Been a rough week here. We had 2 deaths in our family and I drove from Indiana to Kansas and back to Indiana in the course of 3 days with my elderly mother and my 4 month old baby in tow.
Saw my GI Friday, which is why I drove home immediately following the funeral.
Anyway, while I was there she said how well everything was going, said she would leave me on the 20mg Prednisone for a month, then 15, then 10 for maybe 6 months and see how low we could taper it without a flare of AIH. She said it was early for the PBC, not much bile duct damage yet but that the AIH was very aggressive. I asked if she thought this was manageable for the long term and she said I was responding well to the treatment. She said when she first laid eyes on me she thought we were in a much worse place. She ordered LFT since I was on the way to the lab for a CBC due to them being unable to read my a1c.
My bilirubin is down to 4.8, but everything else is rising.
My Alk Phos 280 to.365
AST was 76 now is 89.
ALT was 105 now 152.
I lost all the progress I had made during Oct. Everything is back toward the September levels.
My cholesterol levels are soaring despite a very good diet. I'm doing everything I can on my end. I exercise daily. I eat an anti inflammation diet, low sodium, heart healthy. I have a referral out to the cardiovascular clinic to see about my cholesterol levels but have not seen them yet.
I don't know. I'm just feeling discouraged. I'll call my dr on Monday I suppose to see what she thinks.
I was so hopefully I would be close to normal range because despite the bone/muscle pain, I feel better overall. I assumed that meant I was getting better.