overactive bladder with adenomyosis/fibroids?

[PeriMenoEndo]

hello all, and thank you for being here and sharing your stories - so helpful!

Does anyone with adenomyosis or fibroids have experience of overactive bladder and have you found anything that helped?

I’m on gnrh injections which make me feel rubbish but I think I’m still ovulating as from days 10-15 of my cycle I’m like a swollen balloon - I’m needing to wee every 20 minutes then.

HRT helps with injection side effects but makes me more swollen.

I’ve had a chronic uti in the past which means my bladder is more easily irritated but that doesn’t explain why my my urinary symptoms fluctuate over my cycle or why they vanish when I get my period.

I think I need a hysterectomy but would appreciate any advice or shared experience

[Skye22]

Hi there what helps my overactive bladder is solifenacine it's a miracle little pill.Before I was going to the loo multiple times in a day and I used to plan my day trips around where the toilets were.

I have no side effects apart from a dry mouth sometimes.

Hope you find a treatment that works for you.

[PeriMenoEndo in reply to Skye22]

Thank you. Did you have pain and pressure/swelling in lower abdomen as well? How long did it take before the drug worked? I think I’ve already tried this treatment but always open to giving things a go if it can help

[Skye22 in reply to PeriMenoEndo]

Did have pressure due to prolapse but not pain more discomfort.I started noticing a difference about 4wks after starting medication.

[kellerfly]

Hello, I also had adenomyosis and had a hysterectomy 5 years ago. The nice thing was not having anymore periods. But. The pain did not go away. And. I have only gained weight since. The pain you’re describing as chronic UTIs — are you being tested and the tests coming back as positive? Because that happened to me too, but I learned I had more of chronic pelvic floor pain that needed physiotherapy. It truly mimics bladder pain at times. It’s horrid. PT doesn’t help me 100% — but I know it helps more than not going at all.

Long story long, if I would go back in time, I might consider not doing the hyst. While not having periods is nice, I could’ve achieved that with an IUD, and adjusted hormones with HRT. Something to consider. Not sure if that helped?