Hi All,
I am male living in the U.K , my left leg always feels stiff and tight , plus when I'm lying down or sitting my left cheek goes number and i get all types of shooting , pulling and tingling pain in my groin , testicles and but cheeks and it radiates to right side also. Plus my sit bones also hurt. They wont send me scans and been told I've had for a long time and its chronic and an MRI will not fix the pain..I have been told to drink lots of tonic water and try various medicines which i am refussing to take - Amitripraline , deluxotine and Gabapentin. Anyone have same symptoms and if they ever got to the bottom of it?
This is characteristic of pudendal nerve entrapment, or pelvic floor dysfunction. MRIs won't fix this... MRIs don't fix anything, so that was stupid of them to say. MRIs help find causes to create solutions. You need to possibly look into PT with a pelvic floor specialist and perhaps looking into acupuncture massage to pinpoint pressure points, and maybe unwind some of the pent up stress. Basically what's going on is the saddle of muscle tissue that forms a cradle for your groin area, bladder, prostate, tubing etc is strained and can't relax. This tugs at your leg and groin muscles and pelvis as well. You should try some pelvic floor relaxation stretches on youtube, and take hot relaxing sitz baths using epsom salt to try and help relax the area. That might help while you seek out a physical therapist, but you should have scans done anyway to rule out potentially devastating nerve entrapment that can get progressively worse if action isn't taken. That said, there's surgical procedures that can assist in moving or alleviating pressure on the nerves down there, which they should be giving you options for. Why are you opposed to the medications? I'm not familiar with them, but they could help, short term. Have you had any change in symptoms since day 1? Has the sensations decreased at all, or are there times when they decrease or vanish completely? If you stand up, are you more at ease? How old are you?
Thank you for this. When i stand up all the symptoms go , the only really issue i have is when i walk long distance my left leg just gets harder to walk on... I am 33 and this is killing me inside....my issue has got worse since day one .....i just read so many bad things about antidepressants and i dont want to go down that road......
Well breathe my friend, you don't have to take them and they likely wouldn't help anyway. Get some answers, tackle the issue, and you'll get it sorted, no doubt. Don't give up hope.
I was just like you and I would not take the medications my Pain specialist was prescribing for me AFTER SHE PRESCRIBED Lyrica and Cymbalta. Those medications changed me into a monster. I permanently lost 60% of my sense of smell and taste from taking them. I hear you!i detest pills.
I DID NOT HAVE POST HERPETIC NEURALGIA! I had pudendal nerve entrapment. I was dismissed from day one. I was never given ‘Pain Clinic Intake Forms’ to fill out. Did you fill them out? They are a standard form all pain patients fill out. I had NO VOICE. Apparently, I had a personality disorder? NOT!
I was misdiagnosed because doctors were covering up a post surgical problem where metal had migrated and was the cause of much of my neuralgia pain and continued flare ups for ten years! Three surgeries that should have been done in 2008 and 2009 were not done and I was left in uncontrolled life threatening pain for three years.
You need a properly done fluoroscopy- guided nerve block into the pudendal nerve root in your buttock. If you can sit after that block it will prove it is the pudendal nerve that is agitated. If four nerve blocks do nothing, surgery is a must! It saved my life.