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Interferon

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A follow up to my post about switching from hydroxyurea to interferon. Questions about switching to besremi or anagrelide.

I had a phone consultation with my hematologist yesterday and asked him about switching from hydroxyurea to interferon. I really appreciated peoples replies about their experiences switching from hydroxyurea to interferon.
I had a phone consultation with my hematologist yesterday and asked him about switching from hydroxyurea to interferon. I really appreciated peoples replies about their experiences switching from hydroxyurea to interferon.
Octopedes profile image
Octopedes
in MPN Voice

Meralgia paraesthetica?

Does anyone else on interferon also suffer with this? Mine only comes on when I’m out walking and I didn’t have it before I started on interferon. My right leg goes numb in the upper thigh area and I lose sensation.
Does anyone else on interferon also suffer with this? Mine only comes on when I’m out walking and I didn’t have it before I started on interferon. My right leg goes numb in the upper thigh area and I lose sensation.
Jonnymitts profile image
Jonnymitts
in MPN Voice

Interferon injections

Hi folks, Wanted to know,am about to go on interferon injections as my iron count is 3.4 & ferritin count is 16. I feel fine but wondered how the injections are going for those taking it and what side effects are mostly common. Many thanks 😊
Hi folks, Wanted to know,am about to go on interferon injections as my iron count is 3.4 & ferritin count is 16. I feel fine but wondered how the injections are going for those taking it and what side effects are mostly common. Many thanks 😊
keviekev profile image
keviekev
in MPN Voice
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Raising Awareness for Polycythemia Vera is Key in Increasing Overall Survival

At least in this study for patients on interferon long term, there was no excess mortality from polycythemia vera, whereas the other patients who did not receive interferon, although they did not have access early mortality, they did have access late mortality, suggesting that interferon can put patients
At least in this study for patients on interferon long term, there was no excess mortality from polycythemia vera, whereas the other patients who did not receive interferon, although they did not have access early mortality, they did have access late mortality, suggesting that interferon can put patients
Manouche profile image
Manouche
in MPN Voice

Interferon alpha

It has been suggested that I start on interferon alpha. Does anyone have experience of interferon alpha. Any thoughts or comments would be appreciated. Thanks
It has been suggested that I start on interferon alpha. Does anyone have experience of interferon alpha. Any thoughts or comments would be appreciated. Thanks
Paul1214 profile image
Paul1214
in MPN Voice

Anyone on Interferon for 5 years or more??

I take HU for PV, 72yo, good control so far, but I am wondering if I should switch to Interferon for the possible long term advantages? Any comments, both good and bad would be appreciated. Best to all.
I take HU for PV, 72yo, good control so far, but I am wondering if I should switch to Interferon for the possible long term advantages? Any comments, both good and bad would be appreciated. Best to all.
Meatloaf9 profile image
Meatloaf9
in MPN Voice

Pegasys - Withdrawal side effects in the days prior to injection

The only explanation I can think of for this is that they're a sort of withdrawal response, as the level of Interferon in my body is slowly reducing in the few days leading up to my next injection.
The only explanation I can think of for this is that they're a sort of withdrawal response, as the level of Interferon in my body is slowly reducing in the few days leading up to my next injection.
cgcheets profile image
cgcheets
in MPN Voice

interferon and psoriasis

morning I have an appointment with haematology at St James hospital Leeds this week to discuss changing from hydroxia to interferon. Comments have already been made that there is a risk of more side effects due to age (71) and that it can effect psoriasis.
morning I have an appointment with haematology at St James hospital Leeds this week to discuss changing from hydroxia to interferon. Comments have already been made that there is a risk of more side effects due to age (71) and that it can effect psoriasis.
2212df profile image
2212df
in MPN Voice

Peginterferon with Anagrelide?

Until about 6 mths ago I was taking a mixture of Hydrea and Anagrelide but it was no longer working so well so I switched to interferon. I’m on the max dose of 180 weekly but platelets are still 650ish and as an active person I’m struggling with the tiredness and fatigue.
Until about 6 mths ago I was taking a mixture of Hydrea and Anagrelide but it was no longer working so well so I switched to interferon. I’m on the max dose of 180 weekly but platelets are still 650ish and as an active person I’m struggling with the tiredness and fatigue.
R_Watson profile image
R_Watson
in MPN Voice

AE's on interferon

https://mpn-hub.com/medical-information/comparing-responses-of-pegylated-interferon-alfa-and-hydroxyurea-in-patients-with-et-and-pv
https://mpn-hub.com/medical-information/comparing-responses-of-pegylated-interferon-alfa-and-hydroxyurea-in-patients-with-et-and-pv
EPguy profile image
EPguy
in MPN Voice

Hepatitis A Ab positive due to interferon? Should I concern it and how to treat it?

