I was diagnosed a year ago with Lupus Nephritis, did three months chemo but the doctors proved to be really unprofessional and obviously hadn't deal with a similar case before (outside UK). So I quit and since then I'm only on 200mg of Plaquenil a day.
I will be moving to the UK in September to see a proper doctor. I feel really bad and I'm wondering whether I should continue using Plaquenil. Has anyone with this diagnosis been without treatment for so long? Are steroids the only option (because I'm not going there again, ever)?