Hi all
I'm new to this community but was just looking for advice on pain management really. I've suffered with ongoing pelvic pain since I was 15 but the past 2 years it has become unbearable. I have had two laparoscopic surgeries to look for endometriosis but nothing has been found. During my last surgery adhesions were found which some doctors say is what is causing my pain, but others say it shouldn't be.
The pain starts around the 2nd of each month and lasts until around the 20th, always a week before my period. During that time I have constant pain and pressure in my pelvis and lower back. I get cramping pain that leaves me doubled over and being sick. I cannot walk and have to crawl to the bathroom. I have to use the bathroom more frequently as the pressure of needing to go makes the pain worse. At the moment I am spending 2-3 weeks of the month in bed. Sexual intercourse has always been very painful both during and immediately after, and bleeding always follows.
I saw a gynae consultant recently who said it didn't sound like period pain or endometriosis. He called it visceral hypersensitivity, which I later found out was a fancy word for IBS pain. He prescribed Mebeverine and told me to take it for a month with a pain diary. However I have been on these before and checked for IBS, crohns and collitis and celiac disease. I have no bloating, diarhea or constipation either. In the mean time I have no other form of pain relief other than paracetamol. The past few months I had cocodamol but my GP doesn't want to give it to me for fear I will become addicted. Their answer was to stay in bed and go to A&E when it's bad. As a result I spend all my days in bed, have had to take a year out of university and have no social life. I spend a lot of time crying or being sick and visit A&E every 2-3 weeks. Each time they are very kind but tell me there isn't anything they can do and tell me to wait for my gynae appointments.
I'm at a complete loss of what to do. I have seen a bunch of doctors, some say it's endometriosis and the others say it's nothing or they may never find the cause. I try hot water bottles, baths and have just ordered a tens machine. I just need a way of getting out of bed and preferably an answer to what is causing my pain. If anyone has any pain relief advise or experienced similar symptoms please get it touch. I am feeling very alone and isolated and it is very hard to explain to my partner how I am feeling. A lot of the time his answer is just find a way to get on with it. I am not sure how else to do this though.