Pain Specialist conversation

[Cathrynsr97]

Hello everyone,

I’m super new here and I’ve been looking around a bit so I wanted to make a post. I have had undiagnosed chronic pelvic pain for over 8 years, I only recently realized that the pain I have been experiencing is actually pelvic pain. I had an exploratory laparoscopy in 2019 looking for endometriosis but was told that only normal lesions were found and that I do not have endometriosis which shattered my world. Since then I have just been battling to make any progress, I have tried lots of different medications and birth controls with no relief and only negative side effects. I finally agreed to see a pain specialist next week, I have been incredibly hesitant because my goal is to find the root of the problem, not to only treat the symptoms. I don’t want to be dependent on medication for the rest of my life, I’m only 25. Does anyone have any suggestions of things to address during this appointment? Maybe treatments that have helped you if your story is similar to mine, any words of advice would be helpful!! I also live in the US so that does affect the care that I am receiving. Thank you for your time ☺️

[RedTeddy]

Hi Cathrynsr97, have you seen a pelvic floor physio? They are specialised in treating the pelvic floor & may be able to identify the cause of your pain. My physio is trying to help me get to the root cause of my pain, I had been offered pain medication via my doctor but like you felt that this wasn't solving anything just masking it.

I've recently been having acupuncture & have seen an improvement in my pain. It's a slow process & you need to be patient with yourself, I suffer with anxiety due to my health issues & this makes my pain much worse. So if I'm having a bad pain day it feeds my anxiety & in turn the anxiety feeds the pain. It's a vicious circle.

I'm in the UK but there maybe other ladies on here who live in the US who might be near you & can recommend a physio. Remember it must be a pelvic floor physio not a general physio.

Good luck, I hope you find some answers & feel better soon 8 years is a long time to be suffering with this 😊

[edythe in reply to RedTeddy]

I completely agree with RedTeddy. I’m sure it will be possible to find a good physio in the US. There are various women in the US who post regularly who have had such treatment. I hope you’re successful.

[pizon]

hi..I too live in the US and had a 2 yr period that I was misdiagnosed over and over…I found a pelvic pain clinic in Annapolis MD and saw Dr. Marvel he gave me my diagnosis of pudendal neuralgia once I had a correct diagnosis I started seeing an herbalist…I was not able to tolerate the many meds I was given …I read a book titled Healing pelvic pain by Amie Stien also yoga 🧘‍♀️ Your Pace Yoga by Dustine Miller I do not take any pharmaceuticals…only herbs valerian root and hops…I hope this is helpful..I also did see a woman p/t for women issues she was very helpful..she was thur ATI physical therapy she did internal trigger points and a therapeutic wand I hope this helps please keep in touch and let us know of your progress…good luck 🍀 and God Bless

[RobertVerde]

Here is a site that is helpful: pudendalhope.info/ also read this book - A Headache In The Pelvis - it saved me. Good luck!