Pundendel pain

[joanne8john]

Hi I have suffered for around ten years chronic pain .I have pundendel nuorthopy.

I have been to see many Consultants.

I take many pain relief tablets . Patches control drug

I have tried many cushions .

I have recently been given a injection type pain relief that you use at night this goes into the vagina and burns at first then settles down

I am waiting to see how often I can use this type of nightly pain relief.

It's a awful pain especially flare ups

Anyone out there who has any pain relief that's working .

[Desperateforrelief]

I have also been diagnosed with pudendal neuralgia. I was on a mixture of pain meds, etc. for a decade. I tried a pudendal interstim, it did help and reduced my pain by at least 50 %. I have since had the interstims removed (both nerves were injured). And have been receiving pulsed radiofrequency ablation of the pudendal nerve every 6 months. This has greatly reduced my pain, almost 100%. At times it is 0. I still have to be somewhat careful, but I have gotten my life back. This summer I was able to garden like I did before PN, after 15 years! Hang in there, there is hope and help.

[Konagirl60]

Ten years with this neuropathy is a very long time. Have you had a guided nerve block? How were you diagnosed with this?

I sit on a medium firm sponge toilet seat. I have for over 7 years. Have you tried that?

What meds have you tried? Amytriptyline ? Nortriptyline?

There are pain patches one can use but not if the pain is mostly vaginal. Can you access Compounded Lidocaine, Baclofen vaginal suppositories?