Hi all, I’ve had this awful pain for almost four months and don’t know what to do next. Pain in the lower abdomen/pelvis started after I gave CPR (did chest compressions for several minutes) during a test emergency situation at work. At the time I was taking Bactrim (I had just returned from a holiday in Mexico where I caught e.coli and a parasite). The pain later spread to both the left and right sides including the groin. The pain only started after giving CPR, I didn’t experience it in Mexico. I’ve been off work ever since and spend much of my time in my flat. I can’t walk far, sit up straight/for long, drive...it is also significantly worsened by bending, lifting, coughing, laughing, standing, getting up and down from lying/sitting. Ive also noticed my right leg is constantly tense, even though the pain runs across both sides of the pelvis. I’ve had various scans done and various things have been ruled out, e.g. hernia, pelvic inflammatory disease, inflammatory bowel disease. I have had some constipation for the past month or so and have been advised to start taking laxatives, but I’m unsure that would be the cause of such debilitating pain. Does anyone have any ideas? Should I try and get a second opinion about e.g. a possible hernia?
Pelvic pain worsened by bending, lift... - Pelvic Pain Suppo...
Pelvic pain worsened by bending, lifting, coughing, laughing, standing, walking, sitting...
What has the medical professionals had to say about this?I am in pelvic pain physical therapy myself and I've been battling for 10 months but I will shortly be getting Botox and my pelvic floor to relax all the tense muscles and nerves etc but I recently read about a man who started having severe pelvic pain and referred pain after he did a handstand at his own barbecue.... Who knows why it occurs but I hope you have some good pain medication that calms the muscles and nerves like amitriptyline or muscle relaxer like Flexeril or neurontin because these are necessary to get ahold of the pain
I think the medical professionals are stuck as to what it is. I’m being referred for a colonoscopy but I’m not sure the bowel is the issue. It feels more like a muscular issue or something, considering how it started and physical activity and bending forward etc aggravates it. An ultrasound found a possible non-reducible femoral hernia in my right groin but an MRI didn’t find any hernias, and the consultant said it could be fatty tissue but that everyone has fatty tissue in their body.
That’s interesting about the guy who did a handstand...
I do need to get some better pain medication because the one I’m on (Gabapentin) doesn’t work.
I’ll be interested to hear how the Botox goes for you!
Hi London , i have that pain also and can t barely sit. I sit in my knees on a yogabench with a swimmingboard on top of it with a hole in it were my tailbone is . It can be pundendal neuralgie you can look on the page pundendalhope and relate your symtoms.
I hope you get better soon i did get better a bit the pain dropped for 30 % with meds PT and menthal guidiance.
Hi, thanks, I had a look at the website you suggested. The symptoms don’t seem to fit what’s going on for me. I can sit, in that my tailbone doesn’t hurt, but it’s my lower abdomen that hurts when I sit. The further forward I sit, the more painful it is, but not in my spine. My lower back has been aching a bit in the past month or so but probably because I’ve been slouching when I do sit.
It was interesting on the website though, when it said “Burning, tingling, numbness, electric shock, stabbing, knife- like or aching pain, hot poker sensation or feeling of a lump or foreign body in the vagina or rectum” because I get such a mix of types of pain and sometimes it feels like there’s a heavy lump/s of burning coal in my lower abdomen. It’s so strange. And one day when I leaned forward in a chair a few times it felt like my body was in shock, a similar feeling to how I felt after I had a foot operation years ago when I walked too far on it. It’s so hard to describe the pain sometimes!
I’m glad your pain has reduced - it sounds like it’s important to get the right combination of meds and physical therapy etc.
Have you had your back checked out? Sounds like an MRI of the lower spine may be in order.
