Itching and Hives

[Shubertrachel]

hello!!

I was wondering if anyone has the same problems as me and can offer some advice!

Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps!

I am on Plaquenil, Gabapentin, Zyrtec, Pepsid and Singular!

also..my WHOLE entire body is itchy 24/7band it drives me CRAZY. It is the worst on my hands and feet

advice pls!!

[Alb2]

Just a thought, but have the medics checked for Mast Cell Activation?

[Shubertrachel in reply to Alb2]

can you please explain more what this means

[Goldenhaze in reply to Shubertrachel]

or even it’s little sister condition Histamine Intolerance. I very accidentally found out years ago that I’ve had it since childhood. GPs of course are no help, but there quite a lot of info and resources online.

[Shubertrachel in reply to Alb2]

I googled it and now I have anxiety lol

[Alb2 in reply to Shubertrachel]

Don’t be anxious! I was just wondering if they’ve ruled this out because it’s often overlooked. As you’ve had hives since childhood, it sounds like you are consistently reacting to something that is yet to be identified and sometimes just eliminating what it isn’t is a good idea.

Hope you soon get some answers and the right treatment to settle the irritation!😊

[Chrisbel]

if you have a good Chinese medicine practitioner near you, (doctor) then you could try them , as Chinese medicine is particularly good at healing skin issues, much better than western doctors, I have found.

[Deeb1764]

I get horrendous itching with the fibro and I have to try really hard not too as been told it makes it worse but easier said than done! I use an antihistamine fexofendine and it works a little but I am still working on best relief. I did go thro periods of hives when super sensitive seems worse in summer especially grass which again has be one worse since fibro began.

[IlGattoPanceri in reply to Deeb1764]

Same!

[Gigiruth]

Hi Shubertrachel

Sorry to hear you have such reactions.

I had contant icthing and hives and reaction to foods and medicine. It was at it's worse in my late 20-30s.

My body was so reactive. Couldn't take antibiotics either.

They could not find a cause. The stress of the condition made me anxious which added to it.

I removed additives and some chemicals from my environment and diet. Got sleep.paced myself.less sugar.

I never towel dry after a bath or shower,I have warm water only and wrap myself in a towel to dry not rub.

I used polyvagal cards to make adjustments to my understanding oc stress.(Deb Dana,) big bookshop online.

I found I had a non specific autoimmune condition.some hypermobility.

My skin has reacted when I am stressed but I live mainly itch free.

I think I react to emotions in my body rather than display emotions.

Therapy has helped.

Try to change the things you can and look after you.

I hope you find some comfort.

I am so much more comfortable now.

Gigi

[Shubertrachel in reply to Gigiruth]

OMG I relate to this so much!!

I can’t take most antibiotics or any NSAIDS. Not only does it seem like an allergy thing, but I notice my mood or anxiety causes hives to appear!

Example, I see someone sick - I get hives. I don’t like germs lol

I also notice hives after showering.

I eat a lot of sugar..maybe cutting down will help

[Marieg1270]

Good morning, I had the same a few years ago it just came on one night and I couldn't stop it. Every day was terrible and my skin was so sore where I had scratched it. After a period of timeI found mine was linked to my thyroid. I was already underactive but my dosage was no longer correct. Since that has been adjusted to now thyroxine and levotyhroxine basically T4 and T3 supplemented I've been fine. I really hope you find the cause it's horrible 😞 sending you luck.

[Emaych61 in reply to Marieg1270]

You beat me to it, I was going to suggest getting thyroid levels checked as well - and some vitamin levels too.

[Astonvilla68]

obviously I don’t know your history, but you are on a lot of medication. I found none of the medication for fibro myalgia worked. It just made me worse. Try googling low dose naltrexone . I get an itch too, but it’s a nerve itch so there’s no redness other than from my scratching no rash

[Smilesalot]

Hi sweetie 🙂,Have you tried an Oat based wash?

I find it calmed my itching.

I'm sorry you have constant itching.

Good luck to you finding things to work.

I'm prescribed antihistamines.

There are many wise people on here who can help you better.

Good luck hugs🤗🙂

[Shubertrachel in reply to Smilesalot]

Thank you!

[singingtheblues]

Hi I came out in hives/blisters and itching after the AstraZeneca vaccine when covid first started and still have problems. Have you been on any long term meds since you was Nine that may have started this or do you remember having any vaccinations at that age. Sorry this may not be of any help just trying to see if there is a connection to anything you had at that age.

[Shubertrachel in reply to singingtheblues]

I had a blood infection when I was nine

Every since all these medical problems

[Hoofprints]

Hi there. In addition to other useful suggestions you've already received, it might be worth double checking that your diagnosis of fibromyalgia is a correct or complete one.

Maybe your GP could refer you to a rheumatologist and dermatologist to be checked over again. Recurrent hives can also be a feature of autoimmune disease, including vasculitis.

A rheumatologist can run tests that your GP isn't able to. For example,the anti-C1q antibody test is an often overlooked but important test, as well as having your your complement levels checked.

I was diagnosed with fibromyalgia for years until the above tests were run. Like you, I suffered recurring outbreaks of hives. Turns out I have a lupus -like vasculitis called urticarial vasculitis syndrome. So it's always worth revisiting the diagnosis of fibromyalgia.

Good luck 🍀

[Shubertrachel in reply to Hoofprints]

I have a few diagnosis because it seems difficult to fully determine what I have. It’s similar to lupus..but not. I’ll ask my doctor about your condition and see what she says

[Hoofprints in reply to Shubertrachel]

I hope you get some answers. The anti-C1q antibody test can't be run by a GP as far as I'm aware, so you would likely need a referral to a rheumatologist.

However, your GP should be able to run blood tests measuring a part of your immune system called the complement system. My C3 and C4 complement markers were low which also helped to form the diagnosis.

[Hoofprints in reply to Shubertrachel]

I hope you get some answers. The anti-C1q antibody test can't be run by a GP as far as I'm aware, so you would likely need a referral to a rheumatologist.

However, your GP should be able to run blood tests measuring a part of your immune system called the complement system. My C3 and C4 complement markers were low which also helped to form the diagnosis.