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Experiences with
Hydrea
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Mrs M
can anyone tell me if I can get sedation at the dentist on
hydrea
can anyone tell me if I can get sedation at the dentist on
hydrea
Daisyduke40
in
MPN Voice
3 months ago
Starting Hydrea
I’m nervous about starting
Hydrea
and would love to hear what to really expect. I enjoy the outdoors so I’m really worried about sun exposure with more sensitive skin caused by
hydrea
. Any feedback is appreciated!
I’m nervous about starting
Hydrea
and would love to hear what to really expect. I enjoy the outdoors so I’m really worried about sun exposure with more sensitive skin caused by
hydrea
. Any feedback is appreciated!
FiestyJuan
in
Fight MPN
5 months ago
Hydrea
Am on HU and had a small lump come up on my face had it removed and just had letter from dermatologist to confirm it was basil cell carcinoma I now have to wait till end of April to speak to my hemotologist has anyone e else had this and did you have to change meds thankyou
Am on HU and had a small lump come up on my face had it removed and just had letter from dermatologist to confirm it was basil cell carcinoma I now have to wait till end of April to speak to my hemotologist has anyone e else had this and did you have to change meds thankyou
Chel1
in
MPN Voice
5 months ago
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A month into Pegasys, Australia …
She asked how my side effects were compared with
Hydrea
and I said they hardly rated at all in comparison. I really struggled with
Hydrea
and Pegasys was like a walk in the park.
She asked how my side effects were compared with
Hydrea
and I said they hardly rated at all in comparison. I really struggled with
Hydrea
and Pegasys was like a walk in the park.
Pachena
in
MPN Voice
2 months ago
Meylofibrosis/Hydrea
On
Hydrea
and blood counts within normal limits within weeks. Now on 1000mg per day except mon&tue - 500mg. All is well.Since last week I have been battling with painful right arm. Diagnosed with frozen shoulder. Anybody that might have heard of similar problems? Is it the
Hydrea
?
On
Hydrea
and blood counts within normal limits within weeks. Now on 1000mg per day except mon&tue - 500mg. All is well.Since last week I have been battling with painful right arm. Diagnosed with frozen shoulder. Anybody that might have heard of similar problems? Is it the
Hydrea
?
RietFontein
in
MPN Voice
5 months ago
Droxia vs Hydrea
I saw that
hydrea
does not come in a lower dose but droxia which appears to be a form of hydroxyurea does so am thinking maybe I should switch to droxia? I've never heard of anyone taking droxia and only read that
hydrea
is prescribed for PV.
I saw that
hydrea
does not come in a lower dose but droxia which appears to be a form of hydroxyurea does so am thinking maybe I should switch to droxia? I've never heard of anyone taking droxia and only read that
hydrea
is prescribed for PV.
ERei
in
MPN Voice
3 months ago
Started Rux
Hello All, I am a 75 year old guy, diagnosed with MF two years ago, and been on 1
Hydrea
500/ day since. In May my dr convinced me to switch to Rux.
Hello All, I am a 75 year old guy, diagnosed with MF two years ago, and been on 1
Hydrea
500/ day since. In May my dr convinced me to switch to Rux.
Arami
in
MPN Voice
3 months ago
IVIG makes cells drop severely
I was taking my usual 1000mg
Hydrea
at the time the infusion started but stopped it completely two weeks after as counts began to drop. The low point was one week after stopping all
Hydrea
. He was so worried my hematologist did a BMB on me that was basically unchanged from one I had a year ago.
I was taking my usual 1000mg
Hydrea
at the time the infusion started but stopped it completely two weeks after as counts began to drop. The low point was one week after stopping all
Hydrea
. He was so worried my hematologist did a BMB on me that was basically unchanged from one I had a year ago.
George1976
in
MPN Voice
2 months ago
Pegasys & Hydrea
I asked my doctor if we could try a small dose of
Hydrea
maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a phlebotomy.
I asked my doctor if we could try a small dose of
Hydrea
maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a phlebotomy.
russkatt
in
MPN Voice
5 months ago
stem cell for et?
I cannot take the
Hydrea
or Anagralide. Thanks for your feed back
I cannot take the
Hydrea
or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
5 months ago
Taking extra Hydrea on weekends
Hi all, Hope everybody is keeping as well as possible and you can enjoy the summer days, even with the strange weather this year :) Personally, I have been enjoying the cooler temperatures as I can get out 😊 I have ET and PV and have been on
Hydrea
for 7 months now (interferon didn't work).
