DLA: Just want to share some good news with you all... - LUPUS UK

LUPUS UK

32,241 members28,596 posts

DLA

Trace profile image
24 Replies

Just want to share some good news with you all. I applied for DLA back in February last year, it took a year & I had to go to a tribunal & was awarded the lowest rate of mobility, they also advised me to claim again for a higher rate, so, in may this year I filled in another form, I was of course denied an increase. Last week I had a DLA Dr come to see me at my home & today I had a letter from them to tell me that they have awarded the highest level of mobility & the middle rate of carers allowance. I wanted to share this with you because I have read some of the blogs with people getting refused it & I just want to say keep fighting for it, never give up (that's what they want us to do), I am very lucky, I have no family but I am blessed with some very good friends who do all they can to help me (I feel like giving up so many times). Please don't give up, go to tribunal if you have to & let them come to your home to see what your life is really like' Stay well my friends x

Written by
Trace profile image
Trace
To view profiles and participate in discussions please or .
24 Replies
Sue2803 profile image
Sue2803

Thats brilliant news and well worth knowing. Well done.

I was turned down today!! but hey what fantastic news Trace,,you deserve all the help you can get.Glad you have good friends around you hun.I am going to appeal.i applied before i was diagnosed with the fybro aswell.x

Trace profile image
Trace in reply to

Thanks Dawn, I am proof that it can be awarded, I want all my fellow Lupies to apply for it, apply, apply & apply again, go to the tribunals & medicals, do what ever you have to do to get it, please don't let them put you off. My money worries have been eased considerably, its been a hard 20 months, also, they back date it too when you put the claim in. Keep at it hunn xx

Hey Trace,you have me decided i will definatly appeal,the man on the phone said today i should do this,,,thanks so much and hey well done to you girl.xx

Trace profile image
Trace in reply to

Well done Dawn, even tho it takes so much effort, never give up xx

bettie profile image
bettie

Hi Trace

I was turned down at first with the DLA but after an appeal I was awarded Lower carers and Higher Mobility, well done. Don't give up other lupies if you have been turned down, keep trying.

Trace profile image
Trace in reply tobettie

Well done Bettie xx

lupiedeb profile image
lupiedeb

well done in persevering with your claim, it makes me mad that we have to fight for everything that we want. Hope your award makes life alot easier for you :)

Trace profile image
Trace in reply tolupiedeb

Thanks lupiedeb, its taken a lot of pressure away & hopefully now I can concentrate on getting well & leave behind this flare that I've been in for over 2 years xx

purpleprincess profile image
purpleprincess

i applied for it in 2000 when i found out i needed hips replacing, they turned me down..twice but i kept on at them, and eventually got 12 months at higher mobility in 2003...then since the hips and the lupus have caused a lot of problems i reapplied in 2005 and have been on it since, and recently have finally been awarded the lower care component too

i would say keep on at them, you deserve the help..good luck x

Trace profile image
Trace in reply topurpleprincess

Great news purpleprincess, keep well x

Yols profile image
Yols

I have recently applied - have put it off for ages, thinking I would get nowhere but hearing all your comments it gives me confidence that I did the right thing. Fingers crossed eh? - Well done :)

Trace profile image
Trace in reply toYols

Yols, well done, its a big step I know. Keeping fingers, toes & eyes crossed for you. Good luck x

Yols profile image
Yols in reply toTrace

Trace, just wanted to let you know I have just been awarded the higher rate mobility and the lowest rate carer! Thank you for your encouragement. I would never have applied had I not read everyone's comments and now it will make a big difference to my daily life. I do hope that others reading all these comments will be inspired to claim. Thanks again :) x

Trace profile image
Trace in reply toYols

Yols,

That's fantastic, I am so pleased for you, it will make a big difference to your life, I have found that I can now afford to pay my bills, it takes away some of the stress of being ill. Ijust wish we didn't have to fight so hard to get it.

I hope your news encourages others to apply for DLA, after all it's only what we're entitled too.

The one good thing about having a long term illness is that we can all learn about the system & be able to help others.

I use some of the care package money on having a cleaner, it's been one of the best things I've done & if you can afford to do it, I would recommend you get a cleaner too.

Once again, well done you, Im proud of you xx :-)

spamula profile image
spamula

I went to a local help centre who helped me fill the form out. They advised that you work on the worst day. CAB will qlways help you with the forms. I also have a brill specialist who when contacted by the DWP must have confirmed how delibitating SLE is. I was given higher rate for mobility and carer. You will be able to get a blue badge and also a bus pass. The money has really helped it means I can get people to help with things that are just impossible for me to do. It will also mean that you would be entitiled to a government grant to help with insulating your home eg: the loft or cavity wall. Hope this info helps. xx

Gillyg profile image
Gillyg

Well done it is very easy to give in. I have family who help so I gave in after trying but if I didn't then I am sure I would have tried again. Good luck to you.

Tasman profile image
Tasman

Dear all,

also have recently been reawarded my DLA, took them just 20 days to decide, have battled for it since 2003, when I was originally turned down despite being virtually bedridden and having my toddler cared for out of the home! I've had help from disability rights and been to a tribunal, had docs visit, only have it for two years tho, so don't know what to do about my car, does anyone know? I have now applied five times and been successful three times, so appeal, attend the appeal with a disability advocate and get what us lupies deserve!

Tas

janeway24 profile image
janeway24

Well done one and all, I was awarded DLA at higher mobility and medium carers, and as I have no -one to help me at home the money came in very handy indeed. So as you have all said keep up the good fight and stick to getting what your entitled too. Best of Luck to all of us.

Nikkski22 profile image
Nikkski22

Thats brilliant Trace! i myself was refused the second time i applied. i think i might give it another go now! worth a try xx

NeeNaw profile image
NeeNaw

If you have been diagnosed with fibromyalgia together with lupus, you stand a better chance of getting DLA ......... I don't think they understand that we would much prefer to be out working than living an uncertain life with a disease that changes constantly. Congratulations, so pleased for you and my advice would be to NEVER give up.

NatashaW profile image
NatashaW

Congratulations! Keep up the fight as we all do! x

LaughItUp profile image
LaughItUp

I don't have the energy to reapply for DLA.

I'm on my own and my landlord (I'm currently lodging) is evicting me as he thinks I'm sitting around all day through choice and doesn't seem to like the fact that I'm treating myself well by eating quality food.

So I'm currently spending every ounce of available energy (which isn't much) trying to avoid homelessness, which isn't easy on benefits and being limited as to what types of property will be suitable.

AngelaW profile image
AngelaW

Well done, I too receive the higher rate mobility and the lowest rate care component. It took a while and I had to appeal but I've had them both for 5 years now. I got information on how to fill in the forms from the National Arthritis Campaign website. As said earlier, never give up!

Not what you're looking for?

You may also like...

Got my DLA :)

Hi all, I just thought I would share, as some time ago I posted to ask how long it usually takes...
pollyanna profile image

Good news about DLA !

I received a letter today about DLA saying that I had been awarded higher mobility rate and middle...
janekins profile image

DLA Indefinite

When I was 17 (in 1999) my dad applied for DLA for me on my behalf. At the time I was at college...
charm81 profile image

Lost my PIP Tribunal today. No more Motability car.

Dear Friends, Thanks to all of you who supported me through my PIP over the last year. This week I...
LilyMistri2 profile image

DLA awarded

I originally had low rate care, no mobility, which everyone agreed was inaccurate. I had to file...
Silvergilt profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.