I'm writing to release some tension. I decided that this forum is good for the soul (had decided that long ago). I'm off of work tomorrow I get to spend some time in the kingdom but deep in school writing world. I feel like work and school are my best distractions. That and a good plate of delicious food. Spaghetti with vodka sauce, Mac n Cheese, my mom's homemade peach cobbler with the lightest flakiest crust known to man or woman. Today I'm just being thankful. Thankful of course for life, but thankful for the little things and my family and friends. It's sometimes hard to get through a day, an hour, but those little things really help. Someone on here said that they would be doing dialysis and wonder how they got there. I haven't started yet, but I feel the same way. So much going on healthwise right now, I actually feel fragile as a glass pitcher on its way to the ground, health is such a fragile thing. If I were a real queen how would my life be different, well for one I'd dress a heck of a lot better. But I'd sell all my jewels and pay a bunch of bills, but I'd also make life more comfortable for people doing dialysis. I wish I could take my crown off pluck each jewel out and sell it each one for a good cause. It's hard sometimes to get out of a bout of sadness that's why I think we should do more of making one another smile. Back to writing. May my crown bring a smile to your face!
The Queen is off Friday.... whose watching... - Kidney Dialysis
The Queen is off Friday.... whose watching the Kingdom?
Sorry you are feeling a bit down HipHopQueen. Vent all you like!! I for one enjoy reading your posts, they always bring a smile to my face. You are slightly crazy but I love that 🤣🤣. Since you mentioned "brightsiding" I have been using that as my mantra! For every negative I face, I have to come up with at least two positives. Before when I was feeling down I would constantly think negative things until I felt overwhelmed. But its working. My company has closed for 2 weeks holidays and everyone is away abroad for two weeks. As im on dialysis i am stuck in "sunny" Scotland. I did feel down as I thought if anyone deserves a holiday its me 😁😁 but im using the time to catch up with chores and get my life organised. Then I will slap on a bit of fake tan to make me look as if I've had a break 😁. I have just been out for a long walk with the dog. Yes its raining but 4 weeks ago i would have just been sitting vegetating on my day off as I was tired. Its mall steos and small changes that make a difference. Keep going i have never met you but i know you are a strong, vibrant woman. Big hugs from Scotland and to anyone else who is having a bad day xxx
small steps 🙄
When I get down, I try to do the gratitude thing and things eventually turn. Sometimes, it's easy to forget that there are "some" positives in out lives. I have back problens and cant walk far, but I can walk with a walker and will drag myself out for mile walk a few times a week. I just found out that I have a very large hiatal herniw
Exactly Drmind. None of us want to be on this "journey" however a little positive attitude can make a real difference. I hope you have a good day and all the best with the hernia.
Oops hit "reply" by mistake. I have a very large hiatal hernia and because of my age, surgery is not possible. I spent a week feeling sorry for myself and worrying about what can happen. The gastro nurse was not helpful and kept bringing up my age and was so negative. I decided I cant chsnge my age or this wretched medical problem, so I decided to check into how I can help myself. I am so grateful that I can read and educate myself. I am so grateful that I'm assertive enough to get a new gastro doctor. And, through reading and good consultation with a new doctor. I'm more at peace on managing this condition.
BTW it's a very large hiatal hernia: more than a 1/3 of my stomach has pushed into my esophagus. While there's concerns about rupture and strangulation, im grateful to have a handle on it and will do my best to follow guidelines.
BTW, I was more than shocked to get this diagnosis as it was something I had never heard of or thought could happen. I also found out that its likely years of silent reflux (something else I never heard if); probably caused it.
Oh well, I am sad to find out I developed yet another medical problem but
I'll just thrown it on the pile and be grateful that I can try to manage it. Its difficult to control our bodies when these things happen, but we can control our minds. Be grateful for that
Best to everyone
I love your warrior spirit, drmind! Keep strong!!!
Just throw it on the pile..that did make me laugh. Yip thats the attitude I think I have now too. Keep going Drmind.
*We can control our mind* So very important. HipHopQueen with "brightsiding" recommends this too. May we all live each day with appreciation and awareness.
Yes, it's like we can overcome if we think positive. It's odd but once in awhile I encounter age discrimination at the doctors offices. I'm 89 and most of the time, I feel 65. I'm as active as I can be, like to plan ahead, and enjoy lots of things. But, when I go to some doctors, I get the look like why are you asking for options. If I have pain or discomfort and ask about it, they say "well, you're 89." I usually have to say "yes, I'm 89, but I don't expect to have pain. Is 89 a new diagnosis?" Honestly, I want to live as long as life permits me to and I'd like to do that as healthy as possible.When I saw The gastro nurse to find out about that wretched hiatal hernia, she immediately said "you're 89. You cant have surgery" and she repeated it several times. I never asked for surgery. I asked if had options as I mentioned before I was shocked and surprised at this weird diagnosis. Like what is it and whst do I do. She was so wrapped up in my 89 that she never once told me what to do or not do. I have since gone to a new gastro doctor and he was so informative and knowledgeable. He also explained that the surgery for such a large hernia as mine is very long for ALL ages and carries with it lots of risks.
Peace
Ageism sucks. It’s part of the reason my mom had to stop working. She’s 75. Sharp as a whip and deserving of respect. Makes me mad. I’m glad you got a new gastro. Happy you have someone that respects you.
How sad for your mom. Wow, At 75 you're just starting to appreciate all the experience you've had and to use it.
I worked until I was 82 and sorry I stopped. Once I did, I started to have all sorts of medical problems. You know it's so weird to experience ageism. We only want to "be." I dont expect extraordinary service or treatment. I want my health problems looked at and not my age.
I love your posts and especially love your dedication to your education.
I love your attitude. I'm in my 70s and have experienced ageism too. I totally agree that health professionals need to treat the health issues, not not avoid addressing them because of one's age. Age truly isn't a diagnosis. So very glad you're fighting back. Because I try to do that too. Thanks so much for putting the situation into words so well and inspiring us to take action.
Hey Ziggy! My husband is from the east highlands of Scotland and I my heritage us 100% Scots, from the western isles including Skye. I appreciate your attitude. Yes, mantras are good! Whatever helps us move forward with a brave heart.💪❤️
Hi BlueSkyAngel
You both come from lovely parts of Scotland 😍😍😍. I live in Glasgow now but was brought up in the Trossachs. Sir Walter Scott and Rob Roy territory 😁😁...one thing about us Scots, is that we are bloomin stubborn. Keep strong my friend 👍👍👍👍
Hey there, Queen! I always enjoy your posts. You are a blessing to the world. Always remember this. Yes, we could contemplate how we got here. In my case it was because I inherited my dad's genes for pkd. I am going through neck and shoulder pain the past few weeks that has brought me to tears. I just try to motor on and give thanks for what is good. My mantra since going into failure is whatever is good, whatever is true and whatever is beautiful is where I want to focus my energy. Have a beautiful day, Queen and Warrior!
Hey, reading this, a thought popped into my head, wondering where PKD came from Originally. I got it from my mom, who's maiden name was Skinner, supposedly of Scots-Irish decent of some sort. Do you think PKD originated in those areas? Not sure I've ever seen anyone mention this in a post, though I could've missed it.
Oh, Ok, I just found this: pubmed.ncbi.nlm.nih.gov/269...
Interesting find, Ron. Mine can be traced to a woman in Scotland because so many descendants have the disease. This study was done a few years ago by a nephrologist in the region.
Thanks Blue Sky. I love a good mantra and yours is awesome!! Keep it in your mind.
When is the right time?
I am my husband’s care giver and I don’t normally share
5 months on dialysis
