A year ago I was referred to gastroenterologist by my rhematologist as he suspected I could have PBC. Waited 4/5 months (Sept 2016) for appointment. Was told by 1st gastro that I would one day need liver transplant. Was sent for ultra sound scan and further blood test. In Nov 2016 I received a copy of the letter sent to my GP, stating the scan and bloods showed PBC and that I would be seen again in 3 months. I saw another consultant in January 2017 he was not very communicative but did send me for further tests: MRI with dye and without dye also liver biopsy.He wrote to my GP on 13 Jan 2017 I got a copy which stated: Positive AMA at 1:640. ALP 143. Deranged liver function tests. Hypertension. Vit D deficiency. Ultra sound scan possible liver cirrhosis. Possible PBC. I went to see him again last Tuesday March 2017. He looked at my results on the computer (I got the feeling he hadn't looked at these before). He kept mumbling away and said MRI showed early cirrhosis. I asked if I had PBC, he sort of mumbled something. So I asked him if my AMA is positive does that mean I have PBC. he said yes. I ask will I be given medication he said No it doesn't work. Well how does he know it doesn't work on me if I haven't tried it. He said he is going to get a stain done on my previous liver biopsy. I don't know what that is for he was just so uncommunicative. He also said you will need a liver transplant. See you in 3 months. I ask do you have other PBC patients and are they on Urso, he said yes. I walked out of there totally confused and gobsmacked. Thinking "What was that all about". Sorry for the long essay, but any thoughts anyone?
I really need some advice: A year ago I was... - PBC Foundation
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