Queen is a busy bee

[HipHopQueen]

Hi all,

I haven't left you, but these are the last two weeks of school. Then I'll have the summer off. I'm concerned dialysis is getting closer and closer. My creatine number is slowly creeping up. I don't even like to say the number out loud because it is so very upsetting. I have to realize that dialysis is what will keep me alive until I can actually get a transplant. This is all so scary, but I'm thankful for family and friends. One of my coworkers asked if she could donate for me. She is my blood type but I'm not sure it will work out. I wonder if she thought it would be a lot simpler than it is. I told her if she wants to back out its okay. I also need at least one surgery to become active on the transplant list. Also the center I originally was trying to list with that went off line is now going aback online but my nephrologist said I didn't want to be their first patient. So that's my life right now in a five second spiel.

[LeesKees_NJ]

Welcome back it is good to hear from you again! I was wondering where you were, it has been a while. I'm glad you've been busy and not sick or something.

[HipHopQueen in reply to LeesKees_NJ]

Thank God, no. Not sick. I’ve been thinking about writing just couldn’t find a moment. How are you doing?

[Bassetmommer]

HI Your Majesty.... so glad things are going ok. I too am headed for dialysis and making preparations for it. And yes, I have gone through and will continue to go through the stages of death (Denial, Anger, Bargaining, Depression, Acceptance) because it is the death of my old life. It is a normal process and to deny it would be critical.

About the person who wants to donate. If she is willing, you should continue to see if she can. Even if she is not a match for you. They have a program now that when you bring in a live donor that is not a match for you but is for someone else....they will find one that is for you in exchange. It eliminates the wait. And since there is over 90,000 people currently on the transplant list, it is a great option for you.

[Beachgirl32]

welcome back glad your life just been busy.. yes I think we all hated to admit it was time for dialysis . I sometimes want my old life but I accept the fact that this is god plans for me and I’m thankful I have something keeping me alive waiting for that transplant. I may not like all the stuff that going with my dialysis journey but it is my journey to figure it out.

Wonderful someone want to step up and donate for you. Yes a

Lot of people don’t understand it more than blood type. I had six people step up no matches and none of them wAnted to do a paIr exchange. I pray thaR your journey will be different can’t wait to be reading some more of your writing.

[horsie63 in reply to Beachgirl32]

Hi Queen. Good luck with finishing up classes.

[HipHopQueen in reply to horsie63]

Thanks for the luck. I need some 😁

[HipHopQueen in reply to Beachgirl32]

yeah I’m going to be thankful too. I’m nervous but I have faith my parents and good friends. And it is so nice to have you guys. When it seemed like maybe my dad was an option but we didn’t know. We talked about paired donation but no one I know wanted to do it. More writing to come 🤩

[Darlenia]

Good hearing from you, HipHopQueen. Bassetmommer has good advice for you regarding transplant options. Perhaps, once you're listed with one center, you can double list at another as well. Where there's a will, there's a way! Here's a link that you can check for other centers that may be near you. srtr.org/transplant-centers...

[HipHopQueen in reply to Darlenia]

yeah I’ve thought about listing with two but since the one center went off line then back online my doc says leave that center alone because they’re just starting up their program again. I honestly thought about applying for jobs near good centers. But I’m not done with my degree for a few years. It’s just bad timing.