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Interferon
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Interferon
Hi everyone im on 90mg
interferon
every second week since Feb this year platelets were 1110 came dwn to 916 quick enough but haven't really moved dwn much since actually they went up again and now they are 876 is this the way for any of ye as it seems fairly slow to me even though my hematologist
Hi everyone im on 90mg
interferon
every second week since Feb this year platelets were 1110 came dwn to 916 quick enough but haven't really moved dwn much since actually they went up again and now they are 876 is this the way for any of ye as it seems fairly slow to me even though my hematologist
VTAR24
in
MPN Voice
21 days ago
Interferon
I'm about to start
interferon
treatment for ET. I need to learn to inject myself. I'm a bit overwhelmed right now and concerned about side effects. Will I need time off work? Any helpful hints on how best to manage?
I'm about to start
interferon
treatment for ET. I need to learn to inject myself. I'm a bit overwhelmed right now and concerned about side effects. Will I need time off work? Any helpful hints on how best to manage?
Otis23
in
MPN Voice
2 months ago
Interferon with PV JAK2/DNMT3A
I've been on
Interferon
(90 and then 135mcg) since beg September last year and I wonder if DNMT3A may be causing
interferon
resistance.
I've been on
Interferon
(90 and then 135mcg) since beg September last year and I wonder if DNMT3A may be causing
interferon
resistance.
Fivecatsandcounting
in
MPN Voice
17 days ago
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Started Interferon
I’m hoping that I’ll soon be able to drop the hydroxy and just continue with the the
interferon
as it feels like overkill taking both simultaneously. After the
interferon
shot had a few flu like symptoms which quickly passed but I have been feeling extremely fatigued. More so than usual.
I’m hoping that I’ll soon be able to drop the hydroxy and just continue with the the
interferon
as it feels like overkill taking both simultaneously. After the
interferon
shot had a few flu like symptoms which quickly passed but I have been feeling extremely fatigued. More so than usual.
Reggieroo
in
MPN Voice
27 days ago
Pain in heels.. Interferon related or not?
Hi, just wondering if anyone has had painful heels especially when walking while being on
Interferon
? I’ve been on
interferon
for around 9 months and every so often I struggle to walk due to the pain, it does ease off and it happens randomly. I didn’t have this before taking
interferon
.
Hi, just wondering if anyone has had painful heels especially when walking while being on
Interferon
? I’ve been on
interferon
for around 9 months and every so often I struggle to walk due to the pain, it does ease off and it happens randomly. I didn’t have this before taking
interferon
.
beckyluck
in
MPN Voice
4 months ago
Headaches
count at the moment is 879 it was 1149 so thankfully its coming dwn a bit am on
interferon
since March of this year so just wondering does anyone else get these headaches ?
count at the moment is 879 it was 1149 so thankfully its coming dwn a bit am on
interferon
since March of this year so just wondering does anyone else get these headaches ?
VTAR24
in
MPN Voice
21 days ago
Depression and peg interferon
Just wondered if anyone in a similar boat has started on the
interferon
as I know it has a known side effect of causing depressive moods. Tim
Just wondered if anyone in a similar boat has started on the
interferon
as I know it has a known side effect of causing depressive moods. Tim
Timjonze
in
MPN Voice
3 months ago
Interferon and skin
I have been on
Interferon
for a few years but over the last 2 my skin is suffering, loads of dry and itchy skin, anyone else having similar issues?
I have been on
Interferon
for a few years but over the last 2 my skin is suffering, loads of dry and itchy skin, anyone else having similar issues?
shiftzz
in
MPN Voice
8 days ago
”low risk” interferon trials
Hi all, just wondering if any folks who have been tagged “low risk” by your care team have tried
interferon
treatment. I’m a 36 y/o female with PV (60% jak2 mutation), otherwise good health.
Hi all, just wondering if any folks who have been tagged “low risk” by your care team have tried
interferon
treatment. I’m a 36 y/o female with PV (60% jak2 mutation), otherwise good health.
TwinMom88
in
MPN Voice
2 months ago
Polycythemia vera: past, present and future
The approval of ropeginterferon, a novel monoPEGylated
interferon
, coupled with findings from LOW-PV and longer-term data from CONTINUATION-PV that strongly support a disease-modifying effect for
interferon
therapy, have transformed the treatment paradigm for this disorder.
The approval of ropeginterferon, a novel monoPEGylated
interferon
, coupled with findings from LOW-PV and longer-term data from CONTINUATION-PV that strongly support a disease-modifying effect for
interferon
therapy, have transformed the treatment paradigm for this disorder.
