Search
Search
About
Log in
Join
Experiences with
Plaquenil
Posts
Communities
1,054 public posts
Filter results
Reducing plaquenil dosage and the effects.
For the past decade I have been on 400mg of
plaquenil
and recently my rheumatologist decided that my lupus was under control and we could try reducing the dosage.
For the past decade I have been on 400mg of
plaquenil
and recently my rheumatologist decided that my lupus was under control and we could try reducing the dosage.
Shellhar
in
LUPUS UK
5 years ago
PMR vs. Rheumatoid or something else
He also mentioned methotrexate but then he changed his mind and he going to leave me on prednisone low-dose for now until I need more than 6 mg then he said we would revisit this.He made sure I’m taking
plaquenil
twice a day as well.
He also mentioned methotrexate but then he changed his mind and he going to leave me on prednisone low-dose for now until I need more than 6 mg then he said we would revisit this.He made sure I’m taking
plaquenil
twice a day as well.
Leilagirl
in
PMRGCAuk
5 years ago
Need help taking this decision :(
Hi Dears, 5 years back I had 6 consecutive chemical pregnancies, then did IVF with PGS tested embryos, took (intralipids +
Plaquenil
+ prednisolone + clexcane) the first round we transferred 2 and I had my sweet baby girl who is 2 years now.
Hi Dears, 5 years back I had 6 consecutive chemical pregnancies, then did IVF with PGS tested embryos, took (intralipids +
Plaquenil
+ prednisolone + clexcane) the first round we transferred 2 and I had my sweet baby girl who is 2 years now.
suzans
in
Fertility Network UK
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Fustrated
Last appoimtmemt he tells me my edenscopy results were abnormal i was told i had GERD and gotnput on pantroprozol and pretty much ..here news meds to go on called "
plaquenil
" and tells me see you after xmas !
Last appoimtmemt he tells me my edenscopy results were abnormal i was told i had GERD and gotnput on pantroprozol and pretty much ..here news meds to go on called "
plaquenil
" and tells me see you after xmas !
Emfrenette
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Plaquenil - long term effects on children born to mothers taking it during pregnqncy
While i read everywhere that
Plaquenil
is safe during pregnancy, i wonder if anyone knows if there has been any long term follow up of children born to mothers taking
Plaquenil
during pregnancy? Or are there members with grown up children, that had taken
Plaquenil
during their pregnancies? Thanks!
While i read everywhere that
Plaquenil
is safe during pregnancy, i wonder if anyone knows if there has been any long term follow up of children born to mothers taking
Plaquenil
during pregnancy? Or are there members with grown up children, that had taken
Plaquenil
during their pregnancies? Thanks!
jemozne
in
LUPUS UK
5 years ago
CAPS or Primary APS with Alveolar Hemorrhage
Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids,
Plaquenil
, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience with any of this??
Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids,
Plaquenil
, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience with any of this??
kiminabmw
in
Hughes Syndrome APS Forum
5 years ago
Thoughts Needed
I just wonder if not going beyond aspirin/
plaquenil
is allowing my blood to be too thick and then causing all of my speaking/thinking problems. Do Drs just not consider the issues in the brain as a strong enough reason to anticoagulate?
I just wonder if not going beyond aspirin/
plaquenil
is allowing my blood to be too thick and then causing all of my speaking/thinking problems. Do Drs just not consider the issues in the brain as a strong enough reason to anticoagulate?
TwoH
in
Hughes Syndrome APS Forum
5 years ago
Methotrexate not Humira for RA
I was on
plaquenil
before that and that did not work really well with me
I was on
plaquenil
before that and that did not work really well with me
Vmitch
in
NRAS
5 years ago
Retinopathy Risk in Lupus Increases With Longer Hydroxychloroquine Use
BEFORE TAKING HYDROXYCHLOROQUINE (
), SEE AN OPHTHALMOLOGIST (A MEDICAL DOCTOR, NOT AN OPTICIAN) WHO WILL MONITOR YOU CLOSELY. ANY SIGN OF TOXICITY, THE DRUG WILL BE STOPPED BEFORE ANY DAMAGE.
BEFORE TAKING HYDROXYCHLOROQUINE (
), SEE AN OPHTHALMOLOGIST (A MEDICAL DOCTOR, NOT AN OPTICIAN) WHO WILL MONITOR YOU CLOSELY. ANY SIGN OF TOXICITY, THE DRUG WILL BE STOPPED BEFORE ANY DAMAGE.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Eye checks and hydroxychloroquine(Plaquenil)
I have been taking hydroxychloroquine (
Plaquenil
) for 8 years. My understanding is that this drug can cause retinopathy. However I have not been offered eye checks for this with an eye doctor.
I have been taking hydroxychloroquine (
Plaquenil
) for 8 years. My understanding is that this drug can cause retinopathy. However I have not been offered eye checks for this with an eye doctor.
ma73jon
in
NRAS
5 years ago
Insomnia on CellCept? Sleeping pills that helped?HELP
I am also revved up during the day and have anxiety(it is not psychological or shall I say my baseline anxiety increased 4-5x since taking cellcept) I also take
plaquenil
, synthroid and enalapril(for the nephritis). I started doxepin 10mg HS with my PCP but it really isn't helping.
I am also revved up during the day and have anxiety(it is not psychological or shall I say my baseline anxiety increased 4-5x since taking cellcept) I also take
plaquenil
, synthroid and enalapril(for the nephritis). I started doxepin 10mg HS with my PCP but it really isn't helping.
