I read a lot of symptoms on here that people post about lupus and other things but for me fatigue and pain are the worst. I don't think I get a lot of the other things but then maybe they are secondary to the fatigue and pain. I feel have very low energy levels, maybe 2 hours of either mental or physical energy a day If I am lucky. If I go over this it takes me several days to recover. If the lupus is doing something to me I don't know about it until I get blood tests done. With things like benefits [ I can't stop thinking about this lately probably because I am overdue a review] tiredness and pain don't seem to count for anything. [lost my train of thought now and can't remember the question I wanted to ask you all]
Is it flares that are making me so tired or is that just normal lupus? How can you say to a benefit assessor " I can't work because i'm tired"?