Taking interferon 0.5ml/week since last mid August, I had blood test recently and found Hepatitis A Ab positive. other issues associated with taking interferon include low WBC(2.6 vs. 3.4), low Neutrophils (1.0 vs. 1.4) and high AST (45 vs. 40), ALT(58 vs. 44).
Taking interferon 0.5ml/week since last mid August, I had blood test recently and found Hepatitis A Ab positive. other issues associated with taking interferon include low WBC(2.6 vs. 3.4), low Neutrophils (1.0 vs. 1.4) and high AST (45 vs. 40), ALT(58 vs. 44).
Sam2022 profile image
Sam2022
in MPN Voice

Questions about switching from hydroxyurea to interferon

From my understanding, which is very limited, interferon can actually cause remission which is what I would like. From the little bit of reading I’ve done I understand that I would have to stay on a dosage of hydroxyurea while the interferon begins to take effect.
From my understanding, which is very limited, interferon can actually cause remission which is what I would like. From the little bit of reading I’ve done I understand that I would have to stay on a dosage of hydroxyurea while the interferon begins to take effect.
Octopedes profile image
Octopedes
in MPN Voice

Peg jab

It was a breeze although the only slight problem encountered was wrenching the caps off the needle and the interferon containers. They were screwed on very tightly.
It was a breeze although the only slight problem encountered was wrenching the caps off the needle and the interferon containers. They were screwed on very tightly.
gilded profile image
gilded
in MPN Voice

Besremi

Is Besremi also an interferon medication? In Australia we only have access to hydroxyurea or Pegasys.
Is Besremi also an interferon medication? In Australia we only have access to hydroxyurea or Pegasys.
Phantasia profile image
Phantasia
in MPN Voice

Pegylated Interferon

Hi I would like to ask if it is ok to take the Peg with a throat /viral infection, I am wary of skipping my fortnightly dose (45mg) LFT -ve Thankyou very much for any advice Bobbie
Hi I would like to ask if it is ok to take the Peg with a throat /viral infection, I am wary of skipping my fortnightly dose (45mg) LFT -ve Thankyou very much for any advice Bobbie
Bobadog profile image
Bobadog
in MPN Voice

Interferon and alcohol interaction

I've never drunk heavily (would drink on average twice a week, and up to 2 glasses of wine or a few beers per time) but since starting interferon, even drinking just 1 glass of wine is unpleasant! It makes me feel lightheaded, nauseous and as though the room is spinning.
I've never drunk heavily (would drink on average twice a week, and up to 2 glasses of wine or a few beers per time) but since starting interferon, even drinking just 1 glass of wine is unpleasant! It makes me feel lightheaded, nauseous and as though the room is spinning.
cgcheets profile image
cgcheets
in MPN Voice

Side effects of Interferon

i have just had my 5 th weekly Interferon Injection . having weened off Ruxolitinib . I thought by now the side effects of nausea dizziness fatigue and feeling depressed would have improved but they seem to be getting worse each time and not better .
i have just had my 5 th weekly Interferon Injection . having weened off Ruxolitinib . I thought by now the side effects of nausea dizziness fatigue and feeling depressed would have improved but they seem to be getting worse each time and not better .
Heather270240 profile image
Heather270240
in MPN Voice

Bmb confirms ET mpl

Heamatolgist can only prescribe interferon HU Anagrelide not suitable for me. Referral for Professor Harrison done,fingers crossed that won't take too long. H
Heamatolgist can only prescribe interferon HU Anagrelide not suitable for me. Referral for Professor Harrison done,fingers crossed that won't take too long. H
ciye profile image
ciye
in MPN Voice

Interferon possible side effects

I am currently undergoing tests to rule out other causes but wondering if it may be the interferon causing this?
I am currently undergoing tests to rule out other causes but wondering if it may be the interferon causing this?
Stay05 profile image
Stay05
in MPN Voice

Inteferon benefits

While my platelets refused to budge much on Interferon since stopping it the joints in my hands and feet have become painful my hips and lower back ache. My skin is much dryer and nails more brittle. I have a colonoscopy booked next week once done I will restart the dreaded HU.
While my platelets refused to budge much on Interferon since stopping it the joints in my hands and feet have become painful my hips and lower back ache. My skin is much dryer and nails more brittle. I have a colonoscopy booked next week once done I will restart the dreaded HU.
ciye profile image
ciye
in MPN Voice
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