Experiences with

Hydrea

I was on Hydrea but suffered extreme fatigue. Now I am on Jakafi and have numerous side effects (stomach pain, diarrhea, fatigue). When I was on Hydrea my blood counts were normal. Which drug will keep my counts stable for the longest period of time?

Does anyone have any information about this supplement which is claimed to be a natural alternative to hydrea?

I was diagnosed with PV in 2019 and have been taking Hydrea ever since. Every winter, because of the Raynaud's, I get small painful sores that look like blood clots in my toes. They usually go away within a few days.

Can Hydrea affect your liver in this way? Many thanks

Hi can anyone tell me the difference between hydrea low dose to interferon as I am possibly switching from pegasys interferon to hydrea in the next week or so because of shortage thanks all

This is the 1st time, I have had a bug after starting hydrea and I feel it is taking me a while to shake off.

My hydrea prescription has been gradually increased over past year to try keep levels down ie hydrea 5 x2 & 2×3 and daily asprin. Second set of blood tests carried out in the evening before i headed home to double check if It was just a blip.

I am nervous, after my experience with interferon and Hydrea. I think many people are taking Rux already. Does anybody have any advice about it ? Thank you very much. Mary

Hi all..soo i finally got a letter back from my hemo specialist and I'm triple negative bone marrow is healthy no abnormalities ..however she wants to start me on hydrea bc my plateletts are around 750 but I'm terrified bc iv read about that treatment and it kills cells in the bone marrow!

I'm wondering whether there's any connection between either Polycythemia vera or hydrea with Rayanud's? I'm experiencing quite painful and very persistent blood clots in one foot, that just will not let up in cold weather. It can be so painful that it keeps me up at night.

Hi, I’m ET, CALR positive, taking 2 hydrea daily, I have had my phone appointment with my haematologist, and he told me that not only have my platelets risen again to 879 but my haemoglobin are very high. So he has increased my dose to 3 tabs at the weekend, 2 tabs mon-fri.

Hi just been put on ruxitnib but platelets are still 1340 i had blood clot last year in my neck and arm and both lungs my platelets have been over 1000 for the last three years I have been on hydrea pegus has anyone have this problem with there platelets for so long I have had two bone marrow bisopy

Does anyone know much about Anagrelide as its one of my treatment options as well as hydrea met with consultant yesterday and these are options she gave me and some info to read the difference between the two I am drawn to the Anagrelide seems to be less side effects but again I know everyone is different

Tks to everyone for ther advice on me possibly having to move from interferon to hydrea cause of shortage imi to consultant later today so hopefully all will be well and this shortage will also end soon

I Am on Hydrea (1000mg daily) - anybody knows if receiving steroid injections for the pain could cause a problem for immune system?. (HU + Steroid = both lower immune system responses? - The way I understand.)

Got switched to Hydrea about 12 yrs ago. Only last year my right foot broke out with very painful ulcers and I was getting skin cancers on my face and ears. Dr took me off Hydrea and everything cleared up. A month later my oncologist put me on Pegysys, 135mg a fortnight.

What can I take for this and is the MF or the Hydrea the cause? To add to this I now also (3 weeks) a tinittus in both ears. ENT could find no problem.

My oncologist then put me on Hydrea and took me off Interferon about 7 yrs ago. Recently my right foot burst out with painful foot ulcers and what appeared to be skin and ear cancers. I ceased the Hydrea for a month and everything began clearing up.

I take 500mg Hydrea , 75mg Clopidogrel and 10mg Ezétimibe daily which keep my platelets in the normal range and cholesterol levels low. I am currently struggling with red eyes and conjunctivitis again. Might this be caused by inflammation inherent in ET?

I am on Anagrelide at the moment but will have to switch medication very soon.I am intolerant to Hydrea. There are two possiblities: or Jakafi (rux) or Besremi. I wonder what would be the best solution. The spleen is not enlarged.