So I saw Dr Griffiths who was lovely & looked like we had pinned my varied symptoms down to polymyositis. Two raised CKs (1350) 4 wks apart. No different physical activity during that time. 3rd CK at time if MRI was only slight raised at 207. Nothing shown on thigh mri!! So been sent home with fibromyalgia except I can barely walk far at all! She said polymyositis not likely in behcets & as for lupus I had no ANA. Unlikely ck would drop if it's polymyositis. Any ideas anyone please? I'm considering getting a wheel chair as I can't get very far without bench rest. As I end up too distressed by pain & fatigue. Plus it actually feels like I've already walked 10mile & on last legs. I'm not sure that's a typical fibromyalgia thing?
Thanks for your help xxxx