I had my first 6 month appointment since diagnosis on Thursday its left me a bit upset. All my blood works were within normal boundaries which is great as the Urso is obviously doing its job. But every other thing I tried to discuss he told me was not connected to my PCB... My left and right side pain under my ribs (getting worse every day) my joint pain, especially in my hands, the cramps in my feet, the looser than normal bowels, the insomnia, the weight gain, the fluid retention,,,, all of these things he has told me are definitely not PBC,,, only the itch, which he said was mild, and the fatigue, which he told me to try to go to bed earlier. Mum then gave him some of the PBC leaflets and he immediately told us to look at the Liver Trust UK site for best information. I did this when I got home just to see if what it said was any different from what the Foundation said(it isn't) but there in black and white were a list of symptoms for PBC which he had quite emphatically told me were not connected. I am now even more confused than I was before, as a lot of my health problems have been put down to my PBC so I have been thinking all along that my appointment was going to be helpful in coming to terms with it all.
I got the distinct impression that once he had told me my blood counts were normal again that the appointment was over and I was just holding him up.
Is this normal? He didn't even check where my pain is, ask how bad the itching or fatigue is, I've to start Cholestramine and go back for follow up in 6 months.
Sorry everyone, I just feel the need to rant or I'll cry.