed with UCTD and synovitis in both hands and I’m currently on prednisone 20mg
Plaquenil
200mg 2x, Savella 50mg, Gabapentin 400mg. With all that my Crp and esr are both at 41 and I’m still in pain and very fatigued. I’ve been on these meds since May 2024.
Jadaboo4
in
LUPUS UK
2 months ago
FSGS - feeling alone and needing support or advice
I took high doses of Prednisone and
Plaquenil
and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the
Plaquenil
.
I took high doses of Prednisone and
Plaquenil
and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the
Plaquenil
.
amberb444
in
Kidney Disease
24 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Lupus SLE feeling alone - needing some support or advice
I took high doses of Prednisone and
Plaquenil
and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the
Plaquenil
.
I took high doses of Prednisone and
Plaquenil
and it put me into remission for about 7 years. I recently was hospitalized for swollen legs and ankles again and it seems I am sick again and will be put back on high dose steroids and the
Plaquenil
.
amberb444
in
LUPUS UK
24 days ago
Bursitis and PMR?
Plaquenil
. Lots of up’s and downs but trying to stay positive because I have been able to cope fairly well until this last month.
Plaquenil
. Lots of up’s and downs but trying to stay positive because I have been able to cope fairly well until this last month.
fondofforest
in
PMRGCAuk
8 days ago
Help I don’t understand
She also started me on
plaquenil
. Now before the medicine I had 2 positive Ana with nucleoar . She rechecked a couple days ago and my Ana was negative. How can that be? She believes I have lupus and myositis. Has anyone have that happen to them
She also started me on
plaquenil
. Now before the medicine I had 2 positive Ana with nucleoar . She rechecked a couple days ago and my Ana was negative. How can that be? She believes I have lupus and myositis. Has anyone have that happen to them
Jadaboo4
in
LUPUS UK
5 months ago
Traitement
Je suis sous
plaquenil
et cortisone 10mg en échec thérapeutique avec le methotrexate, l'immortel et depuis peu l'arava. Je commence à désespérer. J'entends parler de la biothérapie mais c'est très cher et les mèdecins l'utilisent avec parcimonie.Y a t'il d'autres approches thérapeutiques efficaces.
Je suis sous
plaquenil
et cortisone 10mg en échec thérapeutique avec le methotrexate, l'immortel et depuis peu l'arava. Je commence à désespérer. J'entends parler de la biothérapie mais c'est très cher et les mèdecins l'utilisent avec parcimonie.Y a t'il d'autres approches thérapeutiques efficaces.
Pastel63
in
LUPUS UK
5 months ago
Otezla
I'm on
Plaquenil
which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question is how long did it take you to notice a difference on Otezla?
I'm on
Plaquenil
which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question is how long did it take you to notice a difference on Otezla?
PankieGirl
in
ABDA
6 months ago
Itching and Hives
I am on
Plaquenil
, Gabapentin, Zyrtec, Pepsid and Singular! also..my WHOLE entire body is itchy 24/7band it drives me CRAZY. It is the worst on my hands and feet advice pls!!
I am on
Plaquenil
, Gabapentin, Zyrtec, Pepsid and Singular! also..my WHOLE entire body is itchy 24/7band it drives me CRAZY. It is the worst on my hands and feet advice pls!!
Shubertrachel
in
Fibromyalgia Action UK
7 months ago
SLE medication.
Hi I have SLE had it for 27 years and have not taken any thing for it just started taking
Plaquenil
. (Hydroxychloroquine) Is there anyone out there that has been on it for a while and if so has it helped them. I just never feel well so I am hoping it will help. Thanks
Hi I have SLE had it for 27 years and have not taken any thing for it just started taking
Plaquenil
. (Hydroxychloroquine) Is there anyone out there that has been on it for a while and if so has it helped them. I just never feel well so I am hoping it will help. Thanks
Elise3457
in
LUPUS UK
8 months ago
Prednisone, hormonal imbalance & TTC
I have been on 400 mg of
plaquenil
and prednisone daily since, now reduced to 5 mg a day. In January, my doctor had me try to stop taking the prednisone without tapering down and that was when I first experienced the typical lupus symptoms (or steroid withdrawal rheumatism??)
