First post here. I have struggled with exhaustion for over a year had numerous tests including tests for sleep apnoea etc but all negative. Felt like giving up but eventually went to a new doctor who did some different tests and found the AMA antibody and apparently also the specific M2 marker for PBC. He has referred me to a specialist which I am seeing next week which is great but I feel like I am pinning all my hopes on this specialist being able to help - not sure what they will do at this appointment?
Also I have had to be signed off for two weeks as I am feeling progressively worse and worse - exhaustion, aches in lots of my joints, dry mouth and sore sticky eyes. The GP I spoke to - a different one from before - signed me off but said it was unlikely to be the PBC as my liver function tests were normal.
My question is can I be really affected by the PBC despite my tests being in the normal range? I am really struggling and desperate for answers!
Back at work now due to money issues but feeling awful - thanks for any advice you can give