When I was 17 (in 1999) my dad applied for DLA for me on my behalf. At the time I was at college and enjoying being around my peers. So at the time I didn't want to think about the fact that I had incurable disease or categorise myself as disabled (although be it on paper). I remember vaguely going for a medical assessment and not passing the criteria because I at the time I was able to carry out all the actions the Doctor/Medical Professional requested me to perform.
By 2004/2005 I suffered a severe fare-up in which I was hospitalised for 5 months. During this time I was awarded DLA for 3 years. Then in 2007 I was awarded it for 2 years. My renewal is up and my current run is due to end at the end of April 2012.
The DWP sent me the renewal forms in Dec 2011. As I have been so unwell I was unable to return the form until Feb 2012; due to a severe case of discord lupus all over my body in which I was severely debilitated and unable to use my hands. I believe that as I felt so ill at the time of this particular renewal, I was able to paint an exact image of how terrible our condition can be and this strengthened my application.
I have now been awarded the Highest Rate Care and Mobility indefinite. I am aware there will be changes to DLA in 2014 so I don't know if this will affect me, but I am relieved I am receiving the extra support and assistance I so desperately need.