MPN anti-inflammatory diet sheet

[LucyAshtonGeering]

As there’s been lots of discussion on here about anti-inflammatory diets, I thought I’d post this MPN diet sheet. It was developed for the NUTRIENT trial, a US trial which looked at the impact of diet on MPNs. The diet was made available on the We Are MPN website for any MPN patients, not just trial participants, to try out themselves. I recently noticed that it’s not available there anymore, but I’d previously typed it up (to fit on A4 and stick on my fridge! The first line in the Beverages section always makes visitors LOL).

So if it’s of any interest or help to anyone, here it is. It helps my fatigue, when I stick to it! I’m trying to find out if there are any results available from the study yet and will post anything I find.

[ksos]

This is great, Lucy -- thanks! I've looked for results from the study but haven't been able to find anything. Hope you have more success!

Kim

[katiewalsh]

Thank you Lucy!! My fatigue is really bad now. When yours diminished we’re you only eating things from this list? Do you remember how long it took for results? I too tried to find out about this trial & couldn’t so really appreciate this. Do you know why they don’t recommend cow’s milk?

Thanks & be well. Katie

[LucyAshtonGeering in reply to katiewalsh]

Hi Katie!

I’m sorry your fatigue is so bad. Mine does improve when I keep to the diet - I notice it within two days either way, when I do and when I don’t stick to it! If I keep to it it means I can forego a daily 2 hour nap on top of my 9-10 hours sleep at night, so I try to stick to it.

The milk thing is tricky... you’ll notice there’s no soya of any form on it - so no soya milk - and no oats either, so no oat milk. I’ve been having brown rice milk, which tastes quite pleasant but separates in tea and coffee (decaf, of course 🙄😂). Goat’s milk is possible, if you like it, and all the trendy nut milks. I’m afraid I don’t know why cows’ milk products aren’t allowed, I’m guessing they provoke inflammatory markers? But I’m not scientific enough to know why or how.

Keep me posted on how you get on,

🧡 Lucy

[Hidden]

Thanks Lucy. More definitive than avoiding all processed foods containing sulphites and nitrites.

[LucyAshtonGeering in reply to Hidden]

Haha! Yes, it’s more specific than that 🥴

[Bluetop]

Thanks Lucy! I had tried to keep abreast with the trial and particulalry its findings but couldn't find it. It will be great to have something which has been properly tested.

[LucyAshtonGeering in reply to Bluetop]

Yes, won’t it!

[Melaniem59]

Thank you that’s brilliant 😊

[Stevesmum42]

Thank you Lucy. That's really helpful

Regards Sandy

[Garstongal]

Thanks so much for posting this. I’ve been reading bits of information here and there, but it’s great to see it so clearly set out. It also answers a lot of queries that I’ve had about what is/is not beneficial for an anti-inflammatory diet.

[LucyAshtonGeering in reply to Garstongal]

You’re welcome. I was getting mired in swamps of unsubstantiated general anti-inflammatory diet info, and was so happy to find this one specifically geared towards MPN patients.

[Osteomyelio]

Thank you for posting. I had been told no alcohol

[Paul123456]

Thanks. Surprised tomatoes not listed. Pleased to see red wine on the approved list!

Best Paul

[Melaniem59 in reply to Paul123456]

Me too, why not tomatoes?

[Lab-Rat in reply to Melaniem59]

Tomatoes are on the list with Aubergines under Vegetables

[Melaniem59 in reply to Lab-Rat]

Ah Thankyou 🍅

[LucyAshtonGeering in reply to Paul123456]

Tomatoes are on there, they’re next to aubergines. The only nightshades which aren’t allowed are potatoes and sweet potatoes - don’t ask me why though..!

[Anag]

Thanks for posting, Lucy! I’ve seen this anti inflammatory diet and other similar ones a few times in Internet. I believe there have been new studies regarding some of the foods above, but it’s basically an excellent diet. According to my extensive diet study, there are a few foods on the list, with which I don’t agree on. Ie. It is known that tuna fish has tons of mercury, which especially caused thyroid and brain inflammation and triggers the autoimmune system. One blue fin steak has the same amount of mercury of up to 6 vaccines. Mackerel and all big mouth fish are not good for the same reason. Beans must be properly prepared, else they are difficult on the intestines causing flatulence. Soaked for 4-8 hours, cooked once for 15mins, rinsed, then cooked normally. Organic greek yogurt is a no-go if it’s from cows milk. Cow’s Milk from Holstein cows is difficult to digest for people, goat and sheep milk easier. Soya (mentioned in the chat) is allergenic and usually GMO. GMOs should be left out of any diet. Asians ferment Soya. It is then easier on the system. Same with grains. Sour dough breaks up the gluten. personal sensitivities should always be taken into account. Whichever diet you try, it should be your diet, minus your sensitivities and allergies and avoiding as many additives, chemical fertilizer and pesticides as possible. Palm oil is also seen as difficult for the system as are cashews. I’d love to hear feedback from others who have tried this!

[MPort in reply to Anag]

Wow it is so hard to know what is right to eat isn't it. Thanks for sharing your research and findings. I will annotate the anti inflammation sheet above. I eat a lot of cows yugort thinking it is good for gut bacteria. Really appreciate these anti influence food info.

Mairead

[Anag in reply to MPort]

Dear MPort, There is hardly any more bacteria in any yogurt we buy. As soon as the yogurt is pasturized, all of the bacterias die. Some yogurts have added bacteria, Lactobacillus. The best way to get these for the gut is real fermented sauerkraut, which is eaten raw. I make it myself, ferment it for 2 weeks and then put it in jars in the fridge. I eat 2 tablespoons a day. Its like taking a whole bottle or package of bought lactobazillus bacterias from the pharmacy (which you'd actually be paying a fortune for in comparison). Kimchi is also great, salt pickles, anything pickled, the experts are split on Komubcha. fermanted olives are great too. feeding you gut bacteria is also possible with all kinds of fiberfilled foods. Garlic too. easy to search up. Keeping the darm healthy is the #1 thing for our general health, immune system and eventually, our illness. As soon as we have inflymmation there, it has an impact on our illness. I'm not sure exactly how, researchers are already on that track. We will know more in a year or two. I take that for granted and keep ma diet. BTW, its so easy to make your own yogurt with cultures!!! it also tastes so much better. Best stored in glass and not in plastic! We should all stay away from plastic, which is full of xenoestrogens and phthalates that leech into the foods. If you are buying any drink in a plastic bottle with the number 3, 6 or 7 on the bottom, don't. Those are the worst for our health.

[MPort]

Thank you very much Lucy. I have wanted to see a table like this for ages. Will now aim to head towards eating or not eating the foods that help or hinder inflammation.

Mairead

[Anag in reply to MPort]

Go for it MPort! This can only help. We are right behind you!! : )

[MPort in reply to Anag]

Wow, than you Anag. Great encouragement. And in depth knowledge. Much food for thought here and a pathway to make very important changes to diet. I will get my ducks in line and begin. I used to make yugort and can start again with organic milk maye sheeps or goats. Our local organic food store sells sauercraut and kimchi so I could start with this. Thinking and planning. Thanks again. Mairead

[Anag in reply to MPort]

You are very welcome! Have fun with this!

[Hearingu]

Thank you ,that is extremely kind as helpful.🤗