Just wanted to make sure that everyone saw this :
THANK YOU SO MUCH everyone for your support over the past few days, I made it to Monday!
So it turns out that steroids are NOT FOR ME! The phone lines were down for the GP this morning and we were phoning and phoning, but thankfully my husband had taken the day off and he drive me to the GP and we got seen straight away THANK GOODNESS!! What a relief to get help. I think he used the words "unmitigated disaster" as I sat there shaking, sweating and wheezing in his chair ... I could barely talk so I handed him the list of side effects with the bits underlined that I was experiencing : "feeling depressed, including thinking about suicide, feeling high (mania) or moods that go up and down. Feeling anxious, having problems sleeping, difficulty in thinking or being confused, frightening thoughts, changing how you act, having feelings of being alone.." all of those and more.
He said that he'd never seen someone with such extreme reaction to steroids before!! And I was only on 10mg!! I didn't even get any relief from the lupus symptoms either!!
I'm taking 7.5mg today, 5 tomorrow, then 2.5 and then I'm off them by Thursday.. so I'm not out of the woods yet but there is light at the end of the tunnel. At least I'm not alone today.
Thank you everyone for your support, it's been a life-line.