LUPUS UK
21,893 members17,332 posts

Pip claim

Hello I was wondering if anyone on here has been rejected for pip payment I had a assessment in July and scored no points I then went and asked for a mandatory reconsideration and still scored no point s I find this terrible because I have sent serval letter s from my rheumatologist and Gp all stating my condition and having to take this to a tribunal please tell me if anyone has been awarded for mixed connective tissue disease /lupus thanks once again ❤️

8 Replies
oldestnewest

I think others have gone to a full tribunal on this, but I don't think anyone had no points, just not enough points, and perhaps an assessor who was incompetent. I did get my award last year, but the medical letters were a sort of extra proof for my main application. In our case we are awarded points on how much a condition affects us rather than what the condition is. Did you have help in completing the forms and during the process? The Welfare Rights Officer from my council came to the house and completed the form for me. Everything she put was truthful, but addressed very specifically the parts that meant points were awarded.

I'm sorry I can't be more help.

Reply

Thank you for your response I sent my letters off to take action for the tribunal yesterday so don’t know how long it will take so just have to sit and wait thanks once again for responding ❤️

1 like
Reply

Hi AlisonCrowther,

If you would like literature regarding PIP i.e. reconsiderations, appeals and the support available to you, you can contact me at chanpreet@lupusuk.org.uk

Reply

Hello Chanpreet thank you for responding to my post I have sent my letter of to tribunal don’t know how long it will take for them to get in touch but if you have more information you could send me about mixed connective tissue disease/lupus I only get certain information from my rheumatologist nurse but the more things I understand and know the better I have been reading a lot about the pip claims and it seems like a lot of sufferers don’t get awarding even though it is apparently in the blue book I find this very frustrating because how many times do people have to apply and still get turned down thank you sorry for the rant ❤️

Reply

Hi AlisonCrowther,

We offer a free information pack that contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. To download or request the pack please click here: lupusuk.org.uk/request-info...

Mixed connective tissue disease (MCTD) is an autoimmune disease that is considered to be a cousin of lupus. We published a factsheet on ‘LUPUS: and Mixed Connective Tissue Disease’ which discusses symptoms, complications and the treatments available for MCTD. To read this factsheet, please click here: lupusuk.org.uk/wp-content/u...

We published a number of factsheets which discuss various topics with regards to lupus which I hope you will find useful: lupusuk.org.uk/publications/ .

Please let us know how you get on, wishing you all the best.

Reply

I will thank you so much ❤️

1 like
Reply

I scored 0 points earlier this year, she wouldn't let me say much, just answer the question please!

Never felt comfortable in there, so I gave up on the idea!

But good luck to others

Steve

Reply

Bless you it’s really difficult you know what you have but they just don’t seem to care you know it’s a constant battle fighting with a illness but to be told your not intitiled to any help is ridiculous doesn’t seem fair at all who are these people to say there not Doctors

1 like
Reply

You may also like...