Spleen pain?

[lizzziep]

Yesterday (Monday) I was vomiting from 5 am, after a while there was nothing to bring up so I was heaving on am empty stomach. I am prescribed anti sickness tablets with every prescription but haven’t needed them until now. Previously I have managed the nausea with Gaviscon. I brought the second one straight back, but had another later and I did stop heaving. However I still felt very sick, but I managed to keep water down after that.

I slept on and off a lot yesterday. Today when I got up I managed to get a shower after which I felt slightly better as I had also been sweating a lot. I had a small slice of toast which I kept down and a small amount of soup at lunch time. I’ve been sipping water a lot too.

I am presuming the cause of the vomiting is medication, I haven’t been In close contact with anyone for several days previously and had the same food as my husband and he is ok.

I did expect to ache a bit today but the pain in my left side (spleen area) is quite bad. Has anyone else had this? I phoned the clinical nurse and she just said it would go off, it hasn’t lessened at all, and it hurts even more if I cough. I feel as though I’ve done ten rounds with a heavyweight boxer!

Any advice would be appreciated.

[Scottishterrier]

Hi lizziep how you feeling today would get in touch with your consultant or is your clinical nurse mpn trained because of not and you are still getting pains from spleen area and still being sick your medication for your mpn will have little effect because with you being sick you will be bringing them back up but hopefully the antisickness tablets will do the trick if not phone your consultant especially spleen area pain get better soon Stay safe

Scottish terrier

[hunter5582]

While the nausea may be a medication side effect, I would not assume that the spike in this issue is due to the meds. The pain in the upper left side is concerning. It is a symptom associated with splenic infarction or rupture. Note that nausea can be a part of issues with the spleen as well. Suggest that you treat this as an emergent issue and seek immediate assessment to rule out a more serious issue. It would be my better to find out that this is not something serious than to find out the hard way that it was something that should not have been ignored.

Hopefully this will turn out to be a tempest in a teapot. Best not to assume that it is. This is an issue that requires a response from a MPN expert provider who knows not to fob off potential issues with the spleen in the context of a MPN.

[lizzziep in reply to hunter5582]

Thank you, if it’s still as painful tomorrow I’ll phone the clinical nurses (again) it’s evening here now so there won’t be anyone to speak to who knows anything about MPN’s until tomorrow.

[hunter5582 in reply to lizzziep]

Hope this really is a minor kerfuffle. Please do let us know regardless.

[jointpain]

I hope you have been seen by at least a doctor by now. Your spleen is very vulnerable, especially with Myelofibrosis. My wife lost hers after it burst nearly seven years ago. Please go to an A and E at your local hospital. Hopefully it's nothing but after my wife's experience when she was within minutes of dying, don't chance it. All the best.

[Inca]

I did send a reply which wizzed into the ether,really hope you are soon better.I get spleen pain usually after bending or reaching up,cupboards ,wardrobes etc.I get the vomiting feeling too & bring up bile …….not as bad as you obviously,so sending the very best for your recovery.I am still on Jakafi,momelitnib has been mentioned my consultant said there are often bad side effects,think I will stick with the blood transfusions.Big e hugs get better soon.Sally 💕

[DJK12]

As everyone else has said it's important to get this assessed very soon . Problems with the spleen can cause left sided pain (especially with the pain radiating via the vagus nerve to the left shoulder), vomiting and a high temperature. If your temperature gets high ie over 38' or whatever you presumably have been warned about (I am on ruxolitinib and was given a leaflet warning when to get help and a direct number to haematology) you certainly should get immediate help. I had a splenic infarction and had similar symptoms though not such vicious vomiting.

[Cja1956]

I agree with the others. Do not delay. I had a splenic infarction years ago. I had pain all day but I ignored it and ended up being rushed to the hospital with the worst pain I ever had . I thought I was having a heart attack. They kept me for 3 days. I didn’t have nausea so that is even more concerning. I hope by the time you read this, that you’re in the ER getting treated.

[Amethist]

As you are in uk give 111 a call and discuss with them .

[Phil1955]

I lost my spleen in. 2014 mine was killing off my red blood cells

I was in agony prior after a short cycle ride bent over couldn’t stand up straight

I’d go to your haematologist soon as or A&E

[clematis26]

Very sorry to read this - and hope you are feeling better soon....perhaps call your doctor.... take all care and thinking of you, Sue

[FixedUpNice]

Very similar to my last several days. But I can't tell if I caught a nasty bug, or if this is spleen related. I take Oxycodone for the pain so it's hard to gage the full extent of the pain. I hope I'm done being nauseated and throwing up. Like you said, there's nothing to throw up so it's a lot of dry heaves, and my abdominal muscles are so tired and sore from that. I was finally able to keep some food down yesterday and it seems to have digested before the nausea and heaves came back. But that's the first food item in 3 days. I'm guessing I had/have flu, but it's so hard to tell with the overlapping symptoms of MF. I have an office visit with my onc tomorrow, if I make it. Might get a blood transfusion if my HG is low enough. I certainly hope so, I feel like trash. He has one scheduled anyway.

I hope you feel better soon. Sending good vibes and solidarity.

Will-

[lizzziep in reply to FixedUpNice]

Isn’t life fun!

[Minify]

I agree with others here and hope you’ve had it evaluated. That type of pain is a warning sign and should not be ignored. An ER would be able to do the appropriate tests to rule out anything serious. Good luck!

[michael123]

are u on meds for your mpn?

[lizzziep in reply to michael123]

Yes, Momelotinib and hydroxy for post ET MF

[Doxy46]

One of the great things about this forum is that we care about each other. Lizzie, it has been a day since your post. I truly hope you have received medical care by now. Please let us know how you are doing.

[lizzziep in reply to Doxy46]

Yes, I've spoken to the senior clinical nurse and am also feeling a lot better, thannk you.

[Inca in reply to lizzziep]

Pleased to see you are feeling better.MF is so much harder to cope with,some days I just cannot get going…that’s not me .So keep strong Lizzziep🥰

[lizzziep in reply to Inca]

Thank you, I know what you mean, I think I could do with a new set of batteries!

[Inca]

Absolutely!!😂

[Mieshie]

sorry for your pain and struggle. You are not alone. Sending best wishes for answers and relief soon.

[dnaleor]

Hi, I had the same symptoms in 2023.

I should go to your doctor to explain.

[lizzziep in reply to dnaleor]

Thank you, fortunately I am feeling a lot better now, although I don’t think I could have felt worse!

[dnaleor]

Great, with me it was similar. But my spleen was pushing on my stomach. Especially in the morning. Keep well ❤️