My pain issue is that my GP seems to be incredibly reluctant to prescribe any opiate-based pain relief, and is constantly on at me about the risk of addiction and trying to get me to reduce my usage, at one point reducing my prescription by 75% and leaving me virtually suicidal with the pain. Yet I have never ever overused pain relief, or asked for a prescription early, and take only the minimum dose I can get away with. I have required pain relief for over 10 years and will probably require it indefinitely. I have had multiple surgeries. He wants me to use more anti-inflammatories, and I am trying, but they give me such bad gastric pain, even with a PPI, that I feel I am just swapping one pain for another. My research suggests that supervised use of mild opiates is rarely a problem, and that it's the unsupervised use of recreational opiates which leads to addiction. I went to see him this week as, although I can just about manage the pain during the day, the pain at night is so severe, I wake up literally screaming. This means I start the day exhausted, and my first painkillers of the day just make me feel sleepy. His suggestion was to just have paracetamol in the morning. I was actually hysterical with laughter by that stage. He is prescribing me co-codamol 30/500, so I don't consider that an enormous dose, tbh. He will only give me 100 tablets per month, so I have to wait until I am in agony before I take them, otherwise they simply will not last.
There is no doubt about my diagnosis - it is all confirmed with MRI and via multiple surgeries- I have Ovarian Remnant Syndrome, with a cyst adherent to bladder, bowel, side wall, abdominal wall, uterus and ureter, with extensive scar tissue extending into all organs. My surgeon said I had the worst adhesions he had ever seen.
How do I deal with my GP? I don't want him to give me something massively strong - I still need to go to work every day. I just want him to add in something stronger at night so that I can get some relief and to save the neighbours being woken up by my screaming in my sleep. And I would like not to have to ration my tablets, so that I have to make 12 days worth last a whole month. I am getting to the stage where I am absolutely desperate. I have tried a couple of treatments for neuropathic pain, but found I had little relief, and I couldn't tolerate Lyrica at all, the headache was totally debilitating. Would co-codamol 30/500, 2 tablets four times a day, plus something additional at night, seem a massive dose to anyone else? I am far from stupid, I have a life sciences degree and understand my condition very well, but have no idea how to deal with this intransigence, and am not convinced that his concern is well-founded.
As a quick rundown, I have had multiple surgeries including a salpingo-oophorectomy for ruptured cysts, endo, pelvic abscess, peritonitis, ureteral compression, division of adhesions etc. I have a diagnosed cyst secondary to ovarian remnant syndrome and it hurts like you wouldn't believe. My CRP topped out at over 300 and has never returned to normal, hovering permanently around 45, so I clearly have a lot of inflammation.
Any ideas, thoughts, suggestions, recipes and Xmas gift suggestions for a teenage nephew gratefully received.