Hi everyone hope you are having pain free days. I have been suffering with constant pain every single day for the past year and have received little help and guidence from doctors, so I was wondering if you guys would be able to help me.
The pain started almost a year ago in November 2014, and came out of nowhere, it felt like period pain but it continued on after my period and never left. since then I have experienced every type of pain sensation under the sun; aching, burning, hot, stabbing etc. The pain always changes and I really cannot notice a pattern to it. I do also get lower leg pain on my calfs and back pain when my pelvic pain flares up and gets really bad.
I had general blood tests, urine tests, MRi scans and ultrasounds and they all came back normal. I've also had numerous STI checkups too, always negative. I then went to a foreign country where i managed to have a laparoscopy in April 2015. All they found were ADHESIONS, on my right side, attached to my right ovary/ uterous to the wall of the abdomen. This was strange to me because the pain is pretty even across the whole of my pelvic area - i cant say one side is more painful than the other.
No endometriosis or anything was found. They also said they found some very small cysts on my left ovary, but these were 'normal' for the time of my cycle, and when burst only had blood inside. I did notice that i do occasionally get stabbing pains on my left side but no adhesions found there.??
The doctors did not know how or what caused the adhesions but they removed them and my pain was much much better for about 3 weeks. We're talking from a daily 7-8/10 pain to a 1 or 2/10 on the scale.
after the operation I also suffered from a UTI due to the catheter that was used, and because this was not spotted in a test it was left untreated for about a month or so until i became very ill with fever etc. I took 2 rounds of 2 different antibiotics, but to this day, every time i go to wee it hurts, but urine tests come back clear.
Anyway I would say that now the pain is basically equal to that before the operation. the only pattern i can notice in regards to what worsens the pain is when SITTING UPRIGHT the pain becomes unbearable, (his was always the case, not just after the op) although the pain is constantly there it just becomes horrendous when sitting up. The pain does NOT get worse on my period, and my periods are fairly regular and not heavy. I did not have any previous ops before the lap or any other abdominal infections I am aware of. other than this pain I am completely healthy.
I am only 20 years old and about to start my second year of uni. the first was incredibly hard because of my pain and now I am so scared to face another year of pain. I have become very very depressed because of this, even my family and friends are sick of me being in constant pain. All doctors can say is "i dont know" in regards to my issue and if they cant help me what can I do?
Does anyone know what could be causing this? I am so scared this will last forever and I am finding it so hard to cope. I really hope someone out there can help me!
Thank you so much for your attention and sorry for the long post. Hopefully will hear from you guys soon! Wish you all the best on your pain relief journeys xxx