Hi everyone,
It has been a while, and i thought i would catch up and see how you are. For me, had to have the mtx lowered to 10mg the drug caused too much for me to tolerate, the folic acid was increased, but i have had one bad flare after another and it has gone to my ankles, shoulders, feet, knees and hips so tin man reporting in. I saw the rhuemy again on Thursday, a steroid injection, oh thank god for those. and put on sulfralaizine, although i am on antibiotics at the moment, so will start those when i have finsihed them. Goin through all the benefit changes at the moment as well, so waiting for the dreaded questionnaire. Stress sure is not good for RA!
The book is with the proof readers so hopefully will hear when it is due to come out so i will let you guys know. Have managed to keep the pen busy, thank god for speech software for the computer, so when i have not been able to write, i can talk instead.
So this is the one i wrote today.
Rhuematoid Arthritis. R.A.
In January 2012 I was diagnosed with a chronic, progressive can be disabling auto immune disease called R.A.
This disease varies differently from day to day
Some days are so painful, it reduces me to tears
When I was diagnosed with this - I was full of fears
People need to know what R.A. is like
Every day a battle from morning through to night
This is called and auto immune disease
Not a wear and tear arthritis - they are different if you please
Our immune systems attack the lining of our joints
We can feel completely exhausted, and wonder what's the point
It can affect any joint at any given time
It can happen to anyone at any age is what you will find
We have doctors called Rheumatologists
At times other people called physio terrorists
There is such a team involved with every one of us
We would rather live our life with very little fuss
We know when we are having bad times when they are called a flare
Our joints become inflamed and hot, who said life was fair?
We can become stiff and painful almost overnight
I call myself the "tin man" , oh we are then such a sight
We have the medication, the dmardrugs
We take a lot of meds so we can raise our shoulders and shrug
There is methotrextrate, that is a chemo med
Everytime i take it, it puts me straight in bed
It makes me feel so tired, and puts me on the loo
Then you take folic acid, more than one or two
There is a drug called "Plaquenil, it can affect your sight
We just wish we did not have this, rather than battling this fight
We have lots of meds and steroids too
We are not allowed long term steroids, sometimes, it's make do
It puts our friends and family through so very much
They are the unsung hereos, the ones we really trust
Without the friends and family how do we all go on?
They are the ones who give us courage and say come on be strong
We have the bi-weekly blood test to check our inflamation and disease activity levels out
Sometimes the sheer frustration of lack of independence makes us scream and shout
It can be so bad that then we need an op
It can make us angry and irritable, and we can throw a strop
We have issues with every little thing
But we all know we have to battle this, for we can never give in
It affects our memory and concentration too
It affects our organs and lungs and lowers life expectancy for you
The food we eat plays such a part in how we feel
When we see our hands and feet and body swelling then you know its real
Most of the symptoms hide right deep inside
You may think we're well, the pain is there, it hides
We can't show we're tired, or we're sick of it
But you'll know we are upset when we throw an angry fit
It makes us think twice before we do anything
Some days you can do stuff, the next day you're done in
But everyone is different with this-its so very true
But I beleive we can have a life - and we can make it through
I am only at the start of this, others have battled years
The future so uncertain, hey we all share those fears
I will not give in to it, and I will meet it head on
For all those who suffer this disease, keep battling, be strong
The scientists one day may find a miracle cure
That is the hope i cling to, what i cling to for sure
For everyone suffering this horrible auto immune disease
I send lots of love and hugs and pray for you some ease
Rheumatoid Arthritis is an auto immune disease. This disease affects everyone at any age. No one is immune from R.A. Let's raise awareness. Thanks for reading. My prayers are with you all and your family and friends. Together lets raise awareness of RA and pray that one day they find a cure. xxxxxx
isolation end date
Mycoplasma???
Vaccines and flare up's?
Made me smile😊
Pip assessment 