I have been on 400 mg of
plaquenil
and prednisone daily since, now reduced to 5 mg a day. In January, my doctor had me try to stop taking the prednisone without tapering down and that was when I first experienced the typical lupus symptoms (or steroid withdrawal rheumatism??)
Shelly1919
in
LUPUS UK
1 month ago
Concerning Micro clots?
He added 81 mg aspirin to my 15 mgs. of warfarin along with my 600 mg
plaquenil
. It helped back then. I eventually discontinued aspirin but have continued with my 15 mgs. warfarin and 600 mg of
Plaquenil
and have been pretty good with the micro clots up until about a month ago.
He added 81 mg aspirin to my 15 mgs. of warfarin along with my 600 mg
plaquenil
. It helped back then. I eventually discontinued aspirin but have continued with my 15 mgs. warfarin and 600 mg of
Plaquenil
and have been pretty good with the micro clots up until about a month ago.
prj789
in
Hughes Syndrome APS Forum
7 months ago
Anyone with behcet's taking rinvoq?
Basically nothing else was controlling the flares, tried aza, colchicine,
plaquenil
, methotrexate, mercaptopurine, humira and probably others that I've forgotten. My steroid use was getting a little out of hand and the higher doses have a pretty negative impact on my mental health.
Basically nothing else was controlling the flares, tried aza, colchicine,
plaquenil
, methotrexate, mercaptopurine, humira and probably others that I've forgotten. My steroid use was getting a little out of hand and the higher doses have a pretty negative impact on my mental health.
FrancisB
in
Behçet's UK
8 months ago
My recent journey in decreasing prednisone
Methotrexate and
plaquenil
. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt I needed a higher dose in order to help me recover. Since that time I only had one flare that set me back a little.
Methotrexate and
plaquenil
. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt I needed a higher dose in order to help me recover. Since that time I only had one flare that set me back a little.
Linny3
in
PMRGCAuk
6 months ago
Lupus rash
I take
Plaquenil
twice a day. I develop a rash on my left eyelid every so often. It seems to be a sign I am getting sick. I have had it the past month. It is itchy at times, but at the moment it just looks very red and dry. I have tried a variety of things.
I take
Plaquenil
twice a day. I develop a rash on my left eyelid every so often. It seems to be a sign I am getting sick. I have had it the past month. It is itchy at times, but at the moment it just looks very red and dry. I have tried a variety of things.
Lula1983
in
LUPUS UK
7 months ago
Severe insomnia and limited meds to take while on Hydroxy.
Anyone taking
Plaquenil
and have insomnia and what sleep meds have worked for you? Thank you.
Anyone taking
Plaquenil
and have insomnia and what sleep meds have worked for you? Thank you.
Mialuke
in
NRAS
11 months ago
Thin Leg
I take
Plaquenil
for joint pain/RA and omeprazole for GERD/hiatus hernia. I also have Raynaud's mainly hands and feet.
I take
Plaquenil
for joint pain/RA and omeprazole for GERD/hiatus hernia. I also have Raynaud's mainly hands and feet.
llamehtdos
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
At zero prednisone, almost a week
The
Plaquenil
I don't mind, as side effects are nil. But there is still a financial cost to them too. Middle fingers are stiff, have to put up with it for now. But I am sleeping better, my hands don't fall asleep as much or as painful as they were.
The
Plaquenil
I don't mind, as side effects are nil. But there is still a financial cost to them too. Middle fingers are stiff, have to put up with it for now. But I am sleeping better, my hands don't fall asleep as much or as painful as they were.
sdowney717
in
PMRGCAuk
11 months ago
Skin ulcers
I am not on steroids at the moment (just
plaquenil
) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence? Thanks for any advice.
I am not on steroids at the moment (just
plaquenil
) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence? Thanks for any advice.
lupus_paradise
in
LUPUS UK
6 months ago
What happens if Prednisone isn't taken for PMR?
I also need to determine whether or not to start
Plaquenil
for RA but that's a different conversation. Thank God for this forum!
I also need to determine whether or not to start
Plaquenil
for RA but that's a different conversation. Thank God for this forum!
kp60
in
PMRGCAuk
1 year ago
1
2
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
LUPUS UK
414 results
Hughes Syndrome APS Forum
201 results
NRAS
193 results
View top 10 communities
Sort by
Most Relevant
Newest