Hi all, Hope everybody is keeping as well as possible and you can enjoy the summer days, even with the strange weather this year :) Personally, I have been enjoying the cooler temperatures as I can get out 😊 I have ET and PV and have been on
Hydrea
for 7 months now (interferon didn't work).
JustKeepSw1mming
in
MPN Voice
2 months ago
Strokes, ET, treatment options
The hematologist increased the
Hydrea
doses somewhat. The platelet count decreased slightly to around 800. The hematologist further increased the
Hydrea
doses to one pill each day and two pills on Wednesday, Saturday, and Sunday. About ten days ago, I collapsed again.
The hematologist increased the
Hydrea
doses somewhat. The platelet count decreased slightly to around 800. The hematologist further increased the
Hydrea
doses to one pill each day and two pills on Wednesday, Saturday, and Sunday. About ten days ago, I collapsed again.
sandor13
in
MPN Voice
3 months ago
ET Jak2 . Low iron
Have been on
Hydrea
2x500 a day. Have been feeling very ordinary of late… overwhelming fatigue, joint pain, the bloating and abdominal discomfort most unpleasant … I was feeling generally “crap” as I told my GP 3 weeks ago.
Have been on
Hydrea
2x500 a day. Have been feeling very ordinary of late… overwhelming fatigue, joint pain, the bloating and abdominal discomfort most unpleasant … I was feeling generally “crap” as I told my GP 3 weeks ago.
Stargaye
in
MPN Voice
3 months ago
CALR Trial (INCA033989)
Gotlib at Standford) just informed me that I could be eligible for this trial because I have an intolerance to
Hydrea
. I've been doing some research on it and I was hoping I could find someone currently in the trial. Thank you
Gotlib at Standford) just informed me that I could be eligible for this trial because I have an intolerance to
Hydrea
. I've been doing some research on it and I was hoping I could find someone currently in the trial. Thank you
Zeppelin11
in
MPN Voice
4 months ago
stomach ulcer
I stopped taking
hydrea
for a week and nothing changed. Has anyone had this experience and found out that it is an ulcer of some kind as a result of having PV? I also suffer from hypertension, renal stenosis, and kidney stones. Thanks !
I stopped taking
hydrea
for a week and nothing changed. Has anyone had this experience and found out that it is an ulcer of some kind as a result of having PV? I also suffer from hypertension, renal stenosis, and kidney stones. Thanks !
Auggie17
in
MPN Voice
2 months ago
Newly diagnosed with PV and nervous about starting Hydrea
I would love to hear feedback about starting
Hydrea
. I am anxious because i love to be in the outdoors. I have already had a lot of sun exposure in my life and it will be hard for me to avoid it now. I am also worried about the potential tiredness and nausea. Any feedback would be great!
I would love to hear feedback about starting
Hydrea
. I am anxious because i love to be in the outdoors. I have already had a lot of sun exposure in my life and it will be hard for me to avoid it now. I am also worried about the potential tiredness and nausea. Any feedback would be great!
FiestyJuan
in
MPN Voice
5 months ago
essential thrombocytosis
Or had side effects from
Hydrea
or Anagralie?
Or had side effects from
Hydrea
or Anagralie?
Preacherswife
in
MPN Voice
6 months ago
New member - Post ET MF (Australia)
I'm currently participating in the INCA033989 CAL-R antibody trial but also on
Hydrea
to try to control my platelets. My platelets are still around 1.8 million.
I'm currently participating in the INCA033989 CAL-R antibody trial but also on
Hydrea
to try to control my platelets. My platelets are still around 1.8 million.
Hatchie
in
MPN Voice
4 months ago
ET jak2 to PV
I have been treated with
Hydrea
500mg a day since January of 2021. My bone biopsy that year indicated ET/Jak2. I am seen at a local hematologist here in Alabama but I go to MD Anderson to see an MPN specialist annually.
I have been treated with
Hydrea
500mg a day since January of 2021. My bone biopsy that year indicated ET/Jak2. I am seen at a local hematologist here in Alabama but I go to MD Anderson to see an MPN specialist annually.
Auggie17
in
MPN Voice
3 months ago
Cataract surgery?
I'm about to be changed over to Pegasys from
Hydrea
, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
I'm about to be changed over to Pegasys from
Hydrea
, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
7 months ago
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