Hi all I have been successfully treating Churg Strauss Syndrome for the past three years with Methotrexate and plaquenil....
What would be the next step?
Compared to many, I am sure my Lupus seems well managed but I haven't had a well day in five years....
So frustrated by hospital appointment
Hi all, So today was my long awaited appointment with Dr Karim ( as recommended from the list on here ). I wasn't sure what to expect and, as...
I've tested 3 times positive for APS had many clotting episodes and other symptoms and now my Dr.' s have me diagnosed with Hypercoagable Sta...
What is plaquenil used for? My sister has APS and has terrible pain and swelling on joints will plaquenil help her?
What is plaquenil u sister Debbie has terrible pain and swelling in joints. Will this help her?...
Hi there, has anyone had any trouble recently getting plaquenil from pharmacies in the uk? Several pharmacies in my area have told me it's di...
Just seen Professor Cruz with a result I think ?
Hi there have just seen prof D'Cruz after last month being sold by Dr Sangle I no longer have APS. He said he is sending me over to hemotolog...
New brand of plaquenil and migraines
Hi can anyone help me? Been swopped to the new zentiva brand of hydroxychloriquine......
Voice Hoarseness and sore throat
I have good news and bad news: the good news is that I almost have no symptoms of my RA ( no swelling, no pain and stiffness ). This happened...
Thankful for the good days
I was diagnosed about three years ago and it has taken about two years to get on the right amount of meds. My numbers are still high but my f...
Advice on pain & difficulties when swallowing
I'd love some advice.... I suffer with my sinuses and have sjorgrens as well as GPA/Wegeners and my throat is so very dry....
Grateful for any advice
He took some blood and called me the next day to say that it was all fine, I was sub-clinical hypothyroid ( TSH about 6 ) and that taking 25m...
UCTD at uni
Hi there I've recently been diagnosed and I'm having a pretty rough time :/ Im taking Plaquenil which seems to help a bit....
Plaquenil / hydroxychloroquine shortage update and a question
Hi all - There's been talk on several of the HU boards regarding the shortage of Plaquenil and hydroxychloroquine. Since I've only been able ...
Changing from quinoric to zentiva hydroxychloroquine sulphate.
Hello everyone. I have been in quinoric for 7 months which has really helped symptoms a lot....
EMG confirmed this so taken off of Plaquenil and feeling awful off of the drug....
Hi all saw a diagnostic specialist a couple of months ago who reviewed my symptoms and blood test and gave me the DX of APS. got results of m...
Families with autoimmune disease and migraines/useful blog by Professor Graham Hughes
Professor Graham Hughes August and September Blog 2015 I add this here due to the clear writing and understanding of family's with autoimmune...
Professor Graham Hughes August and September Blog 2015 (mention of Thyroid and Fibromyalgia)
There are other causes, but a major clue to the diagnosis of Hughes Syndrome is the “ autoimmune connection ” – patients and relatives often ...
An I still have really bad brain fog ( some times can't think or put words together ) it takes me for ever to do easy things like wash dishes...
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