I am 46 yrs old, diagnosed with PBC exactly a year ago after liver biopsy and blood tests. Started on Urso and my blood results are now still raised but much improved.
I have two children ages 15 and 12 and I stopped my career as a nurse to be a full time mum. My child has mild autism and dyslexia and I felt it best to stay at home. Had planned to return to work when they were old enough, as in now.
Anyway, getting to the point...how do people cope with working when they have PBC? I don't work at present but I often find I have debilitating exhaustion! I feel I'm in a constant battle between wanting to return to work and then worrying I wouldn't cope with it! I'm only 46 and I want my life back!
Have spoken to my consultant. He's v pleased my blood results are improving and said he will see me in a year. That's great, but what do I do in the meantime?
Please could anyone advise me? I'm feeling very down that all my plans for my career and hopes that I had seem to be disappearing! I'm still young and want to grab life!!
Any advice on how to cope would be v gratefully received. Sorry if I sound whinging, I just need to be in control of this.