desperately need help. pelvic / ovary pain. twinges, ache, sciatica, back pain, labour pains

I had a ruptured cyst 2 years ago during sex. I didn't get an ultrasound scan for a few days later where they saw fluid and diagnosed a ruptured cyst. it was the worst pain ever where I couldn't move or walk, I was sick and boiling hot. since then I have had pain in the exact same place where I felt the pain after sex. I've been in constant pain ever since, it's getting worse where I can't walk a lot. the pain radiates from my pelvis down my left leg, up my back, to my shoulders. I've been prescribed gabapentin and ampitriptiline. I've had numerous ultrasounds, internals which all came back normal apart from normal fibroids and a few cysts but nothing to worry about. Endometriosis was then mentioned. I waited 7 months for a laparascopy which I had 2 days ago. They found nothing. No endo tissue he even went on to say it was all in "pristine" condition. I burst into tears. I don't want there to be anything wrong by any means. But I know there is. I'm 20 years old and it's ruined my life. The pain is always there. My womb feels heavy, it's a dull ache and pain is always worse in the evenings after I've been walking around. Then it feels like labour pain. My stomach is swollen everyday to where I look 6 months pregnant. I have trouble with bowels also - such bad pain when I go and I also get a lot of blood. I've stopped havig sex as it hurts too much. Clothes hurt my skin. I can't wear jeans or tight clothes. Please somebody help me, nobody is listening to me and after this laparascopy I've just been left to try and manage the pain. That would all be okay just as long as I had a reason for it !! I'm absolutely desperate. I pin point my pain to where I think my left ovary would be.

18 Replies

oldestnewest
  • How dreadful, I am suffering and I am paying privately to see a Mr Vix Khullar, sore him for the first time last week, he is renowned for thinking outside the box he is in London if you are u.k. Look him up on mumsnet for what ladies have written about him. He immediately picked up something with me that quite frankly was smacking the others in the face, he said it is a case of opening doors to try and find the answers.

  • did he give you any answers for the pain?

  • Also you most definately should not be getting blood when you go for a poo. Needs checking a.s.a.p

  • I've told my doctor she seems to think I have endo tissue on the bowel. But now my laparascopy says otherwise.

  • He said a lot of pelvic pain starts in the bladder, and that's where he always starts and works from that point like putting a jig saw together. I have e-coli that hadn't been picked up and my bladder is double the thickness it should be, so starting off with that on strong antibs and then he will carry on with the process. The physio I see also had similar problems to me , and here's was started by a UTI, she is under the same consultant she is now 95% better but didn't happen over night, it took two years.

    I am not saying in any way that is your problem at all, but you need to find someone who really wants to try and help, however I realise that at your age money will be a possible problem.

  • Research the condition pelvic congestive syndrome (or something like that, not sure that's the correct name but you'll find it putting those words in). Anyway I've been having the same problem and all the symptoms I have match it. If it matches yours print off the info and take to your doctoras there is a very specific test for this. I'd like to know what happens and hope you get some relief soon

  • I will definitely look into it now, thanks so much for replying I'm just desperate.

  • Can i just ask what the test is for this please?

  • As someone below mentioned, pelvic congestion is a possibility but I also wondered about adenomyosis as this can't be seen at laparoscopy: have you had an MRI scan ?

  • No I've never had an MRI and I've even mentioned it to my doctor if it's worth doing - maybe with all this due to being lower back related ? but she looked at me stupid and said no, there's no need to do an MRI. She has referred me to a bowel person .... but said that's going to take months. I can pin point the pain in my groin, always on one side. it goes from a "toothache" type feeling, to twinges, to shooting pains, to then what can feel like labour pains and I can't walk. the pain goes all up my back and down my one leg - that's the reason my doctor thinks it's nerve related hence the medication I've been subscribed.

    Thanks so much for replying and I'm really sorry that I'm babbling on, I'm just hoping somebody will see this and have a lightbulb moment and point me in the right direction. I've been in this pain for 2 years.

  • I would say Adenomyosis has to be a possible culprit.

    With cysts, there are many types including chocolate cysts, dermoid cysts and simple cysts.

    Any of these can rupture especially chocolate and simple cysts.

  • Its so hard to tell what cyst it was. As I wasn't scanned for a couple of days later. I'm even wondering myself if it was a cyst!! Although there was fluid there on the ultrasound.

    how do you diagnose adenomyosis? I've never really had any trouble apart from painfull and heavy periods. that was until I had this excruciating pain during sex.

    Thanks for replying, any information is useful as no doctor is listening to me. I'm sure they all think I'm nuts. But this pain is so real.

  • My adenomyosis was diagnosed by MRI scan. Sometimes an ultrasound scan can detect a larger or bulky uterus, and this can be suggestive of adenomyosis.

    Here is a link to a very good website

    m.adenomyosisadviceassociat...

    Best wishes,

    Barbara x

  • Hi I've just realised I have replied to both your threads, saying the same thing lol! The test is "venogram, CT scan, or an MRI. Ultrasound is the diagnostic tool most commonly used." I got that from Wikipedia when I typed in pelvic congestive syndrome. Look it up x

  • I agree with the Pelvic congestion suggestion - I am going through almost exactly the same thing, nothing found in lap, same pains, been through gastro DR and nothing. I will be pursuing this now.

  • I've just found your original post after commenting to you on another post. Reading this I have EXACTLY the same problems. I'm supposed to be having a laparoscopy, but now I'm not convinced that they will find anything. What are your periods like? Do you have any abnormal bleeding? I just find it really weird that our symptoms are the same and we are the same age.

  • Hey i can't remember whether or not i replied to this. I do have heavy and painful periods. and whenever i have one it makes this groin pain i have a lot worse :/

  • Hey how is everything going? I am experiencing similar symptoms to you and was wondering if you ever received a diagnosis? Thanks

You may also like...