LFT'S were going up instead of down. Weird nausea and URQP. I have elavated ferritin, as the lab that tested me has a range (30ng-130ng) and mine is 192. A few of you mentioned maybe AIH. MRE said 3.14 kpa. My GI, although kind and does any tests I ask for was honest enough to say "Stella, I think you need to touch base with your hepatologist and let's see what he thinks." So I did.
He'd literally just got back from a week long seminar on PSC and PBC. In many of my posts I called him "Old School" as 2 years ago he had me biopsied and found zero PBC. Even tho I was AMA positive and had an elavated ALP, he said I probably didn't have PBC because biopsy was petfectly clear. (Yea, I know... I had 2 out of 3 PBC markers) So, I didn't put much faith in his expertise. NOW, as he was staring at my MRE results and the color coded graph I made documenting the elavation of my ALT, AST, & ALP, not to mention the lower Albumin and elavated Bilirubin ALTHOUGH those two are still within normal limits, he had a different take.
Gonna be starting OCA. He's contacting my insurance Co. to make sure I'm covered. He was kind, informative and said he didn't believe my high ferritin skewed my MRE results. I'll take that! We stopped my Sulfasalazine 8 days ago. Labs came back. ALT, AST are back in normal range. But ALP still 173 with my bilirubin trending upwards, OCA is his recommendation.
Trying to wrap my head around having to start OCA. 😔❤