So I had my 6 month check up with the rheumy today. She's totally lost knowing what to do with me - I've had to come off plaquenil again as i...
My limbs keep falling asleep?!
Hello everyone, hope you are all having a lovely morning (: So, here's the thing......
How long will I have to put up with my hip feet ankle knee hand and wrist and arm muscle and joint pain. It never stops....
Advice on treatment and potential pregnancy?
For the time being I’m staying away from biologics and mtx as I was hoping to get pregnant at some point soon....
Hello lovely people, I wonder if I can ask for your opinions about my situation as the doctors seems to be confused. However, it doesn't help...
Leflunomide, Uncommon Side Effect
Hi folks, Feeling incredibly lost here... stopped MTX over 2 weeks ago ( seemed to be working......
She cannot diagnose me with lupus at this point as chromatin is a generic test and not specific to lupus, even though that's what she thinks ...
I thought he should have at least talked about how this may or may not be part of my RA....
Rock bottom: any ideas?
Have tried many meds: methotrexate, sulfasalzine, plaquenil, humira, enbrel and orencia - with no real improvement. I have a really stressful...
New Rheumy - Breath of Fresh Air
My wife, Estela, was diagnosed with PMR 18 months ago. The rheumatologist started her at 15mg prednisone per day....
Signs of flares
Hello everyone I'm still in the beginning stages of being treated with plaquenil and starting to slowly notice improvements in my symptoms....
Anyone else taking Sulfasalazine??
Hi all, Had my Rheumy appt today. No plaquenil for me after all....
Methorexate was working for my RA for years but I was having operations for nodules on my arms and hands which kept re-ocurring!...
Other Options When Usual Options Fail?
So I’ve likely had GI issues and some neurological issues going back to childhood, but I was an anxious clumsy child, and they seemed to impr...
Teeth problems and jaw bone exposed, please help!
Hi everyone Hoping someone can please advise, brief summary of what's happened so far: -Diagnosed with lupus 2011 & started plaquenil. Could ...
Wracked w pain all over at least once a month
I have APS n arthritis that was very manageable until this winter when hip and back pain started occasionally. She's a lupus specialist but I...
Need advice on new GP please!
If you know of any clinics or GPs that might see patients with Lupus near this area, would you be so kind as to let me know, please?...
Anyone else have PBC and RA?
Hi PBC family, So, I was diagnosed with PBC 10/10/16. Good news is they found it early....
Sometimes it's just so frustrating - at the mercy of my body
I'm having a day where I'm just so fed up and deflated and tired of being at the mercy of my dicky immune system. About 3 weeks ago I had a c...
Flare and the unbelievable pain
I got diagnosed over a year ago with UCTD even though I fit everything for LUPUS except the positive ANA's and have been on Plaquenil ever si...
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