red blobs

[Tiggywoos]

Hey lovelies

Just wondered does anyone else get these blobs ??

They don’t itch , they aren’t sore and disappear after couple weeks . Can appear anywhere on body .

Thank you for reading 😘🙏

[Spanielmadlady]

Hi Tiggy... This is the closet I get to your blotch. Ear scratch for his lordship and a hug for you 🫂 x

Red blotches

[Tiggywoos in reply to Spanielmadlady]

Ooh thank you … I take it they don’t itch either ? Funny as started getting them about 8 years ago which coincided with gallstones . Tiggy loves an ear scratch ❤️xx take care hun

[Spanielmadlady in reply to Tiggywoos]

No they don't bother me. Maybe feel a bit dry at times but that's all and they disappear of their own accord. I showed those pics to rheumy at kellgren centre who didn't say much about them other than they were possibly a bit of discoid lupus 🤷 x

[Tiggywoos in reply to Spanielmadlady]

Exactly same here ! How funny 🤷‍♀️. Be interesting to see if anyone else joins our blob club 😉❤️xx

[Spanielmadlady]

Blob club I Like it.😁 Haven't had any for a while.Still nwb in plaster hope to come out of cast at next check up xx

[Tiggywoos in reply to Spanielmadlady]

It feels like the time has gone quickly but bet it hasn’t for you? 😔. Will be so lush to get that cast off ! X

[Spanielmadlady in reply to Tiggywoos]

Hasn't gone over too bad to be fair I've kept myself well occupied crocheting a throw and Ive had plenty of visitors. It will be so nice to wash leg after 5 weeks lol x

Crochet flower

[Tiggywoos in reply to Spanielmadlady]

That is so lovely !! You are so crafty ! That leg 🦵 will love a nice wash 😃😃

[Spanielmadlady in reply to Tiggywoos]

Thank you xx

[CecilyParsley]

They look like my little eczema patches but mine itch like mad 😬xxx

[Tiggywoos in reply to CecilyParsley]

Ooh that must be so annoying 😫. Thank you for replying angel . Dare I ask how things are you’ve had horrible time of it and I’m so sorry ? I follow you on bechets forum . Please feel free to rant xx

[CecilyParsley in reply to Tiggywoos]

It is annoying. Mind you the sheets on my bed were changed the day before yesterday but look as if they have been run over my a a truck of oil. I go to bed covered from chin to toes and everything in between with thick lard like emollient cream. I swear I am like a crisp. Dry hair, dry eyes, dry mouth, dry skin, brittle nails even vaginal atrophy.

Since coming off the Azathioprine I have been having really fierce hot flushes, the itching intensifies at night and worse still I have to wee every 15-20 minutes. I had no sleep at all last night. The night before I had to wee 18 times during the night. I swear someone has a voodoo doll of me.

As my Rheumatologist has basically decided I will have no treatment for not putting up with vomiting bike, pooping cream coloured stools and having intense stomach pain and acid reflux, I am again in despair as to what is causing the leg pain. I am dragging it again as it will not bend and it is agonising. I have had to refer myself for an OT assessment fir a chair lift as it is so hard to get up and down the stairs.

On the positive side the OT assessment is next Tuesday. I had a pelvic health physio appointment t and Sge believes my pelvic floor is too tight causing the pelvic pain, urinary retention and difficulty pooping. Assessment on 10th March. Finally the GP wanted me to get another physio assessment. She was very thorough and feels the leg pain may be deferred from my spine so after 14 months of begging I have had an MRI scan requested..hoorah.

Thank you so much for asking.It really means a lot xxx

[Tiggywoos in reply to CecilyParsley]

Oh hunni …what can I say ? I have heard about a condition where pelvic floor is too tight . It was on radio 2 medical Monday with Dr Sarah last year . Jesus surely one of the drs would have picked up on that before ?

Just out of interest (I’m sure you did ) but did they do blood test for tnp enzyme to check you could tolerate aza ? Those horrific symptoms sound like you don’t have the enzyme to break it down . I am so pleased you’re having the MRI because it’s the only way to know isn’t it if it’s coming from spine . Dry mouth is hideous at night isn’t it because as soon as the zylimelts wear off you can’t breathe and whole mouth sticks together

I pray you get some light at the end of the blooming tunnel . The worst thing is no one ever joins anything up do they …. Id love to know how you get on with urogynae physio . Sending you a very gentle squeeze xxxx

[Tiggywoos in reply to CecilyParsley]

ahn.org is good sorry I couldn’t copy it xx

[CecilyParsley]

Thank you gentle squeeze is lovely. My husband was so distressed and angry at the Rheumatology outcome he could not cope. I sat there crying and he turned the TV up then went to bed early. It hurt. The following day I let him have it and he admitted he just couldn’t cope with everything..most of us have no choice eh? It is hard for people who love us isn’t it? It is so unrelenting. I am starting to feel a hypochondriac between my pelvic pain, bladder irritated and painful , needing to wee all night but never fully emptying, itching, hot flushes, insomnia, constipation, rectal pain, nasal oral and genital sores, chronic arthritis in my knees, torn meniscus and the awful leg pain fir the past 14 months that has robbed me of my independence. I can cope with most things but this leg pain and being unable to walk has turned me into a complete moaning misery guts.