NewEngland3
in
LUPUS UK
5 years ago
Sores back of throat
Hi guys I was Diagnosed with SLE exactly a year ago I’m on
plaquenil
ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Hi guys I was Diagnosed with SLE exactly a year ago I’m on
plaquenil
ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Sammymoat1986
in
LUPUS UK
5 years ago
Correct Dosage for hydroxychloroquine - Updated in 2011 - based on Height NOT Weight
https://www.lupus.org/resources/protecting-your-eyesight-when-taking-
plaquenil
I read many articles here about people taking 400 mg of
plaquenil
/ Hydroxychloroquine a day. We have to remind The rheumatologists that the dosage was updated in 2011.
https://www.lupus.org/resources/protecting-your-eyesight-when-taking-
plaquenil
I read many articles here about people taking 400 mg of
plaquenil
/ Hydroxychloroquine a day. We have to remind The rheumatologists that the dosage was updated in 2011.
Djlr
in
LUPUS UK
5 years ago
Seen specialist
Hi guy my wife (nannyshark) has now seen a consultant and he has put her on clopidogrel and she will be starting
Plaquenil
in a couple of weeks.any one familiar with these drugs Thank you
Hi guy my wife (nannyshark) has now seen a consultant and he has put her on clopidogrel and she will be starting
Plaquenil
in a couple of weeks.any one familiar with these drugs Thank you
Nanny-shark
in
Hughes Syndrome APS Forum
5 years ago
Anyone have any thoughts about Hydroxychloroquine?
My dermatologist just prescribed
Plaquenil
(but I have the generic Hydroxychloroquine) 200mg. How long do you usually take it, months years indefinately? I have Discoid Lupus, and it's affecting my facial skin, scalp, and hair follicles.
My dermatologist just prescribed
Plaquenil
(but I have the generic Hydroxychloroquine) 200mg. How long do you usually take it, months years indefinately? I have Discoid Lupus, and it's affecting my facial skin, scalp, and hair follicles.
Biloxi
in
LUPUS UK
5 years ago
Reduction in Plaquinil
I am really struggling to get the correct answer I have taken
Plaquenil
for 30 years with no problems my consultant in the last 18 months has decided to reduce me from 400 to 200mg on the 2 occasions we tried I have noticed a huge increase in my joint pain.
I am really struggling to get the correct answer I have taken
Plaquenil
for 30 years with no problems my consultant in the last 18 months has decided to reduce me from 400 to 200mg on the 2 occasions we tried I have noticed a huge increase in my joint pain.
Gillyg
in
LUPUS UK
5 years ago
Paresthesia is back, even with Plaquenil !!
Hi everyone... Lucky you, get Trump today 😅 Anyway I haven't complained in a while...Paresthesia is back...RLS is back...Pain in joints a tad better but still get shooting pain in my fingers..Am also on 4 mg. oripinole nightly. Oh yeah, the mandibular dystonia is a bit better Thanks Betty👩🏻🦰
Hi everyone... Lucky you, get Trump today 😅 Anyway I haven't complained in a while...Paresthesia is back...RLS is back...Pain in joints a tad better but still get shooting pain in my fingers..Am also on 4 mg. oripinole nightly. Oh yeah, the mandibular dystonia is a bit better Thanks Betty👩🏻🦰
Bettyboop71345
in
The Australian Sjögren's Syndrome Association
5 years ago
Does Plaquenil affect my menstrual cycle?
I’ve been diagnosed with lupus for a little over half a year, i’ve been put on hydroxychloroquine or
plaquenil
around the same time too. I’m only 16, so it’s not menopause, but my period started to come light and late and then completely stopped.
I’ve been diagnosed with lupus for a little over half a year, i’ve been put on hydroxychloroquine or
plaquenil
around the same time too. I’m only 16, so it’s not menopause, but my period started to come light and late and then completely stopped.
jaylovesstars
in
LUPUS UK
5 years ago
Does anyone has had good effect of any medication for dryness (inflammation of salivary and lacrimal glands)? Many thanks..
*I have PSS, and I stopped taking
Plaquenil
after 17 years, and I am wondering if anyone used any medication which worked for dryness (mouth, eyes, nose etc and painful salivary glands) ?
Plaquenil
worked really well for dryness, despite reports indicating it may not be effective.
*I have PSS, and I stopped taking
Plaquenil
after 17 years, and I am wondering if anyone used any medication which worked for dryness (mouth, eyes, nose etc and painful salivary glands) ?
Plaquenil
worked really well for dryness, despite reports indicating it may not be effective.
rosegardens
in
The Australian Sjögren's Syndrome Association
5 years ago
Prof Hughes Blog: June 2019
She was diagnosed with Lupus, started on a (short) course of steroids (10mg daily) and
Plaquenil
, one a day. She responded well, but remained on
Plaquenil
. Aged 18, starting a new job, she began to suffer from headaches, often premenstrual. These were put down to stress.
She was diagnosed with Lupus, started on a (short) course of steroids (10mg daily) and
Plaquenil
, one a day. She responded well, but remained on
Plaquenil
. Aged 18, starting a new job, she began to suffer from headaches, often premenstrual. These were put down to stress.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
1
...
9
10
11
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
LUPUS UK
414 results
Hughes Syndrome APS Forum
201 results
NRAS
193 results
View top 10 communities
Sort by
Most Relevant
Newest