Experiences with

Hydroxycarbamide

I am wondering if this is due to the illness progressing, the increase in the dosage and/or whether the composition of the Hydroxycarbamide has changed - the tablets are noticeably different in this current prescription.

Is it possible after 5 years on low dose 500 daily to become intolerant to Hydroxy? Platelets only down to 700s but am reluctant to increase while not feeling great. My GP thinks I have symptoms of anxiety but I also have an under active thyroid so it’s not clear cut. The thyroid issue is the reason

I presently take 1000mg hydroxycarbamide and 75mg aspirin daily. My platelets sit in the range 450 to520.

Hi Does anyone know if you are taking Hydroxycarbamide it is advisable not to take Ibuprofen or anti inflammatory I am thinking I have read this somewhere.

I’ve been taking Hydroxycarbamide for the past 2 years without any problems (2 x 500mg daily one morning and one evening) but for the last few days I’ve been experiencing diarrhoea and stomach cramps each afternoon after lunch (different everyday) So my question is can this happen after taking Hydroxycarbamide

Currently taking hydroxycarbamide and aspirin. Does anyone take Methylated vitamin?

All, Even though I'm on hydroxycarbamide my Haematocrit level jumped from 0.45 to 0.5 in the space of ten weeks. Has anyone else had a sharp rise.

I was diagnosed with ET in November 2019 after being diagnosed with a blood clot on my brain and JAK 2 + result, I take 500mg of Hydroxycarbamide daily, however my platelets are steadily rising and are now at 450, my haematologist has said that we may shortly have to increase the dosage, this has left

I am worried that the same will happen when taking Hydroxycarbamide. Has anyone else had a similar experience.

Hello friends, In November last year I started Hydroxycarbamide 500 mg capsules and, with any new medication, I thoroughly read the packet leaflet. This is what the first leaflet said. 'DRIVING AND USING MACHINES' 'Your ability to react may be impaired during treatment with Hydroxycarbamide.

Has anyone else developed this autoimmune disorder or is it a random development that has nothing to do with my pv or Hydroxycarbamide?

I have ET with Jak2 following an appointment with my haematologist on Monday, I am due to start Hydroxycarbamide 500mg on Monday, due to age as my platelets are only 786, the fatigue I have is already unbearable, would I be better to take at night or in the morning?

HI all- I’ve been asked by my haematologist to switch from hydroxycarbamide to interfernon. I’m quite anxious due to the side effects as have tolerated hydroxy quite well. Is anyone else on inter and can help please

I was diagnosed with PV a year ago and was prescribed 1x500mg of Hydroxycarbamide daily. About 12 weeks ago, as my platelets were too high, I was told to take 2 at weekends. Today I was told my platelets were too low and to stop taking Hydroxycarbamide.

Corrected heading!!!

I am wondering if anyone else who is taking Hydroxycarbamide has a high Bilirubin reading. I have , what I think is too high which fluctuates within the 30’s and sometimes into 40’s/umolL Serum Bilirubin.

hi, I’m recently diagnosed with ET and on hydroxycarbamide. I’m travelling to the other side of the world for six months and will se doing it every year while I can. My question is regarding changing the times I take the meds. I was told to take it at the same time every day and with food.

Hi all, I've beed recently diagnosed with Essential Thromcythemia and have been presented with two treatment options, I guess it will all be around side effects and was looking for information on peoples experiences. I understand it will come down to my personal reaction, has any one been on both? I'm

Treatment for ET hydroxycarbamide responding well and platelets reduced from 1300 now down to 807 originally had steroids for crohns but will shortly be starting treatment with “biologics”after consultation between both consultants Haematology and gastroenterology .feeling rather anxious about starting

Hi Friends I have been on Hydroxycarbamide for over 3 year's my balance is so bad Haemotoligy Consultant says go back to GP who I told before. anyone have or had same issues. I have had a brain scan but nothing found. I am also on Atorvastatins and Blood Pressure Tablets and Clopidogrel.