A little side trip to the hospital: well all the... - NRAS

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A little side trip to the hospital

Someonesmother profile image
8 Replies

well all the swelling ended up being pericarditis, but no one seems to be able to tell me how it occurred. Anyway after a few days in there I am home and am not at the mercy of their horrid food. Yay. Can't take anti inflammatories so it is will a bit of a long journey to heal. At least I can breathe a lot easier and massive doses of lasix have cured that swelly feet thing. The skin on my feet sort of look like old parchment now, all wrinkly, but so much thinner.

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Someonesmother profile image
Someonesmother
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8 Replies
sylvi profile image
sylvi

I hope you soon start to feel brighter darling.xxxxx

Someonesmother profile image
Someonesmother in reply to sylvi

I will get better just horridly painful and makes breathing hard. Thank heavens I am home now though that makes it all more bearable hahahah

allanah profile image
allanah

Bless you that sounds horrid xxx hope you get a rest now!

Someonesmother profile image
Someonesmother in reply to allanah

I have had a few hours uninterrupted sleep tonight so I am sure that will help enormously. Hope you are going ok. I saw you have been having wonderful summer adventures. Good on you.

allanah profile image
allanah in reply to Someonesmother

It was amazing ! Glastonbury , Leeds festival, Wales, Loch Lomond, Turkey, Lake District , France, Lansarote So not been on the site much!

But unfortunately have had two serious urind infections, one chest infection and now add auto Immune skin down disease. So rituximab stopped. Plaquenil started with my arava and steroids for six months the Toxilimab ! Flaring today but that's life !😜

Someonesmother profile image
Someonesmother in reply to allanah

Oh dear that's not good. But I am really glad that you got out to do all the things you did. Sometimes I think we just have to go for it.

I have been on plaquenil since this all began. I am not sure it actually does anything for me. i guess if I stopped it I would find out hahahah

I hope your flare settles and you cna well enough to plan more fantastic trips

Oh dear, poor you. You've certainly been through the mill.

Glad you're home and I wish you a speedy recovery.

Someonesmother profile image
Someonesmother in reply to

Thanks crashdoll, I am hoping it clears up fast too.

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