Hi guys, I'm having a bad few days where I'm stuck to the sofa as I'm stiff and drained and the washing up is piling up and I have no inclination at all to move to do it! The kids are fed and happy , happy changed etc clean and warm all ok.
However the kitchen sink is a different scene and I'm not looking my best either ha!! I'm only expecting a dpd delivery and I'm.pretty sure hes used to seeing me like this now! He probably thinks I dont own any clothes! Just pjs!
Anyway get to the point!! I was thinking whether I should get a chair with wheels for the kitchen so that atleast I might be able to get myself into the kitchen onto the chair and pull myself along the worktops to the sink to wash up??! I hate this as I feel so lazy but I'm just so exhausted and have zero get up and go.
My poor partner Ive not sorted him any t for padt wk when hes come in from work and that's not fair when Ive been at home but by 5/6pm I cannot even think of doing anything like that. Ps this morning he did day to me ' I know this will make no difference to u but will say it again anyway, it doesn't bother me if I get home and the house is a mess, i can sort myself some t too, you have enough going on and the kids to look after'. I am very lucky he is so understanding but it is very hard to sit looking at it all.
Anyway the question was wil a normal office type chair with wheels go close enough to the sink?? Does anyone use one? I have a perching stool but feel if I have wheels I can move around the kitchen and get more done.
Sorry I diverse so much ha!! X
K have got a home pip assessment work after next but not holding out much hope I'm sure they will take one look at the fact we live in a lovely sought after village nice house etc and laugh at me!
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Sara_A
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Maybe you could get a cleaner In for an hour or two each week? When you are looking after children and Feel healthy that’s pretty hard going in it’s self.
This would take the pressure off you and your partner x
Well I'm.really hoping that I get some sort of pip as that's what I'd like to use the money for and a couple of extra aids around the house as I only really can get upstairs once a day to go to the toilet, I try to bring everything down in the morning that I will need.
I could really do with extra money, I have 3 children. Like today I’m stuck in bed , extra would help with a take away, getting them transport to and from school instead of them having to miss a day 😓 but it looks so hard to get I’m scared of the battle
Please let me know how you get on with your claim x
Well knowing me I will try once but prob wont have the energy to appeal!!
In my 20's, am now 39, I used to get dla but I know now it's now much harder. But I thought I'm going to try.
A friend of mine recently had a report sent back to her which said she managed fine with the kids she did all her own shopping and housework etc and none of this is true so she suggested I write down every single little thing I get help with down to my 6 yr old having to strap my 2 yr old into the pushchair! And my partner having to put out the washing liquid for the washing in the mornings as I cant squeeze the bottle, he has to nappy change and dress the children before he goes to work each day, i can only see once a day as i cant go up the stairs frequently! Etc etc etc many of those are manageable ie alternatives but until u dot and list things u dont actually realise how much this all impacts ur daily life x
You really have got the right idea, noting all the things down. Remember to answer as your worst day. No harm in being in your pjs if that is how you usually are! No special efforts please!
Your hubby is the keepiest keeper ever!
Where you live, your current income etc should have nothing to do with it. This benefit is not means tested.
I'm really hoping it is a bad day I know I shouldn't but u know what it's like with these things it's always typical that u are ok and look 'OK' so yes I am hoping for a pretty bad day so I can stay in my pjs and no make up on quite happily for it if need be. I will be as I am on a normal day for me and my family and let them see and be honest of how my life really is on a daily basis.
We will see.
So it has taken me all day to do half the washing up yay!! Dad is home earlier from work in a sat 5.30 instead of 6.30 so I'm off to bed now! To wake up feeling like Ive never even been to bed! The Joy's of lupus x
Do you know if your rheumatology department has an occupational therapist they could refer you to? They could come and assess you in your home and provide some equipment which may be able to help you manage better.
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