Pegysys

[GRATHNOR]

Hi. I'm suffering from essential thrombocythemia for about 20yrs now. Originally I was on interferon injections which seemed to work. Got switched to Hydrea about 12 yrs ago. Only last year my right foot broke out with very painful ulcers and I was getting skin cancers on my face and ears. Dr took me off Hydrea and everything cleared up. A month later my oncologist put me on Pegysys, 135mg a fortnight. After 2 weeks the pain in my shoulders, wrists and hips was crippling me. Dropped the Pegysys dose to 67.5mg a fortnight.

Pain is still there but not as bad. At least I can get around now. Has anybody got an alternative to Pegysys?

Thanks for listening.

[Norwich1 Moderator]

MPNs are rare blood cancers. You might find more help if you post here: healthunlocked.com/mpnvoice