Experiences with

Interferon

Hi all I managed to source some interferon thankfully as I'm in Ireland and shortage is still bad I have been changed to 135mg a month now instead if 9omg every 2 weeks with this shortage I am due to give this injection tonite but I have a question I'm all week with a head cold as in cough not chesty

Hi has anyone been able to source interferon from any pharmacy in Ireland as I'm off now as in shortage again platelets 964 only on aisprin hospital are happy enough to keep me monitored for now tks to everyone in advance

Hi does anyone know if interferon is still as hard to source as it was as my pharmacy is finding hard to get it in again 🤔Tks to all in advance .

HI all- I’ve been asked by my haematologist to switch from hydroxycarbamide to interfernon. I’m quite anxious due to the side effects as have tolerated hydroxy quite well. Is anyone else on inter and can help please

I have read that interferon can cause heart damage, I have not had heart fluttering or high blood pressure until recently, not sure if an interferon side effect. Anybody else had this problem ? Interferon otherwise is brilliant for me in keeping platelets controlled.

Hello, I am very grateful for this forum. By reading the many posts I have gained much better insight into the disease. I was diagnosed with PV 2 years ago. I am 52 years old and have no history of thrombosis. As a result I belong to the low risk group and I only started with aspirin and phlebotomy.

I am about to start week 9 of Pegasys Interferon. The first week went as suspected with flu like symptoms, then every week after the side effects got less and less, until week 7. Week 7 had me vomiting for hours after the injection, but subsided on its own.

Would I be considered too old to start an interferon drug?

It’s only now I feel I’ve reached the absolute bottom & am in despair of what to do that I’ve come across articles that show a possibility that there may be a connection with commencement of interferon treatment.

She mentioned Jakafi or Interferon. I have looked into both and after reading about weight gain being a very common side effect of Jakafi, I am worried about starting this treatment and was wondering about Interferon? Has anyone got experience of this drug or both? Thanks

There a publications stating that this mutation could lead to interferon resistance. I would very much appreciate your thoughts on this.

Hi and tks to all in advance for replying to my mess I just wanted to know what people's opinion is on this I'm off my interferon since Oct due to shortage so all I am on is 150mg of aisprin and I have been doing fine since thankfully I had an appointment with my hemo nurse a week ago and bloods

for more than 10 years after interferon discontinuation," Professor Kiladjian said.

Hi all does anyone know if the shortage of interferon is improving as my nurse told me it's getting a bit easier to source it I am in Ireland

I can't take interferon so what could I ask the Doctor?

Hi can anyone tell me the difference between hydrea low dose to interferon as I am possibly switching from pegasys interferon to hydrea in the next week or so because of shortage thanks all

Hi all, I've just had a call from the hospital pharmacy and apparently I'm being transferred to interferon alpha... I was on Pegasus. I'm just wondering if anyone can explain the difference?

Hi It was suggested today that interferon isn't the right drug for me. The symptoms / side effects are heightened rather than improving and my platelets are decreasing in very small amounts. It's being discussed by a panel who will get back to me in a week.

Following a diagnosis of mild Sjorens my consultant is recommending another jak2 allele burden test ( yes in uk you can now ask for another one rather than be left guessing) and a potential break from Peg. My concern is that if heamocrit numbers start rising again, it takes so long for Peg to 'work'

Are all this related to interferon side effects ? Anyone gone through this ? I am worried Thanks in advance