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Diagnosis would be amazing!! Rapidly giving up hope of getting one. I want the stinging to STOP!!

brassington profile image
3 Replies

I've had pelvic pain for 5 years. I started with severe stinging/burning pain, in my pelvis. I then had a laparoscopy, followed by a hysterectomy (kept ovaries and Fallopian tubes) nothing found, Since then I've had a cystoscopy, a ganglion impar block, local anaesthetic injected into my vagina, accupunture, tens machines, various urine/blood/vaginal swabs taken Been on a various range of pain killers, chinese medicine, currently taking amitripyline, which thankfully allows me to get some sleep. I've never had a diagnosis, I'm told its nerve damage. I've got 2 children and work part time. Any recommendation would be appreciated

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juliansmom profile image
juliansmom

Try going to a psychiatrist for xanax. I have pelvic pain and two small kids as well. I'm on the verge of loosing my job and have tried just about everything u mentioned plus numbing creams, painkillers a coccyx block. I find that 1 mg. Of xanax relaxes all the muscles in about 40 min. I get decent pain relief.. Only side effect initially was drowsiness. Unfortunately the effects wear off in about three or four hours. They also help tremendously with the anxiety I get when my pain is at a ten.it def. Takes it down a few notches. I'm in pain 24/7 so I understand wanting to give up. I do. But my darn kids keep me from jump in off the Verrazano.

Toots29 profile image
Toots29

Do you constantly need to urinate as a lot of the symptoms sound like interstitial cystitis or have they looked at pelvic floor dysfunction. Just ideas I'm afraid

brassington profile image
brassington in reply toToots29

Thanks for your advice, I've already seen a urologist and ic was ruled out, I don't urinate constantly,the whole area just stings a gynaecologist ruled out pelvic floor dysfunction. Forgot to mention I had zoladex injections and the pain worsened. Gynaecologist then wouldn't remove ovaries for fear this would make the pain worst. Thanks for your ideas tho

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