If one part was helped it would ease the others.

Yes I had the tnp test before I started it. Sadly my Rheumy just would not accept that the stomach pain, bike, acid etc was as a result of the Aza. His view was stay on a lower dose but that did not control my ulceration, joint pain or improve the leg pain so what is the point of having nausea and painful and throwing up bile for no gain? When I refused he spat his dummy refusing any alternative and saying see you sometime ? It is so cruel and unprofessional, I was shocked then desperate. Now at least I have a plan.

I will let you know about the pelvic floor assessment I truly believed my pelvic floor was weak. Watch this space xxx

[Tiggywoos in reply to CecilyParsley]

Jesus rheummy sounds like a treasure 🤦‍♀️. I always say we should write a book on this forum .. the good , bad and very ugly when it comes to consultants . Some are truly shocking and just don’t have a clue . This sounds so Sexist and I’m not but I really don’t know how a male consultant can understand what bladder and pelvic pain feels like . Totally pointless putting up with vile symptoms when it’s not even helping with horrible symptoms 😭.

Totally agree so hard for other half’s to understand . My husband is so black and white in his thinking and rheumatology certainly isn’t that ! It is incredible though as he has IBD and his treatment is exceptional . Even he says he’s embarrassed how well he is treated compared to me . I am under RUH bath now so I’m praying there’s light at end of tunnel . You take care my angel 👼 we gotta keep the faith xxxx

[CecilyParsley in reply to Tiggywoos]

Yes my hubby is under Cardiology and got amazing treatment. Mind you I have had exceptional treatment with ENT and Respiratory both female consultants. My Rheumatologist is a huge disappointment. I actually valued him and never bothered him until the leg pain following my op last year but he and the majority of his nurses have let me down dreadfully. You wouldn’t leave an animal in this pain

That is wonderful that you have now been transferred to Bath. Hopefully your treatment will improve for the better now. I really hope so. Big Welsh Cwtches to you and thank you so much xxx

[Tiggywoos in reply to CecilyParsley]

thank you so much hun . I have high hopes for your urogyne physio and that mri xxxxx 🙏

[CecilyParsley]

Fingers and toes crossed xxx

[Stills]

note I don’t have a diagnosis of Lupus but Stills Disease, an autoimmune condition of Rheumatoid origin. Yes I have strange skin manifestations, tiny red itchy, sore pinprick bumps, mainly on my torso. They eventually go brown and turn into dry scaly lumpy odd shaped growths. GP said they are age spots and some could be as I’m 62 but these have been appearing since my mid 20s and grow in spiral type arrangements. In desperation I use the steroid cream prescribed for lichen sclerosus which helps.

[Lizard28]

Yes I could be in your blob club, looks a bit like my discoid lupus rash although I had loads of them all over my back mostly but in my scalp, a few on my face, arms and legs. Once I got it under control with dermovate and elecon it only comes back like yours. I get the cream on it quickly in case I get more. Xx

[Tiggywoos in reply to Lizard28]

Thank you 🙏

[Clairedown]

I get red blobs! It was why I was first diagnosed with cutaneous lupus. They appear mostly on chest and arms and side of my face, but can be anywhere. Sometimes they itch. Sometimes take ages to go and sometimes disappear quite quickly. Dermatologist has given me various things but eumovate works well on a small area and stops the itching. They were all over me at one stage but hydroxychloroquine appears to have helped. The red blobs are rather different from the all over rash I get Good to share, thank you

[Tiggywoos in reply to Clairedown]

Thank you for replying and I’m sorry yours itch . When I’m not on pred I get them on my face but bigger and blimey they hurt . What complicated creatures we are 😘

[Brackensmum]

Hi

[Brackensmum]

Hi Tiggy and Spanielmadlady, I get them on my legs. Sometimes I have quite a few then they disappear. I've never really thought much about them as they don't really bother me.

[Spanielmadlady in reply to Brackensmum]

Hi Brackensmum. Those of mine in the pic were on my legs too. Occasionally I'll get a couple on my arms x

[Tiggywoos in reply to Brackensmum]

Me too … funny things just pop up !