Hi, sorry I thought I’d replied to you. I replied to willemine above about why I’m not sure it is the spine but I guess it still could be? There could be nerves that have been affected possibly...
look for a pelvic pain specialties you may have some nerve problems I have found getting the correct dionogist was the best medican (I saw over 20 dr.'s in a 1 and 1/2 yr. time span)then you can educate yourself as to what you have and how to treat it ... in my personal situation no medication helped I did go to p/t which helped me very much but I had to find an herbalist due to all the medical field had to offer treating was just one area of the body didn't help me I have found yoga and mediation to be the best I needed to treat my entire body not just my pelvic area mine is pundeal nerve along with sciatica and ingual nerves I have found people with pelvic pain there is always more then one nerve involved I saw dr. marvel in Annapolis md in the US.... much luck to you I hope you feel better
Thanks, I think I will look up a pelvic pain specialist to see privately. I’m in the UK and it’s hard waiting so long for appointments on the NHS. I have tried a bit of meditation and it’s generally been really helpful so I’m planning to do that everyday if I can. I think I hold a lot of tension generally in the pelvic area which could have contributed to this problem.
If it’s a nerve problem can a CT, MRI or ultrasound pick it up?
I hope your pain is more manageable now.
I do think that there is an ultra sound available for nerve detection but I wasn't ever tested in that way I've had both CAT scans (multiple) and an MRI and was never told (until I saw the pelvic pain dr.) that a nerve issue showed up mine isn't entrapped but the pelvic pain dr. seemed to know straight away of my problem good luck
Go see an orthopedic surgeon and have your hip checked out. I described my situation with this in the post before yours so I won't repeat but definitely get get a second, third and fourth opinion until you have a resolution. Mine was the furthest thing from what I thought it to be until I saw an orthopedic!!
That might be worth a try as I have had gluteal tendonopathy in my hip before so could potentially have impacted on this. I can’t find your previous post, please could you paste the link here so I can read it?
Just wondering how your making out? Did you ever get to the pelvic pain dr?
Hi, I ended up finding a pelvic physiotherapist in London and saw a hernia specialist to rule that out. But actually I started getting better (and am now pain-free 99% of the time!) when I discovered the Curable app and Dr John Sarno (and his book The MindBody Prescription). The only time I get pain now is during really stressful times.
How are you doing in your journey?
So happy to hear that you are doing well!! So exciting to hear good news...I am better thank you I have found relief from the book be Amy Stien "Reliving pelvic pain" and yoga I am still not able to work but am able to live life I still have the feeling of something like a ball but it is better thank you for asking take very good care and stay healthy
Thank you London I too wish you all the best please keep in touch...I am going today for my first osteopathic message since the Covid outbreak it has helped me in the past so we will see I did go onto the curable web site do you have to pay for that?
Some of it is free so it’s worth trying it out before you decide whether to pay (I think it’s about £50 for a year but might have changed). I’d recommend listening to some of the recovery stories and audio tracks about neuroscience and pain. I hope you find it helpful!
Hello from a very empathetic Korin in Southport UK.
Well, it does sound like pelvic floor dysfunction. Symptoms fairly similar to mine except mine now also affecting the back end too. Pain caused by the tension in the muscles and muscle spasms.
Seems to happen to many people after taking antibiotics and / or through muscle tension in exercise. Think the CPR training would qualify in the muscles you were using at the time.
Have you seen a specialist pelvic Physio? They would be best placed to see you in the first instance. Just Google women's Pelvic Physios. Think there's a listing of them on squeezy. You might have to pay privately.
Otherwise in London you have Sayer Clinic who can probably help.
After months of physio treatment I'm now about to have Botox into pelvic floor.
I'm using the Pain Spa, Dr Krishna in Bristol as he is still able to give treatments unlike most private and NHS consultants.
You can have a remote consultation with Dr Krishna via zoom or via what's app. He can give better advice on what he thinks it is. He's a pain specialist so better idea about these things than most doctors.
Also, pelvic fusion site white rose meditation is good for breathing to try to relax the muscles concerned. It'll take time.
Please mail me privately on the two dialogue bubbles private chat on this website if I can be of any further help.
Warm regards from Korin
Sorry, I just replied to you and then noticed that the post was 9 months ago. I'm glad you are much better.
Gives us all hope.
Korin
Thanks so much for your response though, it’s so nice you took the time. I wish you all the best in your recovery and I really do recommend the Curable app and Dr John Sarno’s work.
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