Manouche
in
MPN Voice
1 month ago
ASXL1 mutation 39% Worried about MF turning into leukemia
Hello Everyone, I have almost taken Rux for more than 7 years. and added
interferon
during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of
interferon
. China site only available Rux in the markets.
Hello Everyone, I have almost taken Rux for more than 7 years. and added
interferon
during the time. Actually my platelets are already very low now because of prolonged suppression of signaling pathways and the use of
interferon
. China site only available Rux in the markets.
merlisa
in
Fight MPN
11 days ago
should I start interferon?
Should I wait until I’ve spoken with the doctor about the statin issues or should I plough on with the
Interferon
? I’ve messaged my Haematologist and not received a reply yet.
Should I wait until I’ve spoken with the doctor about the statin issues or should I plough on with the
Interferon
? I’ve messaged my Haematologist and not received a reply yet.
Reggieroo
in
MPN Voice
1 month ago
Interferon alpha
My doctor has suggested putting me on
Interferon
Alpha and sent me the leaflet guide from MPN voice. The side affects seem vast and in all honesty, quite scary.
My doctor has suggested putting me on
Interferon
Alpha and sent me the leaflet guide from MPN voice. The side affects seem vast and in all honesty, quite scary.
Carlalawoo
in
MPN Voice
4 months ago
9 months on interferon
Does anybody have experience of their counts stabilising on
interferon
and if so, how long did you stay with the same dose or how long before you started to reduce the dose a bit? I'm naturally curious about the different experiences people have on
interferon
.
Does anybody have experience of their counts stabilising on
interferon
and if so, how long did you stay with the same dose or how long before you started to reduce the dose a bit? I'm naturally curious about the different experiences people have on
interferon
.
Skyehope
in
MPN Voice
3 months ago
Shortage of Pegasys Interferon
We are aware that some countries may be experiencing a shortage in the supply of Pegasys
Interferon
and would like to reassure you various UK Health Bodies and MPN experts have this under review and that it is not an immediate problem in the UK.
We are aware that some countries may be experiencing a shortage in the supply of Pegasys
Interferon
and would like to reassure you various UK Health Bodies and MPN experts have this under review and that it is not an immediate problem in the UK.
Mazcd
MPNVoice
in
MPN Voice
2 days ago
Hydroxy to Peg Interferon
Having seen my haem on Thurs and explaing some of the symptoms/side effects I have recently been experiencing (long bone pain, ‘fizzy’ hot feet, mouth ulcers, thin breaking hair & nails, mega bruising, etc etc) he has now suggested I start Peg
Interferon
after a heart scan.
Having seen my haem on Thurs and explaing some of the symptoms/side effects I have recently been experiencing (long bone pain, ‘fizzy’ hot feet, mouth ulcers, thin breaking hair & nails, mega bruising, etc etc) he has now suggested I start Peg
Interferon
after a heart scan.
Polly-PV
in
MPN Voice
2 days ago
What to expect at start of Pegasys?
A question for those of you with PV on Pegasys
Interferon
please:- If you had side-effects were they from the first injection or did they emerge later? I know this will be dose / individual dependent (I don't yet know dose or frequency).
A question for those of you with PV on Pegasys
Interferon
please:- If you had side-effects were they from the first injection or did they emerge later? I know this will be dose / individual dependent (I don't yet know dose or frequency).
RoundTheWorld
in
MPN Voice
2 months ago
does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to
interferon
. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to
interferon
. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
3 months ago
whiplash pain and interferon
hi everyone I started
interferon
about 6 weeks ago and apart from a bit of nausea and the odd ache the day after seem ( fingers crossed) to be tolerating it ok.
hi everyone I started
interferon
about 6 weeks ago and apart from a bit of nausea and the odd ache the day after seem ( fingers crossed) to be tolerating it ok.
Loubprv
Volunteer
in
MPN Voice
2 months ago
hydroxy/ interferon treatment questions
Hello. I understand that as (currently) incurable disorders PV and ET require long term management via venesection, anti-platelet and cytoreductive drugs. Does this mean constant cytroreductive treatment or can there be breaks if a patient’s bloods respond sufficiently, with a return to the drugs when
Hello. I understand that as (currently) incurable disorders PV and ET require long term management via venesection, anti-platelet and cytoreductive drugs. Does this mean constant cytroreductive treatment or can there be breaks if a patient’s bloods respond sufficiently, with a return to the drugs when
RoundTheWorld
in
MPN Voice
2 months ago
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